Monday, November 14, 2011 |
7:30 – 8:30 a.m. |
Registration |
8:30 – 8:45 a.m. |
Introduction and Opening Remarks Griffin Rodgers, Janine Clayton, and Ziya Kirkali |
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I. Public Health Importance of Measuring Symptomatic Lower Urinary Tract Dysfunction (LUTD) Moderator: Kevin McVary |
8:45 – 9:00 a.m. |
We Are All Happy, Why Bother? Paul Abrams |
9:00 – 9:15 a.m. |
Public Health Importance of Measuring LUTD Symptoms Mark Litwin |
9:15 – 9:30 a.m. |
Can Intervention for Symptoms Always Provide Patient Goal Achievement? William Lawrence |
9:30 – 9:45 a.m. |
Measurement of PRO – The PROMIS initiative William Riley |
9:45 – 10:15 a.m. |
PRO in the Evaluation of Medical Products for Regulatory Approval Laurie Burke |
10:15 – 10:30 a.m. |
Discussion |
10:30 – 10:45 a.m. |
Break |
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II. Patient-focused Approach to an Invisible Condition Moderator: Lisa Begg |
10:45 – 10:55 a.m. |
What I Expected and Found After Prostatectomy Robert Wedgworth |
10:55 – 11:05 a.m. |
Do Drugs Really Do it for Me? Patient |
11:05 – 11:15 a.m. |
Am I Aged Enough to Develop Urinary Symptoms? Wait; and Pain? Tom Colclasure |
11:15 – 11:25 a.m. |
I Accept Urinating Frequently, but This Pain Is Wearing Me Out Laura Santurri |
11:25 – 11:35 a.m. |
Is it My Destiny to Leak? Patient |
11:35 – 11:45 a.m. |
Incontinence: From beginning to end? Harry "Doug" Swank |
11:45 a.m. – 12:00 p.m. |
Discussion |
12:00 – 1:00 p.m. |
Lunch |
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III. What Is Currently Missing in the Measurement of LUTD Symptoms? Moderator: Gopal Badlani |
1:00 – 1:15 p.m. |
Current Instruments to Measure Symptomatic LUTD for Diagnostic, Statistic, and Outcome Purposes Johannes Vieweg |
1:15 – 1:30 p.m. |
Is the AUA SS Still the Best Instrument for Clinical Research? Claus Roehrborn |
1:30 – 1:45 p.m. |
How Do We Measure Incontinence? Marcus Drake |
1:45 – 2:00 p.m. |
What Domains Are Missing in AUA SS for Clinical Care? Michael Albo |
2:00 – 2:15 p.m. |
Bother/Adaptation/Exacerbation of LUTD Symptoms William Steers |
2:15 – 2:30 p.m. |
Can a Symptom Measurement Tool Tell Us About the Various Contributing Factors to LUTD? John Wei |
2:30 – 2:45 p.m. |
How Is Post-prostatectomy Incontinence Measured? Jerry Blaivas |
2:45 – 3:00 p.m. |
Discussion |
3:00 – 3:15 p.m. |
Break |
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IV. How Are PROs Measured in Other Conditions? Moderator: John Wei |
3:15 – 3:30 p.m. |
How Do We Measure Symptoms and Flares In SLE? Rosalind Ramsey-Goldman |
3:30 – 3:45 p.m. |
What Tools Are Available for Symptom Measurement in IBS? Lin Chang |
3:45 – 4:00 p.m. |
Symptom Measurement in FM/CFS Fred Friedberg |
4:00 – 4:15 p.m. |
UCPPS, Measuring Pain, and Flares Quentin Clemens |
4:15 – 4:30 p.m. |
Discussion |
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V. Phenotypes, Clinical Conditions, and Impact on Measurement Moderator: Michael Albo |
4:30 – 4:45 p.m. |
Healthy Aging. What Is the Impact of LUTD? Tomas Griebling |
4:45 – 5:00 p.m. |
What Did We Learn From MTOPS? Kevin McVary |
5:00 – 5:15 p.m. |
Can Symptoms Be Predictive of Progression and Response to Therapy? Steven Jacobsen |
5:15 – 5:30 p.m. |
Symptomatic LUTD, ED, and Metabolic Syndrome: What Is the Relevance? Aruna Sarma |
5:30 – 5:45 p.m. |
DM and LUTD Symptoms Firouz Daneshgari |
5:45 – 6:00 p.m. |
How to Better Phenotype Patients With Symptomatic LUTD William Steers |
6:00 – 6:15 p.m. |
Discussion |
6:15 p.m. |
Adjournment |
7:30 p.m. |
Dinner |
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Tuesday, November 15, 2011 |
VI. Better Understanding of the Symptomatic LUTD Patient: The Future Moderator: Kevin Weinfurt |
8:30 – 8:45 a.m. |
What Measures Are Needed and for What Purposes? Mathew Barber |
8:45 – 9:00 a.m. |
Should Symptoms of LUTD in Men be Measured Differently in Studies Addressing Modifiable Risk Factors? Elizabeth Platz |
9:00 – 9:15 a.m. |
Experience From Cancer Outcome Measures Claire Snyder |
9:15 – 9:30 a.m. |
The PROMIS Experience Kevin Weinfurt |
9:30 – 9:45 a.m. |
Emerging Technologies in the Measurement of PRO Jammie Griffith |
9:45 – 10:00 a.m. |
How Best to Validate a Symptom Measurement Tool for LUTD? Stephen Van Den Eeden |
10:00 – 10:15 a.m. |
New and Innovative Phenotyping Methods Kevin McVary |
10:15 – 10:30 a.m. |
Barriers to Moving Forward John Wei |
10:30 – 10:45 a.m. |
Discussion |
10:45 – 11:00 a.m. |
Break |
11:00 a.m. – 12:00 p.m. |
Break-out Sessions |
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- Leaders: Marcus Drake and Johannes Vieweg
What Is Missing in Current Measurement Tools for Male LUTD?
- Leaders: Michael Albo and Lisa Begg
What Is Missing in Current Measurement Tools for Female LUTD?
- Leaders: Kevin Weinfurt and Stephen Van Den Eeden
How to Validate the New Measurement Instrument
- Leaders: John Wei and Kevin McVary
How to Phenotype the Patients with Symptomatic LUTD
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12:00 – 12:40 p.m. |
Reports of the Breakout Session Leaders |
12:40 – 1:00 p.m. |
Wrap-up Robert Star |
1:00 p.m. |
Adjournment |