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ABOUT IDF
ABOUT PRIMARY
IMMUNODEFICIENCIESPATIENTS
& FAMILIES- Patient Insurance Center
- Bill of Rights for Patients with PIDD
- Patient Education Programs
- Peer Support
- Health Insurance FAQ’s
- Scholarship Programs
- USIDNET Patients
- IDF SCID Initiative
- IDF NEMO Initiative
- Clinical Trial Opportunities
- Get Connected with IDF!
- Locate a Physician
- Ask IDF
- IDF eHealthRecord
- IDF Kids Connection
- Volunteer for IDF
HEALTHCARE
PROFESSIONALS- IDF Medical Advisory Committee
- IDF Nurse Advisory Committee
- Consulting Immunologist Program
- IDF & USIDNET LeBien Visiting Professor Program
- Continuing Education Course for Nurses
- Video Series For Nurses
- USIDNET Healthcare
- Health Insurance “How to Appeal” Tips
- Links to Professional Organization
- Healthcare Professional Contact
TREATMENT
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Locate a Physician: Contact IDF to find a physician in your area that is an expert on PIDD.
Peer Support: Speak with someone who understands! Connecting people and patients who share similar relationships to PIDD.
NEW Patient Insurance Center: Resources and tools provided to help you tackle all of your insurance challenges.
Local Patient Meetings: Education programs featuring local experts and networking opportunities.
Operation Outreach: Patient education meetings designed to strengthen underserved areas.
IDF Retreats: Weekend events for all ages that feature medical and life management sessions.
IDF Youth Programs: Designed for children diagnosed with a PIDD or have a family member with this condition.
IDF Teen Escape: Acquaint teens diagnosed with a PIDD with others like themselves.
IDF National Conference: The world's largest gathering of families affected by PIDD.
IDF Consulting Immunologist Program: A free service for physicians which provides consults with expert clinical immunologists on issues of diagnosis, treatment and disease management.
LeBien Visiting Professor Program: Promote improved knowledge by providing your faculty with a Visiting Professor with expertise in primary immunodeficiency disease.
Continuing Education Course for Nurses: A free, 5-hour, accredited course for nurses, that provides an update on primary immunodeficiencies, immunoglobulin therapies and the nurse’s role with these therapies.
Medical Advisory Committee Comprised of prominent immunologists to support the mission of the IDF.
Nurse Advisory Committee: Comprised of exceptional nurses to support the mission of the IDF.
![](https://webarchive.library.unt.edu/web/20121017112147im_/http://primaryimmune.org/wp-content/uploads/2011/06/publication-tab-image.png)
Publications: The Immune Deficiency Foundation produces a variety of educational materials for patients and health professionals. All publications are free of charge.
In The News
Information
![](https://webarchive.library.unt.edu/web/20121017112147im_/http://primaryimmune.org/wp-content/uploads/2011/06/volunteer-info1.png)
Volunteer
Interested in working with IDF? Donate your time and talents, and join IDF’s nationwide network of dedicated volunteers.
Interested in working with IDF? Donate your time and talents, and join IDF’s nationwide network of dedicated volunteers.
![](https://webarchive.library.unt.edu/web/20121017112147im_/http://primaryimmune.org/wp-content/uploads/2011/05/calendar-thumb.png)
Calendar of Events
Visit the IDF Calendar of Events for more information about IDF programs and meetings, both locally and nationally.
Visit the IDF Calendar of Events for more information about IDF programs and meetings, both locally and nationally.
![](https://webarchive.library.unt.edu/web/20121017112147im_/http://primaryimmune.org/wp-content/uploads/2011/05/resources-thumb.png)
IDF Resources
A compilation of website links and contact information for resources that can be helpful to individuals and families living with PIDD.
A compilation of website links and contact information for resources that can be helpful to individuals and families living with PIDD.
![](https://webarchive.library.unt.edu/web/20121017112147im_/http://primaryimmune.org/wp-content/uploads/2011/05/survey-thumb.png)
IDF Survey Research Center
The Center provides timely data and analysis on issues of importance to the primary immunodeficiency community.
The Center provides timely data and analysis on issues of importance to the primary immunodeficiency community.
![](https://webarchive.library.unt.edu/web/20121017112147im_/http://primaryimmune.org/wp-content/uploads/2011/05/usidnet-thumb.png)
USIDNET
A research consortium established to advance scientific research in the field of primary immunodeficiencies.
A research consortium established to advance scientific research in the field of primary immunodeficiencies.