Sickle Cell Disease Quiz
Sickle Cell Disease is one of the most common genetic diseases in the United States. Sickle cell disease affects about 70,000 to 100,000 Americans.
Test Your Knowledge...
1. True or False: Only African Americans get sickle cell disease.
a) True
b) False
2. True or False: It's still important to know whether or not you have sickle cell trait even if you don't have any symptoms.
a) True
b) False
3. True or False: People with sickle cell disease cannot get malaria.
a) True
b) False
4. True or False: Sickle Cell Disease affects different people in different ways, but almost always
includes pain.
a) True
b) False
5. True or False: A woman with sickle cell disease cannot have a healthy pregnancy.
a) True
b) False
6. True or False: There are several different types of sickle cell disease.
a) True
b) False
7. True or False: There is no cure for sickle cell disease.
a) True
b) False
8. True or False: People with sickle cell disease need to have their vision checked more often that people who do not have sickle cell disease.
a) True
b) False
9. True or False: There are things a person with sickle cell disease can do to avoid some of the complications.
a) True
b) False
10. True or False: People with sickle cell disease should not get vaccinations.
a) True
b) False
1.
True or False: Only African Americans get sickle cell disease.
FALSE
Sickle cell disease
affects millions of people throughout the world and is particularly common among
people whose ancestors come from sub-Saharan Africa, Spanish-speaking regions in
the Western Hemisphere ( South America, Cuba, and Central America), Saudi
Arabia, India, and Mediterranean countries such as Turkey, Greece, and Italy.
Because of this, hospitals in the United States screen all newborn babies for
sickle cell disease.
2. True or False: Its still important to know whether or not you have sickle cell trait even if you
dont have any symptoms.
TRUE
People with sickle
cell trait usually do not have any of the symptoms of the disease. However, it
is possible for a person with sickle cell trait to have complications of the
disease under extreme conditions, such as:
- High altitude (flying, mountain climbing, or cities with a high altitude)
- Increased pressure (scuba diving)
- Low oxygen (mountain climbing or exercising extremely hard, such as in military boot camp or when training for an athletic competition)
- Dehydration(too little water in the body)
In addition, a person with sickle cell trait can pass the disease on to their children.
3. True or False: People with sickle cell disease cannot get malaria.
FALSE
People with sickle cell disease can get malaria just like anyone else. However, people with sickle cell trait are less likely to get malaria. The trait doesn't completely protect a person from infection, but it makes death from malaria less likely.
4. True or False: Only African Americans get sickle cell disease.
TRUE
A pain episode or crisis is the most common symptom of sickle cell disease, and the top reason that people with the disease go to the emergency room or hospital. When sickle cells travel through small blood vessels, they can get stuck and clog the blood flow. This causes pain that can start suddenly, be mild to severe, and last for any length of time.
5.
True or False: A woman with sickle cell disease cannot have a healthy pregnancy.
FALSE
Women with sickle
cell disease can have a healthy pregnancy, but need to be extra careful to avoid
problems during pregnancy that can affect their own health and the health of the
unborn baby. The disease may become more severe and pain episodes may occur more
frequently. There is a higher risk of preterm labor and of having a low-birthweight
baby. However, with early prenatal care and careful monitoring throughout
pregnancy, women with sickle cell disease can have a healthy pregnancy.
During pregnancy, there is a test to find out if the unborn baby will have sickle cell disease, sickle cell
trait, or neither one. The test is usually conducted after the second month of pregnancy. Women with sickle cell disease might want to see a genetic counselor to
find information about the disease and the chances that sickle cell disease will
be passed to the baby.
6. True or False: There are several different types of sickle cell disease.
TRUE
People who inherit two sickle cell genes, one from each parent, have a type of sickle cell disease
called SS. This is commonly called ?sickle cell anemia? and is usually the most
severe form of the disease.
People who inherit a sickle cell gene from one parent and a gene for another
type of abnormal hemoglobin (hemoglobin is a protein that allows red blood cells
to carry oxygen to all parts of the body) from the other parent, have a
different type of sickle cell disease.
Some types of sickle cell disease are very severe and some are more mild. The
disease affects each person differently.
7. True or False: There is no cure for sickle cell disease.
FALSE
Bone marrow/stem cell transplant can cure sickle cell disease.
Bone marrow is a soft, fatty tissue inside the center of the bones where blood
cells are made. A bone marrow/stem cell transplant is a procedure that takes
healthy cells that form blood from one person - the donor - and puts them into
someone whose bone marrow is not working properly.
Bone marrow/stem cell transplants are very risky, and can have serious side
effects, including death. For the transplant to work, the bone marrow must be a
close match. Usually, the best donor is a brother or sister. Bone marrow/stem
cell transplants are used only in cases of severe sickle cell disease for
children who have minimal organ damage from the disease.
8. True or False: People with sickle cell disease need to have their vision checked more often that people who do not have sickle cell disease.
TRUE
Vision loss, including blindness, can occur when blood vessels in the eye become blocked with
sickle cells and the retina (the thin layer of tissue inside the back of the
eye) gets damaged.
People with sickle cell disease should have their eyes checked every year to
look for damage to the retina. If possible, this should be done by an eye doctor
who specializes in diseases of the retina. If the retina is damaged, laser
treatment often can prevent further vision loss.
9. True or False: There are things a person with sickle cell disease can do to avoid some of the complications.
TRUE
People with sickle cell disease can live full lives and enjoy most of the activities that other
people do. There are things that people with sickle cell disease can do to stay
as healthy as possible. Here a few examples:
- Get regular checkups. Regular health checkups with a primary care doctor can help
prevent some serious problems.
- Prevent infections.
Common illnesses, like the flu, can quickly become dangerous for a child
with sickle cell disease. The best defense is to take simple steps to help
prevent infections. Click here to see tips to help prevent getting an
infection.
- Learn healthy
habits. People with sickle cell disease should drink 8 to 10 glasses of
water every day and eat healthy food. They also should try not to get too
hot, too cold, or too tired.
- Look for clinical
Studies. New clinical research studies are happening all the time to
find better treatments and, hopefully, a cure for sickle cell disease.
People who participate in these studies might have access to new medicines
and treatment options. Click here to find out more.
- Get support.
Find a patient support group or community-based organization in your area
that can provide information, assistance, and support.
10. True or False: People with sickle cell disease should not get vaccinations.
FALSE
People with sickle
cell disease, especially infants and children, are more at risk for harmful
infections. Pneumonia is a leading cause of death in infants and young children
with sickle cell disease. Vaccinations can protect against harmful infections.