2009 National DNA Day Online Chatroom Transcript

This is just one question from an archive of the National DNA Day Moderated Chat held in April 2009. The NHGRI Director and many genomics experts from across NHGRI took questions from students, teachers and the general public on topics ranging from basic genomic research, to the genetic basis of disease, to ethical questions about genetic privacy.

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What are the ethical issues I have to consider in studying genetics in children?
     Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.: I developing genetics, health education and community involvement programs and resources, and translate genetic and genomic information for the public. The ethical issues you have to consider in studying genetics in children depend on the particular focus of your research. For example, if you are studying the genetics of metabolic diseases in children and treatment based on a child's genetic make-up, you would need to get parental permission to enroll the children in your study. You would also need to consider the safety of a research intervention.
SMV Center for Biotechnology, Nagpur (teacher)

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