Publications

Publications Related to the CDC Epilepsy Program and Supported Research

2012

Johnson EK, Fraser RT, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P. A comparison of epilepsy self-management needs: provider and patient perspectives. Epilepsy & Behavior (in press)

Kobau R, DiIorio C, Thompson N, St. Louis E, Bamps Y. "Implications for Understanding and Combating Stigma” in St Louis E, Ficker D, O’Brien, T eds. Epilepsy and the Interictal State: Co-morbidities and Quality of Life, Wiley- Blackwell, 2012, in press.

Walker ER, Bamps Y, Burdett A, DiIorio C, Rothkopf J. Social support for self-management behaviors among people with epilepsy: A content analysis of the WebEase program. Epilepsy & Behavior 2012;23(3):285-90.

Walker ER, Engelhard Jr. G, Thompson NJ. Using Rasch measurement theory to assess three depression scales among adults with epilepsy. Seizure 2012;21(6):437-443.

Croker C, Redelings M, Reporter R, Sorvillo F, Mascola L, et al. The Impact of Neurocysticercosis in California: A Review of Hospitalized Cases. PLOS Negl Trop Dis 2012;6(1): e1480 free access

Thompson AW, Kobau R, Park R, Grant D. Epilepsy care and mental health care for people with epilepsy: California Health Interview Survey, 2005. Prev Chronic Dis 2012;9:110140. DOI: http://dx.doi.org/10.5888/pcd9.110140 .

Kobau R, Price P, Hawkins NA. News from the CDC: Translating epilepsy self-management research to practice. Translational Behavioral Medicine: Practice, Policy and Research 2012;2(2):124–125.

2011

Sorvillo F, Wilkins P, Shafir S, Eberhard M. Public health implications of cysticercosis acquired in the United States. Emerg Infect Dis. 2011;17(1):1-6. abstract

Thurman DJ, Beghi E, Begley CE, Berg AT, Buchhalter JR, Ding D, Hesdorffer DC, Hauser WA, Kazis L, Kobau R, Kroner B, Labiner D, Liow K, Logroscino G, Medina MT, Newton CR, Parko K, Paschal A, Preux PM, Sander JW, Selassie A, Theodore W, Tomson T, Wiebe S; ILAE Commission on Epidemiology. Standards for epidemiologic studies and surveillance of epilepsy. abstract

Leaffer EB, Jacoby A, Benn E, Hauser WA, Shih T, Dayan P, Green R, Andrews H, Thurman DJ, Hesdorffer D. Associates of stigma in an incident epilepsy population from northern Manhattan, New York City. Epilepsy & Behavior 2011;21(1):60-4. abstract

Fraser RT, Johnson EK, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P, Chaytor N. Managing Epilepsy Well: Self-Management Needs Assessment. Epilepsy & Behavior 2011;20(2):291-298. abstract

Chaytor N, Ciechanowski P, Miller JW, Fraser R, Russo J, Unutzer J, Gilliam F. Long-term outcomes from the PEARLS randomized trial for the treatment of depression in patients with epilepsy. Epilepsy & Behavior 2011;20(3):545-549. abstract

2010

Handali S, Klarman M, Gaspard AN, Dong XF, Laborde R et al. Development and evaluation of a magnetic immunochromatographic test to detect Taenia solium, which causes taeniasis and neurocysticercosis in humans. Clin Vaccine Immunol. 2010;17(4):631-7. abstract

Ferguson PL, Smith GM, Wannamaker BB, Thurman DJ, Pickelsimer EE, Selassie AW. A population-based study of risk of epilepsy after hospitalization for traumatic brain injury. Epilepsia 2010;51(5):891-8. abstract

DiIorio C, Bamps Y, Edwards AL, Escoffery C, Thompson NJ, Begley CE, Shegog R, Clark NM, Selwa L, Stoll S, Fraser RT, Ciechanowski P, Johnson EK, Kobau R, Price PH. (2010) The Prevention Research Centers' Managing Epilepsy Well Network. Epilepsy & Behavior 2010;19(3):218-224. abstract

Begley CE, Shegog R, Iyagba B, Chen V, Dubinsky S, Newmark M, Ojukwu N, Friedman D. Socioeconomic Status and Self-Management in Epilepsy: Comparison of Diverse Clinical Populations in Houston, TX. Epilepsy & Behavior 2010;19(3):232-238. abstract

Ciechanowski P, Chaytor N, Miller J, Fraser R, Russo J, Unutzer J, Gilliam F. PEARLS Depression Treatment for Individuals with Epilepsy: A Randomized Controlled Trial. Epilepsy & Behavior 2010;19(3):225-231. abstract

Clark NM, Stoll S, Sweetman M, Youatt EJ, Derry R, Gorelick A. Fostering Epilepsy Self-Management: The Perspectives of Professionals. Epilepsy & Behavior 2010;19(3):255-263. abstract

Fraser RT, Johnson EK, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P, Chaytor N. Managing Epilepsy Well: Self-Management Needs Assessment. Epilepsy & Behavior. (in press)

Kobau R, Price P, Giles HW, Pennell P, Hargis E. Forward/Editorial: Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy & Behavior 2010;19(3):216-217.

Walker ER, Obolensky N, Dini S, Thompson, NJ. Formative and process evaluations of a CBT and mindfulness intervention for people with epilepsy and depression. Epilepsy & Behavior 2010;19(3):239-246. abstract

Thompson NJ, Walker ER, Obolensky N, Winning A, Barmon C, DiIorio C, Compton M. Distance Delivery of Mindfulness-based Cognitive Therapy for Depression: Project UPLIFT. Epilepsy & Behavior 2010;19(3):247-254. abstract

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2009

Parko K, Thurman DJ. Prevalence of epilepsy and seizures in the Navajo Nation 1998–2002. Epilepsia 2009;50(10):2180-5. abstract

Benn EK, Hauser WA, et al. "Underlying cause of death in incident unprovoked seizures in the urban community of Northern Manhattan, New York City." Epilepsia 2009;50(10):2296-300. abstract

Centers for Disease Control and Prevention. Announcement: National Epilepsy Awareness Month — November 2009. MMWR 2009;58(42):1183. html

Bokhour BG, Pugh MJ, Rao JK, Avetisyan R, Berlowitz DR, Kazis LE. Identifying patient-centered indicators for quality epilepsy care. Med Care Res Rev 2009;66(2):147-166. abstract

DiIorio C, Escoffery C, Yeager KA, McCarty F, Henry TR, Koganti A, et al. WebEase: development of a Web-based epilepsy self-management intervention. Prev Chronic Dis 2009; 6(1). html

Targeting Epilepsy— Improving the Lives of People with One of the Nation’s Most Common Neurological Conditions. At A Glance

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2008

Benn EK, Hauser WA, Shih T, Leary L, Bagiella E, Dayan P, Green R, Andrews H, Thurman DJ, Hesdorffer DC. Estimating the incidence of first unprovoked seizure and newly diagnosed epilepsy in the low-income urban community of Northern Manhattan, New York City. Epilepsia 2008;49(8):1431-1439. abstract

DiIorio C, Escoffery C, McCarty F, Yeager KA, Henry TR, Koganti A, Reisinger EL, Wexler B. Evaluation of WebEase: an epilepsy self-management Web site. Health Educ Res 2008. [Epub ahead of print] abstract

Escoffery C, DiIorio C, Yeager KA, McCarty F, Robinson E, Reisinger E, Henry T, Koganti A. Use of computers and the Internet for health information by patients with epilepsy. Epilepsy Behavior 2008;12(1):109–14. abstract

Ferguson PL, Chiprich J, Smith G, Dong B, Wannamaker BB, Kobau R, Thurman DJ, Selassie AW. Prevalence of self-reported epilepsy, health care access, and health behaviors among adults in South Carolina. Epilepsy & Behavior 2008 Jun. 26. [Epub ahead of print]. abstract

Kobau R, Zahran H, Thurman DJ, Zack MM, Henry TR, Schachter SC, Price PH.
Epilepsy Surveillance Among Adults—19 States, Behavioral Risk Factor Surveillance System, 2005. MMWR 2008;57(No.SS-6):1—20. html  PDF [900KB] [View the errata for this article here] 2008;57(32):876.

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2007

Bambara JK, Griffith HR, Martin RC, Faught E, Wadley VG, Marson DC. Medical decision-making abilities in older adults with chronic partial epilepsy. Epilepsy Behavior 2007;10(1): 63–68. abstract

Hirtz D, Thurman DJ, Gwinn-Hardy K, Mohammed M, Chaudhuri AR, Zalutsky R. How common are the “common” neurological disorders? Neurology 2007;68(5):326–37. abstract

Kelvin EA, Hesdorffer DC, Bagiella E, Andrews H, Pedley TA, Shih TT, Leary L, Thurman DJ, Hauser WA. Prevalence of self-reported epilepsy in a multiracial and multiethnic community in New York City. Epilepsy Research 2007; 77(2-3):141-150. abstract

Kobau R, Zahran H, Grant D, Thurman DJ, Price PH, Zack MM. Prevalence of Active Epilepsy and Health-Related Quality of Life among Adults with Self-Reported Epilepsy in California: California Health Interview Survey, 2003. Epilepsia 2007; 48:1904–1913. abstract

Pramuka M, Hendrickson R, Zinski A, Van Cott AC. A psychosocial self-management program for epilepsy: A randomized pilot study in adults. Epilepsy Behavior 2007 Dec;11(4):533–45. Epub 2007 Sep 29 abstract

Pugh MJ, Berlowitz DR, Montouris G, Bokhour B, Cramer JA, et al. What constitutes high quality of care for adults with epilepsy? Neurology 2007;69:2020–2027. abstract

Vogtle LK, Martin RC, Foushee HR, Faught RE. A comparison of physicians' attitudes and beliefs regarding driving for persons with epilepsy. Epilepsy Behavior 2007;10(1) 55–62. abstract

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2006

Austin JK, Carr DA, Hermann BP. Living Well II: a review of progress since 2003. Epilepsy Behav 2006;9(3):386-93. abstract

Caplin DA, Rao JK, Filloux F, Bale JF, van Orman C. Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 2006;47:2011–2019. abstract

Kobau R, DiIorio CA, Anderson LA, Price PH. Further validation and reliability testing of the Attitudes and Beliefs about Living with Epilepsy (ABLE) components of the CDC Epilepsy Program Instrument on Stigma. Epilepsy Behav 2006;8(3):552–559. Epub 2006. abstract

Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. abstract

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2005

DeGiorgio C, Pietsch-Escueta S, Tsang V, Corral-Leyva G, Ng L, Medina MT, Astudillo S, Padilla N, Leyva P, Martinez L, Noh J, Levine M, del Villasenor R, Sorvillo F, Sero-prevalence of Taenia solium cysticercosis and Taenia solium taeniasis in California, USA. Acta Neurologica Scandinavica 2005; 111(2):84–88. abstract

Holden EW, Grossman E, Nguyen HT, Gunter MJ, Grebosky B, Von Worley A, Nelson L, Robinson S, Thurman DJ. Developing a computer algorithm to identify epilepsy cases in managed care organizations. Dis Manag 2005;8(1):1–14. abstract

Holden EW, Nguyen HT, Grossman E, Robinson S, Nelson LS, Gunter MJ, Von Worley A, Thurman DJ. Estimating prevalence, incidence, and disease-related mortality for patients with epilepsy in managed care organizations. Epilepsia 2005;46:311–319. abstract

Martin R, Griffith HR, Faught E, Gilliam F, Mackey M, Vogtle L. Cognitive functioning in community dwelling older adults with intractable partial epilepsy. Epilepsia 2005; 46(2):298–303. abstract

Martin R, Vogtle L, Gilliam F, Faught E. What are the concerns of older adults living with epilepsy? Epilepsy & Behavior 2005; 7:297–300. abstract

Prevalence of Epilepsy and Health-Related Quality of Life and Disability Among Adults with Epilepsy South Carolina, 2003 and 2004. MMWR 2005;54(42):1080–1082.

Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la Epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy and Behavior 2005;7:259–265.abstract

Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: Results from the 2002 National Health Interview Survey. Epilepsia 2005 46(7):1133–1139. abstract

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2004

Ciechanowski P, Wagner E, Schmaling K, Schwartz S, Williams B, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA 2004;291(13):1569-77.  abstract html pdf [PDF 190K]

DiIorio CA, Kobau R, Holden EW, Berkowitz JM, Kamin SL, Antonak RF, Austin JK, Baker GA, Bauman LJ, Gilliam F, Thurman DJ, Price PH. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy and Behavior 2004;5:965–975. abstract

Kobau R, DiIiorio CA, Price PH, Thurman DJ, Martin LM, Ridings DL, Henry TR. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy & Behavior 2004;5:358–366. abstract

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2003

Kobau R, Price PH. Knowledge of epilepsy and familiarity with this disorder in the U.S. population: results from the 2002 Health Styles Survey. Epilepsia 2003; 44(11):1449–1454. abstract

Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy & Behavior 2003;4:626–634.abstract

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2001

Health-related quality of life among persons with epilepsy Texas, 1998. MMWR 2001;50(02):24–26, 35.

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2000

Begley CE, Famulari M, Annegers JF, Lairson DR, Reynolds TF, Coan S, Dubinsky S, Newmark ME, Leibson C, So EL, Rocca WA. The cost of epilepsy in the United States: an estimate from population-based clinical and survey data. Epilepsia. 2000;41(3):342-351. abstract

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1994

Prevalence of self-reported epilepsy United States, 1986 1990. MMWR 1994;43:810–811.

Hospitalization for epilepsy United States, 1988 1992. MMWR 1994;44(43):818–823.

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