2006 National DNA Day Online Chatroom Transcript
This is just one question from an archive of the National DNA Day Moderated Chat held in April 2006. The NHGRI Director and many genomics experts from across NHGRI took questions from students, teachers and the general public on topics ranging from basic genomic research, to the genetic basis of disease, to ethical questions about genetic privacy.
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who should have have the rights of my genome?
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Laura Lyman Rodriguez, Ph.D.: Your genome, like your finger prints, your retina scan, or your hospital test results, is intrinsicly part of who you are and you should always retain some "rights" regarding who else may have access to the information that it may contain. Much like other types of information, there may be many cases where access to your genome may be reasonable, and in fact make a lot of sense - for instance, your doctor. Important questions to consider as you think about how YOU feel about controling access to YOUR individual genomic information are what limits you would like imposed on any access, and how you might feel about the future potential information that is included in our DNA that we simply don't understand today. |
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