The mission of the foundation is to increase education and awareness of amyloidosis within the community leading to earlier diagnosis and improved treatment.
Our vision is to be a leading organization working to care for and cure patients with amyloidosis.
Amyloidosis is a group of diseases in which one or more organ systems in the body accumulate deposits of abnormal proteins known as amyloid. The name “amyloidosis” was first used more than 150 years ago, but cases were described over 300 years ago. However, only within the past 25 years have physicians understood the specific make-up and structure of amyloid proteins. Although amyloidosis is not cancer, it is very serious. It is disabling or life threatening. However, growing awareness of the condition seems to be leading to substantial new research and treatment alternatives. Learn more about amyloidosis.