Tell Your Story
There is never a bad time to share your story!
Write a letter to the editor or send a press release to a local newspaper. Sharing experiences helps people understand what it is like to live with a rare disease.
This press kit will make it easy for you to share the general theme and messages of the day, as well as your own story.
Tell us what you are doing to celebrate Rare Disease Day 2013!
Here are some of the easiest ways to get involved with Rare Disease Day. View ideas:
