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Familial Dysautonomia (FD)
A disease most people have never heard of . . .
Familial Dysautonomia (FD) is a rare genetic neurological condition that
affects the sensory and autonomic nervous systems, causing severe
gastrointestinal, cardiac, pulmonary, orthopedic, renal and ophthalmologic
problems. Watch our
awareness
video.
A Foundation dedicated to helping them . . .
The Dysautonomia Foundation is a 501(c)(3) nonprofit public charity that
supports medical treatment, research, public awareness and social services
for the benefit of people afflicted with FD. The Foundation has established
the world's only two FD treatment centers and is the largest single source
of funding for research and treatment specifically for the benefit of people
with FD. Watch our
video about FD and the Dysautonomia Foundation's
work.
Remarkable progress, incredible challenges . . .
FD was once considered a fatal disease, but the Foundation's efforts have
resulted in dramatic improvements in the quality of life and life expectancy
for FD patients. Still, people with FD must overcome tremendous challenges,
including frequent hospitalizations, major surgeries and daily medical and supportive therapies as they try to live normal lives.
Join us, and make a difference in their lives.
The gene that causes FD has been identified. Genetic therapies are possible,
but they are costly and time-consuming to develop. A new clinical research
facility is now exploring new therapies. Basic, clinical and translational
researchers are working together to improve survival and create positive
outcomes for people with FD. With
your help, we can make a real difference in their lives.
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FD News |
DYScourse - FD
News - available online
The latest news about the Foundation's work, the FD community
and FD medical treatment & research is now available on our web
site
more
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New FD Research Study
Experts have unraveled one of the great mysteries of FD. Featured in a
recent edition of the journal
Neurology, this clinical research study explores the function of the nerve pathways that control blood pressure in FD.
more |
2012 FD Day -
The 27th Annual FD Day Conference was held in NY on June
10th with presentations by researchers, doctors and FD adults, plus
Q&A with experts.
more |
Oxygen on Airplanes
Airline oxygen policies have changed.
more |
Research Consortium
FD is one of several diseases being studied by a research
consortium of the nation's foremost autonomic experts.
more |
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