Pediatric Palliative Care and Hospice
Children’s Project on Palliative/Hospice Services (ChiPPS), NHPCO’s pediatric leadership council, has been committed to making the best-known practices in pediatric palliative and hospice care more widely available to care providers and increasing the availability of state-of-the-art services to families since 1998. ChiPPS’ mission is to build capacity by identifying, developing and disseminating practical strategies that advance care for children and families coping with life-threatening conditions, dying and bereavement.
Donate online to support pediatric palliative care and hospice.
Communications
Education
Outreach
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Caring Connections - NHPCO’s consumer engagement program offers resources on planning ahead, caregiving, living with an illness and grieving a loss. The website also contains educational brochures and information in English and Spanish language for parents of seriously ill children (see “Resources”).
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Partnering for Children: Pediatric Outreach Guide - a national awareness campaign to help get the word out about compassionate, family-centered healthcare for children with life-threatening conditions.
Policy
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Pediatric Concurrent Care - Continuum Briefing (January 2013) - The Mary J. Labyak Institute for Innovation at the National Center for Care at the End of Life is please to offer a pediatric-focused Continuum Briefing which provides:
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Definition of pediatric palliative and/or hospice care;
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An overview of Concurrent Care for Children provision in the Affordable Care Act (ACA);
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Identification of the barriers for pediatric palliative care that are not addressed even with the provision for concurrent care in ACA;
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Key strategic opportunities for hospice and palliative care providers to expand the care continuum for children living with life-limiting or life-threatening conditions and their families.
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Concurrent Care for Children Requirement: Implementation Toolkit (Section 2302 of the Patient Protection and Affordable Care Act)
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Questions and Answers on Concurrent Care for Children from CMS
Quality
Resources from NHPCO’s Marketplace
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Visit Marketplace - Search for books and technical materials for or about pediatrics/children by typing: "For children," "Childhood," or "Pediatrics" in the search area.
Questions: Email pediatrics@nhpco.org
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