Promoting Safe and Effective Genetic Testing in the United States
Appendix 1
Individuals and Organizations Who Provided Comments to the Task Force
The following individuals and the organizations they either represent or which they listed for identification purposes responded to the Task Force's request for comments on its Interim Principles (distributed on request to the task force Web site at that time) and/or on its Proposed Recommendations (Fed. Reg. 1997; 62:4539-4547). The list includes people who testified at the Task Force's public hearing on its Interim Principles on April 30, 1996, and who submitted written comments on the Interim Principles, the Proposed Recommendations, or both.
Joann Adair, R.N.
Commonwealth of Pennsylvania Department of Health
Nilofer Nina Ahmad, Ph.D.
Wills Eye Hospital
Leslie Alexandre, Dr. P.H.
OncorMed
William Audeh, M.D.
Cedars-Sinai Medical Center
Robert C. Baumiller
Xavier University
Deborah Blacker, M.D., Sc.D.
American Psychiatric Association
Ann Boldt, M.S., C.G.C.
National Society of Genetic Counselors
David T. Bonk
Bristol-Myers Squibb Company
Barbara A. Brenner
Breast Cancer Action
M. Desmond Burke
American Society of Clinical Pathologists
Peter H. Byers, M.D.
American Board of Medical Genetics
Michael Camilleri, M.D.
C. Christopher Hook, M.D.
Mayo Foundation
Robert C. Cefalo, M.D., Ph.D.
American Board of Obstetrics and Gynecology
Ellen Wright Clayton
Vanderbilt University
Jordan J. Cohen, M.D.
Association of American Medical Colleges
Anne Marie Comeau, Ph.D.
New England Regional Newborn Screening Program
Celeste M. Condit
The University of Georgia
Donald R. Coustan, M.D.
J.E. Ferguson
Society of Perinatal Obstetricians
Jo Linder-Crow, Ph.D.
American Psychological Association
Shelly Cummings
University of Chicago Medical Center
George C. Cunningham, M.D., M.P.H.
State of California - Health and Welfare Agency
Mary E. Davidson
Joan Burns
Alliance of Genetic Support Groups
Barbara A. DeBuono, M.D., M.P.H.
State of New York, Dept. of Health
Laurence M. Demers, Ph.D.
American Association for Clinical Chemistry, Inc.
Rochelle Diamond
National Organization of Gay & Lesbian Scientists and Technical Professionals, Inc.
Joyce Dolcourt
Mountain States Regional Genetic Services Network
Louis J. Elsas, II, M.D.
Council of Regional Network for Genetic Services
Ray Erickson
Consumer
Carolyn D. Farrell, M.S., C.N.P., C.G.C.
Roswell Park Cancer Institute
James E. Ferguson, II, M.D.
Member of the Board, Society of Perinatal Obstetricians
Donna G. B. Getz
Consumer
Lynn Godmilow
University of Pennsylvania School of Medicine
Alan Goldhammer, Ph.D.
Biotechnology Industry Organization
Julian Gordon
Abbott Labs
Margaret L. Gulley, M.D.
Association for Molecular Pathology
Barbara Handelin, Ph.D.
Handelin Associates
Janet E. Haskell
Myriad Genetic Laboratories, Inc.
P. Hathaway, M.D.
M. C. Sullivan, R.N., J. D.
R. Flanigan, Ph.D.
The Midwest Bioethics Center
Elliott D. Hillback
Genzyme
Joseph Q. Jarvis, M.D
John P. Johnson, M.D.
Mountain State Regional Genetics Services Network
Haig H. Kazazian, M.D.
University of Pennsylvania
Charles Kull
Consumer
Lisa S. Lehmann, M.D.
Dana-Farber Cancer Institute
Bill Letson
State of Wyoming Department of Health
Sue Levi-Pearl
National Tourette Association
Allen Lichter, M.D.
American Society of Clinical Oncology
Casey Maddren
Consumer
Mary Mahowald
University of Chicago
Mamie Mals
Consumer
Edward R.B. McCabe, M.D., Ph.D.
University of California, Los Angeles
Robert W. McKenna, M.D.
American Society of Clinical Pathologists
Roberta B. Meyer
American Council of Life Insurance
Richard H. Miller, Jr.
Consumer
Ilana Mittman, M.S., C.G.C.
Sinai Hospital of Baltimore
Kathi Mooney, R.N., Ph.D.
Oncology Nursing Society
Ralph Nitkin
NIH-DOE National Coalition for Health Professional Education in Genetics
Vicki Park, Ph.D.
University of Tennessee, Memphis
Kenneth A. Pass, Ph.D.
State of New York Department of Health
Frances A. Pitlick, Ph.D.
Biochemist
Beth A. Pletcher, M.D.
Franklin Desposito, M.D.
American Academy of Pediatrics
George Poste
Tadataka Yamada, M.D.
SmithKline Beecham Pharmaceuticals
Reed Edwin Pyeritz, M.D., Ph.D.
American College of Medical Genetics
Cathie S. Ragovin, M.D.
Massachusetts Breast Cancer Coalition
Pamela J. Reidy
Association of Women's Health
Obstetric and Neonatal Nurses
Margaret "Wendy" Ricker, Ed.D.
Consumer
David Rimoin, M.D., Ph.D.
American College of Medical Genetics
Allen Roses, M.D.
Duke University Medical Center
Mark A. Rothstein
University of Houston Law Center
Peter T. Rowley, M.D.
University of Rochester Medical Center
Lester B. Salans
Sandoz Pharmaceuticals Corporation
Jerry Schenken, M.D.
The Pathology Center
P. John Seward, M.D.
American Medical Association
Larry J. Shapiro, M.D.
The American Society of Human Genetics
Karen Snow, Ph.D.
Mayo Clinic
David A. Sobel, Ph.D.
Confidentiality Matters
Peter Somani, M.D., Ph.D.
Ohio Department of Health
Kathryn Sudduth, C.L.Sp.(C.G.)
Association of Cytogenetic Technologists
Herbert S. Waxman, M.D., F.A.C.P.
American College of Physicians
Joan O. Weiss, M.S.W.
Alliance of Genetic Support Groups
Benjamin S. Wilfond, M.D.
The University of Arizona Health Sciences Center
Philip R. Wyatt, M.D., Ph.D.
North York General Hospital - Genetics
Raymond C. Zastrow, M.D.
College of American Pathologists
Stanley Zinberg, M.D., M.S., F.A.C.O.G.
The American College of Obstetricians & Gynecologists
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Last Reviewed: March 2006