Colon Cancer Family Registry

Contacts: Refer to website for contacts.

Study Website: http://epi.grants.cancer.gov/CFR/about_colon.html

Number of Enrolled Cancer Patients/Survivors:	9,583 colorectal cancer patients enrolled (plus 18,275 enrolled relatives and 4,244 population-based controls)
Years of Diagnoses of Enrolled Cancer Patients/Survivors:	1997-2007
Approximate Years of Follow-up:	Currently up to 14 years with active and passive follow-up ongoing (5- and 10-year follow-up interviews and do passive follow-up annually via SEER, SSDI, and project newsletters.)
Cancer Sites Represented:	Colon & Rectum
Biological Specimens Collected:	Blood/Blood Fraction Buccal Cells Normal Tissue (formalin-fixed) Germline DNA Formalin Fixed Tumor Tissue
Treatment Outcome Measures:	Physician/Medical Record Reported Death Other (2nd cancers for some study sites for some cases) Patient-Reported Other (2nd cancers-some sites for some cases)
Co-morbidities at Study Entry:	Diabetes Heart Disease
Lifestyle Factors:	Smoking Alcohol Use Diet Physical Activity Body Mass Index Other (family history, NSAID use, hormone therapy, reproductive history, screening history, etc.)
Treatment Data: (As Available)	Surgery Radiation Chemotherapy Hormonal Therapy Typically limited to 1st course of treatment (e.g., radiation vs. chemotherapy, single-drug vs. multiple-drug chemotherapy).
Treatment Data Assessed By:	Electronic Record Chart Abstraction Patient Reported Questionnaire Other: Collected via medical records and pathology reports when consent is provided, SEER (where applicable), and self-report.
Is the study open to collaboration?	Yes (The C-CFR has a long history of collaboration with researchers in the United States and around the world.) Applying for CFR Data and Biospecimens

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