Online Bioethics Resources
- National Human Genome Research Institute (NHGRI)
- National Institutes of Health (NIH)
- U.S. Department of Health and Human Services (DHHS)
- U.S. Department of Energy (DOE)
- Other Resources
National Human Genome Research Institute (NHGRI)
- Ethical, Legal and Social Implications Program
- Ethical, Legal and Social Implications Program Reports
- Social and Behavioral Research Branch
- Issues in Genetics
National Institutes of Health (NIH)
- Department of Clinical Bioethics [bioethics.nih.gov]
- Bioethics Consultation Service [bioethics.nih.gov]
- Genetics and Social Science
- Office for Human Research Protections (OHRP) [hhs.gov]
- Office of Human Subjects Research [ohsr.od.nih.gov]
- Bioethics Resources on the Web [nih.gov]
- Bioethics Information Resources [nlm.nih.gov]
- NIEHS Environmental Genome Project ELSI Homepage [niehs.nih.gov]
U.S. Department of Health and Human Services (DHHS)
- Office of Research Integrity [ori.hhs.gov]
- Secretary's Advisory Committee on Genetics, Health and Society [oba.od.nih.gov]
U.S. Department of Energy (DOE)
- Ethical, Legal and Social Issues [ornl.gov]
- Genetics, Privacy and Legislation [ornl.gov]
- Minorities, Race and Genomics [ornl.gov]
- Gene Testing [ornl.gov]
- Gene Therapy [ornl.gov]
- Behavioral Genetics [ornl.gov]
- Genetically Modified Foods and Organisms [ornl.gov]
- Genetics and Patenting [ornl.gov]
- DNA Forensics [ornl.gov]
- Genetics in the Courtroom [ornl.gov]
- Cloning [ornl.gov]
- Ethical, Legal, and Social Issues Research [ornl.gov]
Other Resources
- American Academy of Pediatrics: Ethical Issues With Genetic Testing in Pediatrics
pediatrics.aappublications.org/cgi/content/full/107/6/1451
Recommendations on newborn screening and genetic testing in children
- bioethics.net
www.bioethics.net/genetics/genetics.php
Links to articles on bioethics and genetics
- Bioethics Resources on the Web
bioethics.od.nih.gov
Links to bioethics resources
- CDC Public Health Genomics
http://www.cdc.gov/genomics/
Publications: Ethical, legal, and social implications
- The Council for Responsible Genetics
www.councilforresponsiblegenetics.org/
Information on the social, ethical and environmental implications of genetic technologies
- DNA Patent Database
dnapatents.georgetown.edu/
Searchable database of U.S. DNA-based patents issued by the USPTO
- Ethical, Legal & Social Issues
www.ornl.gov/sci/techresources/Human_Genome/elsi/elsi.shtml and
www.genome.gov/10001618
Information, articles and links on a wide range of issues
- Ethics in Medicine
depts.washington.edu/bioethx/
An electronic resource at the University of Washington School of Medicine
- The Ethics of Synthetic Biology and Emerging Technologies
www.genome.gov/27542921
A report to the Presidential Commission on the Study for Bioethical Issues on synthetic biology with an accompanying press release and FAQ.
- Genetics & Ethics
genethics.ca
Information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology
- Genetics and Public Policy Center
www.dnapolicy.org
Information on genetic technologies and genetic policies for the public, media and policymakers
- Genome Technology and Reproduction: Values and Public Policy and The Communities of Color & Genetics Policy Project
www.sph.umich.edu/genpolicy/
Two subprojects combined to form a five year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology.
- Georgetown University: National Information Resource on Ethics & Human Genetics
bioethics.georgetown.edu/nirehg/
Search engine for literature on specific issues.
- The Hastings Center
www.thehastingscenter.org
The Hastings Center is an independent, nonpartisan and nonprofit bioethics research institute founded in 1969. The Center's mission is to address fundamental ethical issues in the areas of health, medicine, and the environment as they affect individuals, communities, and societies.
- HumGen International - Database
www.humgen.org/int/
Access to a comprehensive international database on the legal, social and ethical aspects of human genetics
- International Bioethics Organizations Database
bioethics.georgetown.edu/databases/organizations/index.html
Part of the NIREHG, a database of bioethics organizations that have a focus on bioethics or an area related to bioethics.
- National Information Resource on Ethics & Human Genetics, Kennedy Institute of Ethics
kennedyinstitute.georgetown.edu/
The NIREHG, funded by the NHGRI and National Institutes of Health, supports information services - for example, bibliographic databases searchable via the Internet, the full text of online annotated bibliographies, and print publications - on topics related to ethics and human genetics
- National Workrights Institute
www.workrights.org
A non-profit organization that works to protect the rights of employees in the workplace, including genetic testing of employees.
- NCSL - Genetics Overview
www.ncsl.org/default.aspx?tabid=14524
Status of legislative actions and acess to policy briefs on genetic issues of concern to state legislators
- The Presidential Commission for the Study of Bioethical Issues
www.bioethics.gov/
Information on current bioethical issues
- Scope Note Series (Kennedy Institute of Ethics/ Georgetown University)
bioethics.georgetown.edu/publications/scopenotes/
Information on various aspects of genetics and ethics
- THOMAS Legislative Information on the Internet
thomas.loc.gov/
Searchable database of U.S. legislation
- Your Genes Your Choices
ehrweb.aaas.org/ehr/books/index.html
Describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project
Last Updated: January 31, 2012