Clinical Care Subcommittee Recommendations
January 2013
PDF Version:
http://aspe.hhs.gov/daltcp/napa/011413/Mtg7-Recom2.pdf
(3 PDF pages)
- Launch a nationwide public awareness campaign to promote early
detection and diagnosis of Alzheimers disease.
- The Centers for Disease Control and Prevention (CDC) should
coordinate with relevant federal agencies and other stakeholders in a
public-private partnership to develop a public awareness campaign to promote
early detection and diagnosis of Alzheimers disease, to be launched by
January 2014.
- The CDC should partner with medical professional groups to launch
a parallel awareness campaign targeted at physicians and other health care
professionals about the benefits of early detection and diagnosis of
Alzheimers disease.
- Both campaigns should emphasize key reasons for early detection,
highlight the Medicare Annual Wellness Visit as an important opportunity to
discuss any concerns/issues related to cognitive function, and should begin to
explain the diagnostic process. In other words, the campaign should pique
interest AND provide information and next steps for each audience.
- The campaigns should include specific efforts in diverse
communities and populations, including younger-onset individuals, persons with
intellectual disabilities, and racial/ethnic groups at higher risk of
developing Alzheimers.
- The CDC should involve state, county, local public health
departments, and existing aging network partners in the campaigns and encourage
them to launch early detection and diagnosis campaigns of their own.
- Each federal agency involved in the National Plan process should,
by January 2014, identify actions it could take, alone and in partnership with
private entities, to increase and improve detection of cognitive impairment and
diagnosis of Alzheimer's disease.
- These actions should be subject to an interagency review,
prioritized, and implemented by May 2014.
- Gather data on the detection of possible cognitive impairment as
part of the Medicare Annual Wellness Visit.
- The Centers for Medicare and Medicaid Services (CMS) should
gather data on physician practices regarding the detection of possible
cognitive impairment component of the Medicare Annual Wellness Visit.
- Such data should include: (a) the extent to which physicians are
undertaking that component of the Annual Wellness Visit; (b) what tools
physicians are using to detect possible cognitive impairment; (c) the number of
people with a positive detection; and (d) what further steps (including medical
evaluation and diagnosis) are recommended for those with a positive
detection.
- This data collection should be annual and ongoing, but the first
report on the data should be completed by November 2013.
- Clarify the privacy protections under the Health Insurance
Portability and Accountability Act (HIPAA) to ensure that health care providers
can engage in care planning with family members of those diagnosed with
Alzheimers disease or other dementias.
- Within six months, the Department of Health and Human Services
(HHS) should issue regulations and/or guidance clarifying HIPAAs privacy
provisions with respect to communications between health care providers and
family caregivers of those diagnosed with dementia.
- Such regulations/guidance should ensure that health care
providers can engage in care planning with family caregivers without the
presence of the diagnosed individual.
- Following the clarification of HIPAA requirements, the Centers
for Medicare and Medicaid Services (CMS) should develop appropriate billing
procedures for care planning services provided to family caregivers by July
2014.
- Develop a unified curriculum for primary care practitioners to
become more knowledgeable about Alzheimers disease and enhance the skills
necessary to deliver dementia capable care.
- The Health Resources and Services Administration (HRSA) should
develop public/private partnerships with organizations representing physicians,
nurses, allied health professionals, and consumers to develop, no later than
July 2014, an education and training curriculum on Alzheimers disease for
primary care practitioners.
- Such curriculum should include the recognition of risk factors,
including among specific diverse populations, and those with intellectual
disabilities.
- By July 2014, HRSA should develop delivery methods for the new
curriculum, including through webinars and Continuing Medical Education (CME)
sessions, and leverage opportunities for the public partners to deliver the
program as well.
- The new changes in the DSM-V should be included, as well as
specific instruction on the tools to detect cognitive impairment that are
suggested for the Medicare Annual Wellness Visti.
- Evaluate models and demonstrations of payment and care delivery
reform on the quality and cost for the subpopulation of participants with
Alzheimers disease.
- The Center for Medicare and Medicaid Innovation (CMMI) should
evaluate funded payment and delivery reform models to determine separately and
explicitly the impact on quality of care and costs for the subpopulation with
Alzheimers disease.
- In evaluating the impact of the tested models and interventions
on individuals with Alzheimers disease, CMMI should give priority to: (a)
models aimed at reducing preventable hospitalizations, readmissions, emergency
department visits, and length of hospital stays; (b) the state demonstrations
on dual eligibles; (c) models targeting care transitions; (d) medical home and
Independence at Home models; and (e) Accountable Care Organizations.
- Particular attention should be paid in the evaluations to effects
on individuals from diverse communities.
- The evaluations should be ongoing and incorporated into the
normal evaluation component of the models in general.
- CMMI should ensure that all models and demonstrations funded in
the future include effective procedures to identify people with
Alzheimers disease in their samples.
- CMMI should report on its plan to evaluate the Alzheimers
disease subpopulations of its projects, including procedures for identification
of people with Alzheimers in future projects, by September 2013.
- Form a blue ribbon panel of experts on advanced dementia to
develop innovations in clinical care practice and quality, including palliative
care, for people with advanced dementia.
- The Office of the Assistant Secretary for Planning and Evaluation
(ASPE) should appoint members of a blue ribbon panel on advanced dementia.
- Key topics related to quality should be discussed including:
management of infections/antibiotic resistance, feeding and nutrition problems,
falls and injury prevention, transitional care and hospitalizations,
communication and setting goals of care.
- By December 2013, the blue ribbon panel should issue
recommendations on one or more models to improve the care for those with
advanced dementia, including models of palliative care and its integration into
primary care services.
- Such models should include recommendations on eligibility
criteria and financing mechanisms.
- The panel should review the research agenda for advanced dementia
and prioritize areas needed immediate attention. This review should also
determine whether ethical and other concerns about randomization of people with
advanced dementia are creating a major barrier to research and, if so, what
alternative research approaches can be used.
- The panel recommendations should be considered for inclusion as
part of the 2014 National Plan to Address Alzheimers Disease.
- Expand funding and incentives to encourage individuals to pursue
careers in geriatric specialties.
- Congress should increase funding for the interprofessional
geriatrics education and training programs for health professions students,
faculty, practitioners, direct service works, and family caregivers under Title
VII and Title VIII of the Public Health Service Act.
- Congress should pass legislation to provide loan repayment for
those who study geriatrics and gerontology.
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Last updated: 01/15/2013