International Registry for Hereditary Kidney Stone Diseases

• Establish and expand registries and collaborate with patient organizations for the rapid dissemination of knowledge [ Time Frame: Yearly ] [ Designated as safety issue: No ]
  The patient Registries will expand knowledge of the clinical expression of these disease by systematically accumulating and analyzing information regarding a larger number of patients than have been studied to date.
  
  

• Improved understanding of four major diseases of hereditary nephrolithiasis and disease progression. [ Time Frame: Yearly ] [ Designated as safety issue: No ]
  The goal of the patient Registries is to collect data about these rare diseases, provide a better understanding of these four conditions and help to develop better treatment protocols in the future.
  
  

This study involves the collection of medical information to create a computer database or registry for patients with PH, Dent disease, Cystinuria and APRT. The information will be entered into the registry by your physician or health care provider. The computer web site for the registry is secure and protected by a required password. Some information which will be entered may include your age at first symptoms of PH,Dent disease, Cystinuria or APRT, lab values, kidney function and the progress of your health over time. Information for an individual patient can only be viewed by the appropriate physician or staff. Once the information is entered into the registry, you will only be identified by a code number.