MyCare: Robyn M. in Baltimore, MD
Featuring people like Robyn, who don't have to worry about lifetime limits on their insurance coverage, MyCare is an initiative to educate Americans about new programs, benefits and rights under the health care law.
Robyn-Care: Ending Lifetime Limits on Insurance Coverage
Robyn M: I’m healthy, I have great health insurance through my job. Never really thought that this bill, this law, would really affect me quite as much. And then I got pregnant with Jax. Jax is a twin.
He and his brother were born in August.
In my second trimester I found out that Jax was diagnosed with Trisomy 22, which is a genetic disorder called “Cat Eye Syndrome."And along with that, along with several other possibilities, he had a heart defect.
They were born at 36 weeks with a C-section, and Jax immediately went to the NICU, and he spent three weeks there.
In the three weeks time we found out a lot of things weren’t going to be something we’d have to worry about that was part of this genetic disorder, but the problems with his heart were more severe than they thought. His heart is actually on the wrong side of his body. His intestines are backwards.
He may have vision problems. He might have cognitive problems, but the heart was the most concerning thing at that time.
After 3 weeks they sent him home, to grow and develop so he could be a little bit stronger for his surgery that he would need. They sent home a fairly listless kind of blue baby. We took him to a lot of doctors appointments. It was very stressful.
We had to make sure he wouldn’t cry too much or his heart would stop. We’d have to call 9-1-1.
Secretary Sebelius: Oh my.
Robin M: And we have his twin and two year old sister as well. So it was a very stressful time.
In November we took him for his surgery. He responded immediately – He came out a pink baby. He moved a lot – it was an amazing difference.
The first day in the NICU was over $150,000. If he in 5 months used up the life-time limit for him, my family would be in really dire straits.
He’s going to have to have follow-up visits, potentially follow-up surgeries. We would move mountains to pay for healthcare for this child. We’re very glad not to have to.
NOTE: The transcript for this program may have been compiled from uncorrected Closed Captioning.
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Open for Questions with HHS and WebMD
Wednesday, August 1, 2012
Secretary Sebelius and WebMD held a live online discussion on women's preventive services.
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