Eye Health Organizations Database

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American Association for Pediatric Ophthalmology and Strabismus
655 Beach Street
San Francisco, CA 94109
(415) 561-8505
http://www.aapos.org
• Dedicated to ensuring quality medical and surgical eye care of children and adults with strabismus. Provides information on common eye problems including strabismus, amblyopia, retinopathy of prematurity, conjunctivitis, and learning disabilities. Offers a website tool to help people find pediatric ophthalmologists in their local areas.

American College of Medical Genetics (ACMG)
7220 Wisconsin Avenue, Suite 300
Bethesda, MD 20814
301-718-9603
http://www.acmg.net
• Represents the medical genetics profession dedicated to making genetic services available to and improve the health of the public. Promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases. Offers a “Find a Geneticist” service.

American Council of the Blind
2200 Wilson Boulevard, Suite 650
Arlington, VA 22201
(202) 467-5081
http://www.acb.org
• Serves as a national clearinghouse on blindness issues for individuals, organizations, and institutions. Provides an information and referral service on blindness services, Federal legislation, administrative action, and rulemaking on national and state levels. Educates the public about blindness and the abilities of visually impaired people. Publishes the Braille Forum, a free monthly national magazine.

American Foundation for the Blind
2 Penn Plaza, Suite 1102
New York, NY 10121
1-800-232-5463
(212) 502-7600
http://www.afb.org
• Serves as a one-stop information and referral resource for people who are blind or visually impaired, the people who work with them, and the general public. Conducts a wide variety of programs to support independent living, literacy, employment, and access to technology. Publishes professional materials for blindness and low vision. Offers consultation services to eye care, rehabilitation, and education professionals. Provides referrals to low vision centers. Advocates for legislative change.

Foundation Fighting Blindness
7168 Columbia Gateway Drive, Suite: 100
Columbia, MD 21046
1-800-683-5555
1-800-683-5551 (TDD)
(410) 423-0600
(410) 872-0639 (TDD)
info@fightblindness.org
http://www.fightblindness.org
• The urgent mission of The Foundation Fighting Blindness is to drive the research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. For a $25.00 annual membership fee, FFB offers information and referral services for affected individuals and their families as well as for doctors and eye care professionals. The Foundation also , provides comprehensive information kits on retinitis pigmentosa, macular degeneration, and Usher syndrome. Their newsletter, InFocus, and their e-newsletter, InFocus online. present articles on coping, research updates, and Foundation news. InFocus is published 3 times per year; InFocus online is sent approximately 3 times per year. Their national conference is usually held every year.

International Children's Anophthalmia Network (ican)
5501 Old York Road
Genetics, Levy 2 West
Philadelphia, PA 19141
1-800-580-4226
info@anophthalmia.org
http://www.anophthalmia.org
• Provides information on anophthalmia and microphthalmia. Coordinates a patient registry. Offers referrals to local resources. Coordinates gatherings for individuals with anophthalmia/microphthalmia and their families. Publishes a newsletter, The Conformer.

National Association for Parents of Children with Visual Impairments
P.O. Box 317
Watertown, MA 02471
1-800-562-6265
(617) 972-7441
napvi@perkins.org
http://www.napvi.org
• Offers emotional support for parents of blind or visually impaired children. Provides information, training and assistance, and help in understanding and using available resources. Publishes Awareness, a quarterly newsletter.

National Federation of the Blind
200 East Wells Street at Jernigan Place
Baltimore, MD 21230
(410) 659-9314
nfb@nfb.org
http://www.nfb.org
• With more than 50,000 members, the National Federation of the Blind is the largest and most influential membership organization of blind people in the United States. The NFB improves blind people's lives through advocacy, education, research, technology, and program encouraging independence and self-confidence. It is the leading force in the blindness field today and the voice of the nation's blind. In January 2004 the NFB opened the National Federation of the Blind Jernigan Institute, the first research and training center in the United States for the blind led by the blind. The NFB has affiliates in all fifty states plus Washington, D.C. and Puerto Rico, and over seven hundred local chapters.

National Society of Genetic Counselors (NSGC)
401 N. Michigan Avenue
Chicago, IL 60611
(312) 321-6834
nsgc@nsgc.org
http://www.nsgc.org/
• Represents the genetic counseling profession. Provides information and support to families who have members with birth defects or genetic disorders and to families who may be at risk for a variety of inherited conditions. Offers a “Find a Counselor” service.