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RLS Foundation

RLS Foundation
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  1. ***WISCONSIN SUPPORT GROUP MEETING NEXT WEEK***

    THE EAU CLAIRE AREA RESTLESS LEGS SUPPORT GROUP

    Our support group will meet at 7 pm Tuesday, November 6 at Sacred Heart Hospital, Room 15 in Eau Claire.

    The speaker will be nutritionist Susan Kasik-Miller. She will address the relationship of food and RLS onsets. We all know that certain foods, caffeine being the most prominent, can make the disorder worse.

    Please bring a friend and share meeting with others in the Eau Claire, WI area.

    Thanks.
    Jim Alf, Group Leader
  2. Recent Posts by Others on RLS FoundationSee All
    • Having recently moved from New York to Reno, Nevada... I finally was able to get a GP until I can see a specialist. They RX'd my pain meds and Requip until I can get in to see a Neurologist. It reminded me how critical it is to maintain good medical records!
      10 hours ago
    • Mary Robach Colebeck
      Hi everyone, My prayers are with all those affected by Sandy. I just thought of something a little too late but, for future, Try to stockpile RLS Meds in case of emergencies like this. Ask Dr. to add 1 more pill to prescripts so you will have a months surplus supply. 1+1=2 use one keep, one for emergency. By the end of month you should have enough to at least get you through till you can get an emergency refill.
      12 · 18 hours ago
    • Mary Robach Colebeck
      I wish this web site would separate all the ads and media stuff from the discussion area. It takes forever to access the people in need of just support through our comments
      3 · 19 hours ago
    • Kathy Page
      DID YOU KNOW....? That the WED/RLS Foundation has only two full-time staff and 2 part-time staff members? Those dedicated, hard-working people handle everything for the entire USA, as well as helping the Canadian and international groups. I was just at the BOD meeting and find it impossible to understand how they get everything done that they do. Believe me, you have NO idea of all the work they do! From me to them---I thank you!!!
      2 · 20 hours ago
    • Donna McLellan
      Here is a question. What would you tell a very good long time friend of 40 yrs, when he says, and I quote "RLS is all in your head", "You create your own reality", and the kicker (pun intended) "If you have RLS, you must WANT to have RLS." picture the steam eminating from my ears and brain. Don't say show him web sites, etc, because that has been tried before. It makes me mad, but also REALLY hurt me, too. It came from the last person I would expect it from. Just venting, and I am sure some can relate to this, too. I have NEVER wished RLs on anyone, but did not get to sleep until 6 a.m. and had to get up at 8. yay, fun times! This is on eof the worst nights I have had, and then I get that BS from my supposed best friend. not cool at all.
      110 · Thursday at 4:26pm
  3. For those of you that work and have WED/RLS, is your boss and the company understanding and flexible with your work schedule and duties?
  4. 2 hours left to join for $20!
    Photo
  5. -------> TODAY ONLY <------
    New members can sign up for a full year's membership for only $20. It's not a trick! It's our treat to you! Go to www.rls.org/memberdiscount to join today. Offer is valid to new members only and expires at 11:59 PM Central Time on 10/31/2012. Don't wait! Join now!
  6. ***WHAT IS AUGMENTATION?***
    If augmentation occurs, your usual dose of a dopaminergic agent will relieve your symptoms so that you are able to sleep at night, but eventually, the unpleasant sensations will develop earlier in the day. Augmen...
    tation of WED/RLS symptoms may occur after an initial period of relief with dopaminergic agents, and unfortunately, increasing your dosage will probably worsen your symptoms. If augmentation occurs, you and your doctor can work together to find a new drug regimen that will work for you. Please be sure to talk with your doctor before making changes to your medication regimen.

    We do have a patient handout on Augmentation. Go to http://www.rls.org/page.aspx?pid=524 to find the handout.
    See More
  7. Have you seen our patient handout on Understanding Iron and Restless Legs Syndrome? If not, go to http://www.rls.org/Document.Doc?id=2078.
  8. For those of you watching football this afternoon, do you think any of the NFL players have WED/RLS?
  9. Mark your calendars! Together we can all make a difference for those living with WED/RLS!
    Photo: Mark your calendars! Together we can all make a difference for those living with WED/RLS!
  10. ***What if I think I have WED/RLS?**

    If you think you have WED/RLS, it is important that you schedule an appointment with your physician. Your doctor will review your medical history, complete a physical exam, listen to a description of your symptoms, complete a diagnostic interview, and rule out conditions that may be confused with WED/RLS. In addition, your doctor may check your iron levels. If another sleep disorder is suspected, you may be asked to stay overnight in a sleep lab. There are no available lab tests that will confirm that you have WED/RLS.
  11. ----> $15 Trial Membership Offer now through October 31st <----

    As a member of the Willis-Ekbom disease (WED), also known as restless legs syndrome (RLS) community, you qualify for a special trial membership with the RLS Foundation. Join t...
    he Foundation by October 31, 2012 and receive a special six-month membership for just $15!

    The Fall issue of the newsletter will have a summary of the recent RLS survey sent to members. The purpose of the survey was to investigate the overall health status of patients affected
    by WED/RLS and how the quality of life is changed by treatment. You won't want to miss this article!

    RLS Foundation members receive a wide array of membership perks including our quarterly newsletter, NightWalkers. Read more about membership benefits at www.rls.org/trialmembership.
    See More
  12. We always have individuals calling, emailing or posting about good RLS doctors. Do you have a doctor that you would recommend? If so, what is there name, specialty, location and clinic/hospital that they practice?
  13. ***What causes WED/RLS?***

    Research into the cause of WED/RLS is ongoing. Researchers have discovered gene variants that contribute to the risk for WED/RLS. We do know that while WED/RLS often runs in families, it also sometimes appears as the result of another condition. A substantial number of women develop WED/RLS during pregnancy. In addition, anemia, low iron levels, endstage renal disease with dialysis, and peripheral neuropathy are all associated with WED/RLS.
  14. ***What causes WED/RLS?***
    Research into the cause of WED/RLS is ongoing. Researchers have discovered gene variants that contribute to the risk for WED/RLS. We do know that while WED/RLS often runs in families, it also sometimes appears as the result of another condition. A substantial number of women develop WED/RLS during pregnancy. In addition, anemia, low iron levels, endstage renal disease with dialysis, and peripheral neuropathy are all associated with WED/RLS.
  15. If you'd like to stay up to date with the Foundation, be sure to follow these instructions to make sure you don't miss out on specials, posts or comments.

    1. Head over this business page from your computer (it will not work from your mobile device)
    2. On the right hand side on the page right next to the "like" button there is a drop down box.

    3. Click on that drop down box and click on the "add to interest list"

    Like this status if you're already seeing the RLS Foundation page in your News Feed so hopefully others will see this solution as well. Thank you for being a part of the RLS Community!
  16. Does anyone have an appointment with their doctor this week to talk about their WED/RLS?
  17. Don't forget to collect and send in your e-waste this month. Get a mailing label at www.planetgreenrecylce.com/restlesslegs. Remember its FREE to mail in the items listed. It's a great way to donate to the Foundation. Send your stuff in today!
    Don't forget to send in your e-Waste this month to help raise funds for the RLS Foundation! Thank you in advance!
    Photo: Don't forget to send in your e-Waste this month to help raise funds for the RLS Foundation! Thank you in advance!
  18. ***How do I know if I have WED/RLS?***

    In order for you to be correctly diagnosed with WED/RLS, you must meet the criteria described in the five bullet points below:

    • You have a strong urge to move your legs which you can’t really resist.
    • Your WED/RLS symptoms start or become worse when you are resting.
    • Your WED/RLS symptoms get better when you move your legs.
    • Relief persists as long as the movement continues.
    • Your WED/RLS symptoms are worse in the evening especially when you are resting.
    • The urge to move your legs and any unpleasant sensations cannot be explained by another condition, such as leg cramps, positional discomfort, leg swelling, or arthritis

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Earlier in 2012