Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

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Did you know that PWSA (USA), which is funded through our “On The Move” activities and other donations, provides for the most extensive support services for families and people with PWS in the world. In addition to Research, PWSA (USA) provides the following Family Support Services:

• A Package of Hope, opportunity to work with a parent mentor and 1 year free membership to parents with children who are newly diagnosed.
• An extensive medical collection of information on our website and publications that families, as well as professionals and supported living providers can access.
• Advocacy for medical support, growth hormone approval, school issues, and placement.
• Assistance to parents and educators with IEP’s, ISP’s and educational material for all involved with a child or adult who has PWS.
• Interaction with medical and other professionals to try to prevent and if necessary handle urgent and/or crisis cases in a timely and effective manner.

Please enjoy the wealth of information contained on our website and contribute to our cause. If you would like to contact our office, please call (800) 926-4797 or email info@pwsausa.org. We are here to help you.

In the spotlight

• Weight Loss Drug Approved by FDA [Click here] for details
• Its time to take one SMALL step for Prader-Willi Syndrome! Join a walk near you or host a walk in your own community! 100% of proceeds go to Prader-Willi Research as described in the Prader-Willi Research Plan.   One SMALL step is jointly supported by PWSA-USA and the Foundation for Prader-Willi Research (FPWR).
• 2nd International Conference on Hyperphagia in conjunction with PWSA (USA)'s Scientific ,  Service Providers and  State Leaders conferences . October 17-20, 2012 Baton Rouge, LA, USA Click here for more information.
• News from the PWSA (USA)'s Board of Directors click here for details.
• Early-onset Morbid Obesity (EMO) Recruitment through the PWS-EMO Rare Disease Natural History Study funded by NICHD.  Click here for more information.
• Clinical Trials on Oxytocin for PWS Are Moving Forward!  For more details [click here]PWSA (USA) Logo items for sale [click here]

• Front Page News Archive  Items formerly on our front page that cannot be found elsewhere on our site may be kept in a news archive.

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Click here if you are not in the USA.

  Participants Wanted for Research Projects!  
click here for details.