Appendix
D
Human Genome
Project and Genetics on the WWW
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- The World Wide Web offers the easiest path to information about the
Human Genome Project and related genetics topics. Some useful sites to
visit are included in the list below.
Human Genome Project
DOE Human Genome Program
- http://www.science.doe.gov/
Devoted to the DOE component of the U.S. Human Genome Project and to the DOE Microbial Genome Program. Links to many other sites.
- http://www.ornl.gov/hgmis
Comprehensive site covering topics related to the U.S. and worldwide Human Genome Projects. Useful for updating scientists and providing educational material for nonscientists, in support of DOE's commitment to public education. Developed and maintained for DOE by the Human Genome Management Information System (HGMIS) at Oak Ridge National Laboratory.
- http://www.nhgri.nih.gov
Site of the NIH sector of the U.S. Human Genome Project.
Human Genome News
- http://www.ornl.gov/hgmis/publicat/publications.shtml
Quarterly newsletter reporting on the worldwide Human Genome Project. Print copy available from HGMIS.
- Online versions in preparation; hardcopies available from 719/531-5550
- · "Genes, Environment, and Human Behavior," tentative title,
in preparation
· "Mapping and Sequencing the Human Genome: Science, Ethics, and Public Policy" (1992)
- · "The Human Genome Project: Biology, Computers, and Privacy"
(1996)
· "The Puzzle of Inheritance: Genetics and the Methods of Science"
(1997)
- http://www.ornl.gov/hgmis/publicat/publications.shtml#primer
Explains the science behind the genome research. Print copy available from HGMIS.
- http://www.ornl.gov/hgmis/tko
Booklet reviewing DOE's role, history, and achievements in the Human Genome Project and introducing the science and other aspects of the project. Print copy available from HGMIS.
HGMIS Gateways Web page
- http://www.ornl.gov/hgmis/links.shtml
Choose "Ethical, Legal, and Social Issues."
- http://www.med.upenn.edu/bioethic/
Full-text articles about such ethical issues as human cloning; includes a primer on bioethics.
- http://einshac.org/
Coverage of genetic issues affecting the courts.
- http://www.lbl.gov/Education/ELSI/ELSI.html
Teaching modules designed to stimulate discussion on implications of scientific research.
- http://www.biol.tsukuba.ac.jp/~macer/index.html
Site includes newsletter summarizing literature in bioethics and biotechnology.
- http://www.ornl.gov/hgmis/elsi/elsi.html
Model legislation written with support of the DOE Human Genome Program.
- http://phoenix.mcet.edu/humangenome/index.html
ELSI issues for high school students.
- http://www.nih.gov/nbac/nbac.htm
The bioethics committee offers advice to the National Science and Technology Council and others on bioethical issues arising from research related to human biology and behavior.
- http://www.ncgr.org
Comprehensive Genetics and Public Issues page; includes congressional bills related to genetic privacy.
- http://www.genesage.com/professionals/geneletter/index.eplgenetalk.html
Bimonthly newsletter to inform consumers and professionals about advances in genetics and encourage discussion about emerging policy dilemmas.
- http://ehrweb.aaas.org/ehr/books/index.html
Booklet written in simple English, describing the Human Genome Project; the science behind it; and how ethical, legal, and social issues raised by the project may affect people's everyday lives.
Many of the following sites contain links to both educational and technical
material.
HGMIS Community Education and Outreach Gateways Web Page
Access Excellence- http://outcast.gene.com/ae/index.html
Extensive genetic and biotechnology resources for teachers and nonscientists.
- http://www.bio.com
Comprehensive directory of biotechnology sites on the Internet.
- http://biotech.chem.indiana.edu
An interactive educational resource and biotech reference tool; includes a dictionary of 6000 life science terms.
Biotechnology Information Center, USDA National Agricultural Library
- http://www.nal.usda.gov/bic
Comprehensive agricultural biotechnology resource; includes a bibliography on patenting biotechnology products and processes.
- http://www.ncgr.org/microbe
List of microbial genomes being sequenced, research groups, genome sizes, and facts about selected organisms. Links to related sites.
- http://genetics.faseb.org/genetics/gsa/careers/bro-menu.htm
Online booklet from the Genetics Society of America, including several profiles of geneticists. See also career sections of sites specified above, such as Access Excellence.
- http://www.carosci.com/Tips.htm
Teaching materials for all levels. Includes mini-lessons on selected scientific topics, two online magazines, What's New, software, catalogs, and publications.
- http://www.cellbio.com/
Links to electronic publications, current research, educational and career resources, and more.
- http://www.ornl.gov/hgmis/genetics.shtml
Includes an organism index linking to other pertinent databases, information on the U.S. and international Human Genome Projects, and links to research sites.
- http://www.cos.com/
Links to Medline, U.S. Patent Citation Database, Commerce Business Daily, The Federal Register, and other resources.
- http://www.cbs.dtu.dk/databases/DOGS/index.php
Lists numerous organisms with genome sizes, scientific and common names, classifications, and references.
- http://www.er.doe.gov/production/ober/bioinfo_center.html
- http://www.kumc.edu/instruction/medicine/genetics
/homepage.html
Educational information on human genetics, career resources.
- http://www.ornl.gov/hgmis/glossary/
Glossary of terms related to genetics.
- http://www.phrma.org/genomics/index.html
Many links. Website a joint project of the Pharmaceutical Research and Manufacturers of America and the American Institute of Biological Sciences; includes Genomics Today, a daily update on the latest news in the field.
- http://vflylab.calstatela.edu/hgp
Designed to educate high school students and their families about genetics and the Human Genome Project. Links to other projects.
- http://www.hhmi.org
Home page of major U.S. philanthropic organization that supports research in genetics, cell biology, immunology, structural biology, and neuroscience. Excellent introductory information on these topics.
- http://www.tigr.org/tdb/mdb/mdb.html
Lists completed and in-progress microbial genomes, with funding sources.
- http://esg-www.mit.edu:8001/esgbio/7001main.html
All the basics.
- http://www-sci.lib.uci.edu
More than 2000 Web references, including Frank Potter's Science Gems and Martindale's Health Science Guide. For teachers at all levels.
- http://ccgb.ahc.umn.edu/~mwd/courses.html
Links to Web tutorials in biology, genetics, and more.
- http://www.welch.jhu.edu
Links to many Internet biomedical resources, dictionaries, encyclopedias, government sites, libraries, and more, from the Johns Hopkins University Welch Library.
- http://whyfiles.org/
Illustrated explanations of the science behind the news.
Biochemistry Online
- http://biochem.arach-net.com
Essays, courses, 3-D images of biomolecules, modeling, software.
- http://falcon.cc.ukans.edu/~jbrown/bugs.html
Microbiology information and a nice collection of images of biological molecules.
- http://www.cellsalive.com
Images (some moving) of different types of cells.
- http://www3.ncbi.nlm.nih.gov/Entrez/Structure/cn3d.html
3-D molecular structure viewer allowing the user to visualize and rotate structure data entries from Entrez. Highly technical, for researchers.
- http://www.pathology.washington.edu/galleries/Cytogallery/
Photos (karyotypes) of normal and abnormal chromosomes.
- http://darwin.cshl.org/index.html
- Animated images of PCR and Southern Blotting techniques.
- Click on particular areas of chromosomes and find genes.
- http://www.cc.ukans.edu/~micro/picts.html
3-D structures of proteins and nucleic acids obtained from Brookhaven National Laboratory Protein Database and others.
HGMIS Journals Gateways Web page
- http://www.ornl.gov/hgmis/links.shtml
Choose "Journals, Books, Periodicals."
- http://biochem.arach-net.com/beasley/journals.html
Comprehensive list.
- http://www.nature.com
Abstracts of articles, full text of letters and editorials.
- http://www.sciencemag.org
Abstracts and some full-text articles.
- http://www.sciencemag.org/science/content/vol274/issue5287
Full text includes a "clickable" gene map.
- http://www.sciencenews.org
Online version of weekly popular science magazine with full text of selected articles.
Blazing a Genetic Trail
- http://www.hhmi.org/GeneticTrail
Illustrated booklet from the Howard Hughes Medical Institute on hunting for disease genes.
- http://www.medhelp.org
Support groups for people with genetic diseases and their families.
- http://bioinformatics.weizmann.ac.il/cards
A database of more than 6000 genes; describes their functions, products, and biomedical applications.
- http://www.mc.vanderbilt.edu/gcrc/gene/index.html
- Web course covering the basics, with links to other sites.
- http://www.ncbi.nlm.nih.gov/Baxevani/CLONE/index.html
Links to OMIM.
- http://www.nih.gov/od/orda
Includes a database of human gene therapy protocols.
- http://www.ncbi.nlm.nih.gov/Omim
A comprehensive, authoritative, and up-to-date human gene and genetic disorder catalog that supports medical genetics and the Human Genome Project.
- http://www.genome.gov/10001745
Principles and recommendations by a joint NIH-DOE Human Genome Project group that examined the development and provision of gene tests in the United States.
- http://www.gene.com/ae/AE/AEPC/NIH/index.html
Illustrated brochure from the National Cancer Institute.
- EurekAlert! http://www.eurekalert.org
InScight: http://www.apnet.com/inscight
SciWeb: http://www.sciweb.com/news.html
Short summaries of major stories, some with links to related articles
in other sources.
- Biweekly electronic journal featuring major science stories, profiles,
book reviews, and other items of interest.
- http://www.sciencedaily.com
Headline stories, articles, and links to news services, newspapers, magazines, broadcast sources, journals, and organizations. Also offers weekly bulletins for updates by e-mail.
- http://www.scienceguide.com
Daily news and information service and free science news e-mailer. Also contains directories of newsgroups, grant and funding resources, employment, and online journals.
- http://sciencenow.sciencemag.org/
Daily online news service from Science magazine offers articles on major science news.
Biosciences Index to WWW Virtual Library
Metacrawler "Search the Net"- http://metro.turnpike.net/adorn/search.html
Comprehensive list of search tools, libraries, world fact books, and other useful information.
- http://www.search.com
Prepared August 1997
by
Human Genome Management
Information
System
Oak Ridge National
Laboratory
1060 Commerce Park, MS
6480
Oak Ridge, TN
37830
423/576-6669, caseydk@ornl.gov