IETF empowers individuals to regain control of their lives, by providing educational information, treatment options and coping skills.
Awareness.
IETF actively advocates for greater ET awareness and education at every level—from health care providers to government officials.
Research.
IETF funds scientific research to find more effective treatments and a cure for ET.
Support.
IETF has support groups across the globe to provide inspiration and fellowship among those living with ET.
A single voice is seldom heard, but a thousand voices shake the world.
Thank you to everyone who established memorials and contributed funds in honor
of someone special.
(Donors are listed in italics.)
September 23, 2011 to March 31, 2012 Please consider a gift in honor of or in memory of someone you know.
What is Essential Tremor? Also known as familial tremor, benign essential tremor or hereditary tremor, essential tremor (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs or trunk. It is often confused with Parkinson’s disease and dystonia. Because of stereotypes and a lack of awareness, many people with ET never seek medical care though most would benefit from treatment. Learn more about ET.
The IETF Mission The IETF funds research to find the cause of essential tremor (ET) that leads to treatments and a cure, increases awareness, and provides educational materials, tools, and support for healthcare providers, the public, and those affected by ET. Learn more about the IETF.
Tulips for Tremor Research Fundraiser Kicks Off Only a few effective prescription medications are available to treat ET. Research funds are needed to find the cause of ET so better ET medications, treatment, diagnostic tools, and a cure can be developed. This year, the IETF has set a fundraising goal of $250,000 to fund more research. Learn more.
Essential Tremor vs. Parkinson's Disease: How Do They Differ? Members of the IETF Medical Advisory Board created a simple reference guide that lists basic distinctions between ET and PD signs and symptoms. Visit https://www.essentialtremor.org/Free-ET-Publications to download this guide and other free materials.
Behind-the-scenes: Making the Essential Tremor Video by the IETF A brief video of still images shot in studio and on location of cast and crew for the essential tremor awareness video produced by the IETF. A teaser of what's to come this fall - the final video.
Medical History Bracelet The IETF announces the CARE Medical History Bracelet, an easy-to-use electronic medical bracelet. Created by GC Publishers, this device can be loaded and viewed from any computer, MAC or PC. Filling out the clipboard in the doctor’s office can be challenging, especially for people with essential tremor. A patient with ET (or a caregiver/family member) can create a personal health record using the CARE Medical History Bracelet. This record can then be printed out or viewed by healthcare providers and emergency personnel. www.essentialtremor.org/medical-history-bracelet
March is National Essential Tremor Awareness Month National Essential Tremor Awareness Month provides you and the IETF with a key platform to educate the public about the condition, as well as raise much needed research funds. While 10 million people in the United States have essential tremor, the public still has very little awareness of ET. Learn how YOU can help the IETF to raise ET awareness and raise funds for research initiatives and education programs. http://www.essentialtremor.org/National-Essential-Tremor-Awareness-Month
The Symbology of the IETF Logo
The centerpiece of the IETF logo is the Archimedes Spiral, which - when drawn by a patient - is used as a diagnostic tool for ET.
Learn more. Information is powerful in helping you to understand and accept ET as a part of your life. To learn more about ET and the IETF, request a FREE information packet and sign-up for Tremor Gram, the IETF's monthly eletronic newsletter.
Join Us.
Become a memberof the IETF and receive The Scoop on Tremor - the IETF's member research newsletter - and Tremor Talk - the member magazine. Find coping tips to deal with the challenges of everyday life or learn about medications commonly prescribed to treat ET.
Tremor Gram Sign up for the free monthly email newsletter Tremor Gram featuring brief articles on tips for living with ET, current news, and announcements. Read past newsletters in the archive.
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