Alabama
There are currently no support groups in Alabama.
Check surrounding states for support groups: Florida, Georgia, Mississippi, Tennessee. Find an online support group here.
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Alaska
There are currently no support groups in Alaska. Find an online support group here.
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Arizona
North Phoenix
Phone and E-mail Support
Contact: Leslie Glassman
RSDSA Registration Number: 19755
Tel: 623.247.3746, E-Mail: les-mike@cox.net
Phoenix
RSD Care and Share Support Group of Phoenix
Meets 3rd Saturday, 1:00 pm
St. Joseph's Medical Center, 3rd Ave and Thomas, Phoenix
Contact: Margie St. Pierre
RSDSA Registration Number: 99228
Tel: 602.843.2412, E-mail: mjstpierre1@yahoo.com
Tucson
RSD Care and Share Support Group of Tucson
Meets 2nd Saturday, 3 pm
Masonic Lodge, 3959 East Mabel (near Alvernon & Speedway)
Contact: Pam Horton
9139 E. Calle Diego, Tucson, AZ 85710
Tel: 520.731.8333, E-mail: tucsonrsd@yahoo.com
Contact: Sheila Reynold
Tel: 520.744.5930, E-mail: connealy700@gmail.com
Website: www.tucsonrsd.blogspot.com/
Yuma
James Newland would like to start a face-to-face support group in Yuma. If interested in attending, please e-mail James.
Contact: James Newland
E-mail: jknewland@msn.com
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Arkansas
Batesville
New Group
Contact: Shelia Hall
E-mail: sheliaann@rocketmail.com
Little Rock
Power Over Pain
Meets 2nd Tuesday every month
Location: The Community Room at Arkansas Surgical Hospital
5201 Northshore Dr., North Little Rock, AR.
If you can't make a meeting Debbie and Barbara also do Phone and
E-mail Support
Contract: Debbie
RSDSA Registration Number: 12873
Tel: 501.240.2209
E-mail: painstopshere@yahoo.com
Contact: Barbara 501.681.8970
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California
The Bay Area
Complete full family wrap around support. We have a full range of people in our area from full body to localized hand or leg. Our FaceBook page is located with a search of our name or by clicking here. Bringing our family member's together with people just like them in their position. Education of the syndrome. knowledge is power!. Advocate for yourself with knowledge!
Monthly group meetings for the whole family, yes kids too! Meetings change location for the purpose of bringing more people together. Guided Work Shops for the whole family and just the RSDer.
Contact: Kaitlyn Stevens
RSDSA Registration Number: 19734
Tel: 707.494.6404
E-mail: rsdcpsbayareasupport@aol.com
FaceBook: http://www.facebook.com/#!/groups/179362672158251/
Website: RSD-CRPSBayAreaSupport.org
Cupertino
E-Mail Support Only
Contact: Brenda Eldridge
RSDSA Registration Number: 15537
E-mail: brendaeldridge@comcast.net
Los Angeles
Los Angeles CRPS/RSD Pain Support Group
Starts, Monday, May 14 from 9 - 10:30 am, Room C8-639
Semel Institute Building, 740 Westwood Blvd.
(located directly across from the Ronald Reagan UCLA Medical Center).
Contact: Evelyn Poplawski, MA, LMFT
RSDSA Registration Number: 5546
Tel: 818.554.3645
E-mail: crps_rsd_paingroup.ucla@ymail.com
Marin County
Marin County RSD/CRPS Support
Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome support group in Marin county and the whole bay area. Not much is known about this rare condition and all we can do is help each other.
Contact: Sam Shillinglaw
Tel: 415.246.8457
FaceBook: http://www.facebook.com/groups/220797919224
Roseville
Roseville RSD Support Group for Veterans
Contact: Sabino Deodanes
RSDSA Registration Number: 4423
E-mail: sabino11@mac.com
Website:
http://web.me.com/sabino11/Web.Me.com_sabino11_RSD/
Santa Rosa
Sonoma Hope, to connect RSD families together in the San Francisco North Bay.
Facilitated by a transitional life coach, Kaitlyn Stevens
Contact: sonomahope@gmail.com
Group for people with chronic pain including CRPS
Contact: Kaitlyn Stevens
RSDSA Registration Number: 19734
Tel: 707.494.6404
E-mail:sonomahope@gmail.com
Southern California
http://www.facebook.com/#!/groups/RSD.CRPS.Southern.CA/
Templeton
CRPS/RSD Support Group
Rabobank Community Room
1025 Las Tablas
Templeton, CA 93465
3rd Tuesday of every month from 5:30 to 6:30pm
Contact: Suzanne Miller
RSDSA Registration Number: 19439
Cell: 805.704.5970, E-mail: suzanne.miller@ymail.com
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Colorado
Englewood
Rocky Mountain CRPS/RSD
Contact: http://www.rmrsd.org
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Connecticut
Branford
Phone and E-mail Only
Contact: Barbara
RSDSA Registration Number: 7647
Tel: 203.481.7398 (Barbara cannot returns toll calls)
E-mail: s21@snet.net
Brookfield/Danbury
US Pain Foundation, Inc.
Meets weekly
Contact: Paul Gileno
RSDSA Registration Number: 13491
Tel:1-800-910-2462
Address: PO Box 2182, Shelton, CT 06484
E-mail: uspainfoundation@gmail.com;
Website: www.uspainfoundation.org
Norwich
American Chronic Pain Association #664
Contact: Rita Ammons,
1 Pacemaker Ave., Norwich, CT 06360
RSDSA Registration Number: 2623
Tel: 860.822.1082, E-mail: ritaammons@hotmail.com
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Delaware
There are currently no support groups in the Delaware. Check surrounding states for support groups: Maryland, Pennsylvania, or New Jersey. Find an online support group here.
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District of Columbia
There are currently no support groups in the District of Columbia. Check surrounding states for support groups: Maryland, Virginia. Find an online support group here.
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Florida
Coral Springs
RSDExtremity
Health Rehab
1844 University Drive
Coral Springs, FL 33071
Meets Last Thursday at 7:00 pm
Contact: Michelle
RSDSA Registration Number: 10007
E-mail: RSDExtremity@yahoo.com
Daytona
Northeast Coast of Florida RSD Support Group
Contact: Linda Cohn, Lindsay Heffron, or Janet Tedder
Tel: 386.673.0871, E-mail: leeorlinda@bellsouth.net
Lake City
New Group
Contact: Jessica Velez
Tel: 386.344.5333, E-mail: jvelezrsdsg@bellsouth.net
Lakeland
Phone and E-mail Support Only
Contact: Karen McManus
Tel: 863.838.0223, E-mail: polkrsdgroup@tampabay.rr.com
Miami Lakes
New Group
Contact: Maggie
RSDSA Registration Number: 11841
Tel: 305.502.9595, E-mail: imaginemiami@yahoo.com
Orlando
Orlando RSDS/CRPS Support
If you live in the Greater Orlando are and are a CRPS patient and/or are a loved one, caregiver, friend of a patient, and would like to be involved with our group, or would just like to come on by and talk with us, drop us a line with your contact information.
Contact: Jason Bingham
Tel: 407.234.4243, E-mail: orlando.rsds.crps.support@gmail.com
Palmetto
New Group
Contact: Lana Baus
Tel: 941.592.1968, E-mail: lb113068@gmail.com
FaceBook: facebook.com/lana.lundebaus
Panama City
Contact: Carmen E. Everhart
3919 Becora Ct., Panama City, FL 32405,
Tel: 850.265.3463, E-mail: cever15741@yahoo.com
Pinellas County
New Group. RSD Support Group.
The group meets the second Saturday of each month at 10:30 am at the Pinellas Park Library, Pinellas Park, FL
Contact: Nancy
RSDSA Registration Number: 16395
Tel: 727-546-9319
Sanford
Contact: Jennifer
RSDSA Registration Number: 3432
Tel: 407-321-1169, E-mail: nyirish2@aol.com
Jennifer is looking for someone to help coordinate the group.
Vero Beach
RSD Support Group of the Treasure Coast
Phone Support Only - 10 am to 10 pm
Contact: Liz Radloff
RSDSA Registration Number: 2118
Tel: 772.778.2777, E-mail: Lizrsd1@comcast.net
Winter Haven
Contact: Barbara
E-mail: rsdcareintl@aol.com
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Georgia
Atlanta
New Group
Contact: Lucille
Tel: 770.252.4665, E-mail: a80wife@aol.com
Rome
New Group
Contact: Felechia
Tel: 678.685.4429, E-mail: feliceshreewil2@msn.com
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Hawaii
Kailua-Kona
RSDS|CRPS Association of Hawaii RSDSA
Contact: Tina Mohr, LMT
73-4787 Halolani St. Kailua-Kona, HI 96740
Cell: 808.960.0918, Fax: 808.325.0370, E-mail: tina@protourhawaii.com
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Idaho
Contact: Gina Hyc
RSDSA Registration Number: 18021
1936 North Sparkling Place, Meridian, Idaho 84646
Tel: 208-409-2433. Email: ginahyc@gmail.com
Facebook group CRPS +boise idaho
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Illinois
Elk Grove Village
Illinois RSDS Association
Meets 2nd Sunday, 2 to 4 pm
Conference Rooms 1 & 2
Alexian Brothers Hospital, 800 Biesterfield Rd.
Contact: Edwina Schaeffer
RSDSA Registration Number: 3486
Tel: 630.665.0717, E-mail: edwinaschaeffer@sbcglobal.net or
Contact: Tim Groark
Tel: 773.582.8051, E-mail: frogy3@msn.com
Hinsdale
Meets 3rd Sunday, 2 to 4 pm
Lincoln Room, Adventist Hinsdale Hospital
120 Oak Street, Hinsdale, IL 60521
Contact: Edwina Schaeffer
RSDSA Registration Number: 3486
Tel: 630.665.0717, E-mail: edwinaschaeffer@sbcglogal.net or
Contact: Tim Groark
Tel: 773.582.8051, E-mail: frogy3@msn.com
Hinsdale
Meeting for Children with RSD
Meets 1st Sunday, 2 to 4 pm
Adventist Hinsdale Hospital
120 Oak Street, Hinsdale, IL 60521
Contact: Edwina Schaeffer
RSDSA Registration Number: 3486
Tel: 630.665.0717, E-mail: edwinaschaeffer@sbcglogal.net or
Contact: Tim Groark
Tel: 773.582.8051, E-mail: frogy3@msn.com
Rockford
Meets 2nd Monday of month, 10 to 11:30 am
Swedish American Hospital, 4th Floor
Rockford, Illinois
Contact: Beth Moore
Tel: 815.247.8885, E-mail: bethmoore35@hotmail.com
Round Lake
Pain Specialists of Greater Chicago
Contact: Joy Thornborough
604 Nippersink Ave, Round Lake, 60073
Tel: 847.201.8957, E-mail: joy2u4ever@yahoo.com, Website: www.painchicago.com
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Indiana
Evansville
New Group
Contact: John Chivalier, Jr.
RSDSA Registration Number: 16767
Tel: 812.303.5788, E-mail: j_chivalierjr@yahoo.com
Fort Wayne
Meetings and phone support. Call for meeting information.
Contact: Mara
RSDSA Registration Number: 14286
Tel: 800.728.2425, E-Mail: askmara@gmail.com
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Iowa
Decorah
St. Benedict's Parish Offices. Please Call to Register.
Contact: Eva, Tel: 563.380.6672, or
Contract: Carol, Tel: 563.380.7888
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Kansas
KC Metro Area
Entire Area
KC RSD/CRPS Support Group
Online, Phone, and Group Meetings.
Meets 1st and 3rd Tuesdays 7-9 PM
Contact: Lisa Coan
RSDSA Registration Number: 10829
Tel:816.326.7111 (10:00 am to 10:00 pm CST)
E-mail: lisakcoan@yahoo.com, or RSDKCLisa@aim.com
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Kentucky
Burlington
Northern Kentucky RSD Chapter
Contact: Alyce F. Rowland
Northern Kentucky RSD Chapter
PO Box 667, Burlington, KY 41005
Tel: 859-586-6180 (If no answer, call 859-743-8204)
E-mail: lifewrsd@aol.com
Deane
Contact: Desta Slone
RSDSA Registration Number: 2761
PO Box 108, Deane KY 41812
Tel: 606.447.2393, E-mail: rsds@hotmail.com
Leitchfield
South Central KY RSD Support Group
Meets 1st Tuesday, 1 pm CT
Lobby of Twin Lakes Regional Hospital
Leitchfield, KY 42754
Contact: Carolyn Clemons
RSDSA Registration Number: 500
345 Hopewell Rd., Caneyville, KY 42721
Tel: 270.879.4023, E-mail: cpc345@windstream.net
Louisville
Contact: Carol Dever
RSDSA Registration Number: 12871
Tel: 502.314.2049, E-mail: edever34@aol.com
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Louisiana
Monroe
Telephone, Texting, and E-mail
Contact: Debbie
RSDSA Registration Number: 5575
Tel: 318.387.9645, E-mail: ducotedm@bellsouth.net
New Orleans/Kenner
Trying to start a face-to-face group
Contact: Kim Gaudet
RSDSA Registration Number: 12257
Tel: 504-712-6928, E-mail: kbellawithrsd@yahoo.com
Shreveport
New Group
Contact: Jerry Pond
RSDSA Registration Number: 14761
Tel: 318.222.5573, E-mail:jpond@bellsouth.net
Sunset
New Group
Available via telephone and and to chat monthly
Contact: Lisa Begnaud Courvelle
RSDSA Registration Number: 17677
Cell: 337.290.5818
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Maine
Harrison
American RSDHope
Contact: Lynne Orsini or Karen Toner
RSDSA Registration Number: 244
Tel: 207.583.4589, Website: www.rsdhope.org
Southern Maine
Chronic Pain Support Group
Meets 1st and 3rd Thursdays, 6:00 to 7:30 pm
The Pines, 10 Manor St.,Old Orchard Beach, ME
Contact: Evelyn, Tel: 207.937.5020, or
Contact: Jane, Tel: 207.934.4189
E-mail: supportgroupinfo@gwi.net
Website: www.painsupportgroup.org
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Maryland
Baltimore
E-mail support only
Contact: Nancy Carp
RSDSA Registration Number: 1756
E-mail: imnancee@verizon.net
State-wide
RSDS Support Group of Southern Maryland Hospital Ctr
Meetings - (call for dates)
Contact: Tony Powell
RSDSA Registration Number: 17731
Tel: 301.645.0786
E-mail: tracy_powell@comcast.net
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Massachusetts
Arlington
Arlington Chapter of the American Chronic Pain Association
Meetings are free and open to anyone living with chronic pain.
Meets 2nd Friday, 11:00 am to 12:30 pm
Arlington Robbins (main) Library
700 Mass Ave.
In the ground floor Community Room
Click here for a Meeting Schedule
Contact: Cindy Steinberg
RSDSA Registration Number: 13820
E-mail: leader@arlingtonacpa.org
Mansfield
Phone support (Call between 11:00 am and 5:00 pm)
Contact: Lisa Shea
Tel: 508.339.6064, E-mail:lisanashshea@yahoo.com
Weymouth
Meets 4th Tuesday, 5 to 7 pm
South Shore Hospital, Center 2 Classroom
Contact: Carol Sansone
Tel: 781.340.8352
Worcester
New England RSD Coalition
Phone Support Only
Contact: Mary LaBree
RSDSA Registration Number: 15609
Tel: 508.595.0207
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Michigan
Ann Arbor Area
RSD in Motion: Ann Arbor Area Support Group for Reflex Sympathetic Dystrophy and Complex Regional Pain Syndrome.
Click here for complete information
Babysitting will be available during every support group meeting for the next few months! A sitter will be available, free of charge, please contact Jordan if you're interested with what night, how many, and their ages. A babysitter will not be at the group if no one contacts me with this need.
Contact: Jordan Keen
E-mail: a2rsdcrps@gmail.com
Detroit
Southeastern Michigan CRPS
Meets last Friday, 6 to 8 pm
People Community Church, 8601 Woodward Ave
Contact: Jannie White
RSDSA Registration Number: 6810
Tel: 313.861.6791, (1 to 6 pm)
E-mail: janniewhite@att.net
Grand Rapids
RSDS Support Group of Grand Rapids
Contact: Sherry and Cliff Mulder
1259 Diamond NE, Grand Rapids, MI 49505,
RSDSA Registration Number: 2598
Tel: 616.364.4014
Contact:Jean Arp
2446 Eden, SW, Wyoming, MI 49509
Tel: 616. 534.9281
Lake Superior
Ron is starting a new group and would love to connect with others nearby.
Contact: Ron Halsey
RSDSA Registration Number: 12864
Tel: 906.273.0527, E-mail: mari.maverick@hotmail.com
Parchment
Parchment Community Library
401 S Riverview Dr, Parchment, MI 49004
Library, Tel: 269.343.7747
Contact: Colleen
RSDSA Registration Number: 1420
Tel: 269.381.2283, E-mail: colleen.westra@chartermi.net
Republic
Hands Helping Hands
Mail or Phone Support ONLY
Contact: Patti Truckey,
RSDSA Registration Number: 2606
Address: PO Box 680, Republic MI 49879
Tel: 906.376.8464, E-mail: painiacs@yahoo.com
Sanford
RSD Group of Midland
Meets Thursdays, 9:00 am
Lanny's Restaurant
Contact: Paul and Marge Allen
Address: 826 W. Olsen Rd., Sanford, MI 48657-9630
Tel: 989.835.1766, E-mail: Cocoapaul70@wmconnect.com
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Minnesota
Twin Cities South
Minnesota RSD Support Group
Open to everyone with CRPS, affected by or interested in learning about RSD/CRPS
Meets 4th Saturday, 10:15 am to noon
Savage Public Library
13090 Alabama Ave. S, Savage, MN
Contact: Bonnie Scherer
RSDSA Registration Number: 4932
E-mail: rsdsmn@aol.com
Website: http://www.rsdmn.org
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Mississippi
Brandon
Cajunbabe & Co
CRPS/RSD Support Group
Telephone, E-mail or Facebook Only Support, from 8am - 5 pm
Contact: Michele Breaux-Poff
RSDSA Registration Number: 18075
Tel: 601.899.2632, E-mail: msrsdcajunbabe@yahoo.com
South Haven
Midsouth RSDS Support Group
Phone Support
Contact: Linda Adams
Address: 1096 W.E. Ross Parkway West
South Haven, MS 38671
Tel: 901.473.9559
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Missouri
KC Metro Area
Entire Area
KC RSD/CRPS Support Group
Online, Phone, and Group Meetings.
Group Meeting at St. Joseph Medical Center
I-435 and State Line Road
Community Center – Building "D"
Kansas City, MO
Meets 1st and 3rd Tuesday Evenings of the Month, 7-9 PM
Contact: Lisa Coan
RSDSA Registration Number: 10829
Tel: 816-326-7111 (10:00 am to 10:00 pm CST)
E-mail: kcchronicpain@yahoo.com lisakcoan@yahoo.com
St. Louis
St. Louis Chronic Pain Support Group
We offer peer to peer and guest speaker meetings in the St. Louis area.
For more information, please visit our website www.stlpainsupport.com
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Montana
There are currently no support groups in Montana. Check surrounding states for support groups: Idaho, North Dakota, South Dakota, Wyoming
Find an online support group here.
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Nebraska
Omaha
Mother of a young daughter with CRPS would like to help others successfully navigate the school & healthcare systems
Contact: Jackie Scott
RSDSA Registration Number: 6757
Tel: 402.213.8667, E-mail: hrmanager@libertytaxne.com
Fremont
Fremont RSD Awareness
Meets 3rd Tuesday, 7 pm
Connie's House - If no one is home to answer, please leave a message.
Contact: Connie
RSDSA Registration Number: 6229
Tel: 402.753.3054, Cell: 402.708.1694
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Nevada
Carson City
Chronic Pain Anonymous 12-Step Meeting
Chronic Pain Anonymous is a 12-Step fellowship of men and women who share their experience, strength and hope with each other so that they may solve their common problem and to help others recover from chronic pain and chronic illness. The only requirement for membership in CPA is a desire to recover from the emotional, physical, and spiritual debilitation of chronic pain and chronic illness and a willingness to help others to do the same.
Saturdays, 12 pm
BHS Carson Tahoe Regional Health Care, Building B
W Williams St at N Minnesota Rd, Carson City, NV 89702
Contact: Chuck
E-mail: aaforeme@gmail.com
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New Hampshire
Manchester
Sundays, 4:30 pm
Meeting at Hall of Our Lady of the Cedars Church
140 Mitchell Street, (on the corner of Mitchell St and Calef Rd)
Manchester, NH 03103
Contact: Cora Ouellette
RSDSA Registration Number: 14928
Tel: 603.703.7152, E-mail: coraouellette@comcast.net
Spofford
New Group
Contact: Debbie Fisher
RSDSA Registration Number: 13192
Tel: 603.363.4569, E-mail: dafisher@myfairpoint.net
State-wide
New Hampshire RSD Coalition
Phone support only
Contact: Doreen McCullough
RSDSA Registration Number: 16933
Tel: 603.656.9044, E-mail: rav29@comcast.net
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New Jersey
Atlantic County
South Jersey Reflex Sympathetic Dystrophy Group
Atlantic County Library
Anyone with chronic pain is welcome to attend. I am also looking for volunteers. If you would like to help with the group, or for more information, please contact Meloney.
Contact: Meloney Hulse
RSDSA Registration Number: 15273
Tel: 609.625.4677, E-mail: rsdangel15@aol.com
Berlin
E-mail Support Only
Contact: Linda Sobolewski
79 Roosevelt Blvd., Berlin, NJ 08009
E-mail: rinebird@juno.com
Hoboken
New Group, contact Kurt for details.
In the Hudson County / NYC area (One 7-minute subway ride from Manhattan, and there are ferries and cabs available)
Contact: Kurt Bond
RSDSA Registration Number: 13298
Tel: 973.568.8078, E-mail: wipmm@optonline.net
Mt. Holly
RSD and Chronic Pain Support Group
Meets 3rd Wednesday, 7 pm
Virtua Hospital
Contact: Kathy Henson
Tel: 609.268.1565
Mt. Laurel
RSD & Chronic Pain Support Group of Mt. Laurel
Meets 4th Tuesday, 7:00 pm
YMCA of Burlington County
59 Centerton Rd., Mt. Laurel
Contact: Lisa Anne Vasey, Chairman
RSDSA Registration Number: 8606
Tel: 609.877.0213, E-mail: lisav1@live.com
Paterson
RSD and You Group of Northern NJ, Inc.
Meets 4th Tuesday, 7:00 pm
St. Joseph's Hospital, Barclay Room
703 Main St, Paterson
Contact: Jaclyn Drake
RSDSA Registration Number: 6933
Tel: 201.704.0963, E-mail: jaci81@optonline.net
Somerville
Living with RSDS, Inc.
Meets 1st Tuesday, 7 to 9 pm
Somerset Medical Center
The meeting is open to anyone with RSDS, family, friends, professionals, and others with chronic pain.
Contact: Sharon Weiner
RSDSA Registration Number: 3683
Address: 421 Courtyard Drive, Hillsborough, NJ 08844
Tel: 908.575.RSDS, Cell: 732.718.6978
E-mail: slweiner@hotmail.com, Website: livingwithrsds.com
Southern Ocean County
New Group
Robin Weiss is interested in starting an ongoing chronic pain support group. Please contact if interested.
Contact: Robin Weiss
RSDSA Registration Number: 17366
Tel: 609.978.7322, E-mail: sedona.solice@yahoo.com
Vernon
Contact: Tracey Vicedomini
RSDSA Registration Number: 10741
Tel: 973.823.0936, E-mail: Top of Page
New Mexico
Albuquerque and Las Cruces
Phone Support
Contact: Anna Montoya, RN
RSDSA Registration Number: 10779
Tel: 915.490.0084 or 505.503.1967
E-mail: mother1959@gmail.com
Albuquerque
Phone support and quarterly meetings
Contact: Daniel Sampson
Tel: 505.315.1639, E-mail: eaglemaster89@hotmail.com
Los Alamos
Contact: Hazel Devreis
Address: 119 Sherwood Blvd., Los Alamos, NM 87544
Tel: 505.672.4112
Las Cruces
Marcella wants to start a support group!
Contact: Marcella
RSDSA Registration Number: 17519
Tel: 575-312-0650. E-mail: marselgui@yahoo.com
Santa Fe
Contact: Nancy Boal
RSDSA Registration Number: 4123
Address: 59 Sunlit Dr, Santa Fe, NM 87505
Tel: 505.983.3036
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New York
Bellmore
CRPS (RSD) Association of NY State
Contact: Marsha Rothstein-Laino, RN
RSDSA Registration Number: 12956
Tel: 516.221.7220, E-mail: MarshaTheNurse@gmail.com
Binghampton
Chronic Support Group
Meets 2nd and 4th Tuesday, 10:00 am to 12 pm
Bridgewater Nursing Home, Front St, Binghamton, NY
Contact: Corky Mott
Address: 1 Grove Street, Windsor, NY 13865
RSDSA Registration Number: 20429
Tel: 607.655.2167, E-mail: dancork@echoes.net
Buffalo
RSD/CRPS Support Group of Buffalo & WNY
Meets 4th Monday, 7 pm, and 2nd Thursday, 10 am
St. Paul's Lutheran Church
4007 Main St. (1.5 blocks east of Eggert Rd), Eggertsville, NY
Contact: Lynda
RSDSA Registration Number: 20175
Tel: 716.896.0771
E-mail: rosieo335@yahoo.com
Claverack
New Group
Contact: Julie
Tel: 518.851.2265, E-mail: Magic41julie@yahoo.com
Manhattan
All meetings will be held on the first week of the month.
200 East 81st, Apt.. 8B, New York, NY, 10028 (b/w 2nd and 3rd Ave.)
Please RSVP beforehand so that we have the proper accommodations
Contact: Laura
RSDSA Registration Number: 2888
E-mail: laurakbelt@gmail.com
Middletown
Meets 1st and 3rd Thursday
Contact: Susan Shafer
Address: PO Box 595, Otisville, NY 10963
Tel: 845.412.5356, E-mail: eshafer@hvc.rr.com
St. Lawrence Valley
St. Lawrence Valley RSD Support Group
Phone Support only
Contact: Joanne M. Thompson, RN
Tel: 315.394.9744, E-mail: jthomsom@twcny.rr.com
Suffolk County
Meets 1st Friday, 12:00 pm to 1:30 pm
Contact: Debbie Huberman
RSDSA Registration Number: 8533
Tel: 631.563.4856
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North Carolina
Hillsborough
Tarheel Telephone Support
Phone and mail support
Contact: Beth Robinson
Address: 100 New Sharon Church Rd., Hillsborough, NC 27278
Tel: 919.643.0383, E-mail: tarheelgal1@embarqmail.com
Raleigh
Triangle Pain Support
This group is just beginning and the first meeting will be held on Wednesday February 9, 2011 at 7 pm
Contact:Stacy Josephson
RSDSA Registration Number: 16684
Tel: 919-559-0240; E-mail: TrianglePS@yahoo.com
A website www.TrianglePainSupport.org is being developed,
Salisbury
Meets 2nd Monday, 7 pm
Rowan Regional Medical Center
Contact: Donna
Tel: 704.637.1021
Shiloh
Camden County
Support will be available via E-mail, Phone & Skype initially, no face-to-face meetings will be planned or scheduled until after the holiday season.
Contact: Samantha Adcock
RSDSA Registration Number: 16914
Tel: (252) 336-4462, E-mail: nccrpsrsd@gmail.com
Skype: Samantha.M.Adcock
Website: https://sites.google.com/site/nccrpsrsda/ (under development)
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North Dakota
Grand Forks
Contact: Shana
RSDSA Registration Number: 6591
Tel: 701.741.0073, E-mail: Pray4acure@gmail.com
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Ohio
Cincinnati
RSD Painfree
Meets 3rd Wednesday, 7:00 pm to 8:30 pm
Pleasant Ridge Recreation Center, The Blue Room
5915 Ridge Rd., Cincinnati, Ohio 45213
Please show some love and support and let's make this happen for southwest Ohio. E-mail us if you would be interested in attending this group.
Contact: Cyndi and Patrick Ellis
E-mail: RSD180painfree@gmail.com
Cuyahoga Falls
Meets 1st and 3rd Tuesdays
Auditorium #1, Falls General Hospital, 1900 23rd Street,Cuyahoga Falls, OH
Contact: Circclerk@core.com
Cleveland
Phone and mail support
Contact: Georgette Bell
Address: 17909 Rosecliffe Rd., Cleveland, OH 44119
Tel: 216.481.2802
Contact: Rich Forentball
Address: 17904 Brazil Rd., Cleveland, OH 44119
Columbus
Phone Support Only
Contact: Thomas Stevens
RSDSA Registration Number: 17427
Tel: 614-991-5848 (h), 661-852-8173 (cell)
Columbus Ohio RSD/CRPS
Meeting will be TBA
Doctors Hospital
5100 West Broad St, Columbus, OH 43228
Contact: Aubrey Morris
RSDSA Registration Number: 21257
Tel: 614.354.1514
E-mail: aubreylynnrn@yahoo.com
Ohio RSD/CRPS Support Group
This is a Face Book chat group. The group is a closed group, you must join the group.
Chat meetings are the 2nd and 4th Tuesday of every month at 4 pm. The chat function has both audio/video capabilities and members can post or chat with each other 24/7.
Contact: Susan Diamond
RSDSA Registration Number: 10571
Tel: 614.805.4239
FaceBook: http://www.facebook.com/#!/groups/101736519891622/
E-mail: sediamond57@yahoo.com
Dayton and Vandalia
Phone support
Contact: Cindy Lowe
RSDSA Registration Number: 2480
Tel: 937.898.1807
Lorain County
Online, e-mail, telephone, support group meetings, and snail mail support is offered.
Meets 4th Saturday, Location varies each month.
Contact: Jessica Jacobs
Tel: 440.822.7779
E-mail: jljacobs1976@live.com
Milford
Phone Support 24/7
Contact: Mark Guy
RSDSA Registration Number: 13352
Address: 6041 Bridgehaven Dr, Milford, Ohio 45150
Tel: 513.831.1525, Cell: 513.659.3626, Fax: 513.831.1625
E-mail: markguy@cinci.rr.com
Seville
New Support Group
Contact: Wendy High, PN
RSDSA Registration Number: 16851
Tel: 330.931.9822
E-mail: momoffatigue@yahoo.com
Warren/Youngtown
Northeast RSD Support Organization
Meets 2nd and 4th Tuesday
Contact: Sandi Gabriele
Address: 145 Terrace Drive, Youngstown, OH 44512-1630
Tel: 330.788.1186
E-mail: rsdohio1@zoominternet.net
Warren
Mahoning Valley CRPS-RSDS Support Group
Meets 4th Tuesday, from 6:30 to 8 pm
(Call for location or leave name and number we will call you right back.)
Contact: Cindi Horkey
RSDSA Registration Number: 328
Tel: 330.469.5735 or 330.979.2359
E-mail: CindiHorkey626@aol.com, cindihorkey@yahoo.com
Or Contact: Carol Polan, Tel: 330.609.5028
State-wide
RSD of North West Ohio
Contact: Anita Boyer
RSDSA Registratin Number: 15679
E-mail: rsdsupport@accesstoledo.com
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Oklahoma
Oklahoma City
Oklahoma RSD/CRPS Support
Cimmaron Steak House. View website for more information.
Contact: Tracy Jones
E-mail: jonestra@yahoo.com, Website:oklahomarsdcrpssupport.com
Ponca City
Phone support only
Contact: Vonda Goad,
Tel: 918.738.4193
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Oregon
Grants Pass
Phone Support
Contact: Nomeca Hartwell
Grants Pass, OR 97526
Tel: 541.474.3025
Portland
Phone Support
Contact: Susanne Geraghty
10719 S.W. 62nd Dr., Portland, OR 97219,
Tel: 503.293.0748
Portland
Phone support
Contact: Federico Aquino
Tel:503.890.7959, E-mail: tainomaya@msn.com
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Pennsylvania
ABE Lehigh Valley Area Support Group
Lehigh Valley RSD/CRPS Support group
Meet the first Saturday of Sept, Oct, Nov, Dec, March, April, May, and June, except on holiday weekends, then 2nd Saturday of month. 1:30-3:30 pm.
Location: Sacred Heart Hospital
421 Chew St., Between 4th and 5th, Allentown, PA
Contact: Patti O'Donnell or Sandy Mangini
RSDSA Registration Number: 4821/20114
Tel: 610.865.3399
E-mail: lvrsdcrps@gmail.com
Website:www.lvrsdsupport.com
Allentown
Northeastern PA RSDS Association
Meets Monthly
2845 Tilghman St., Allentown, PA 18104
Contact: Rae Lynne Tuffiash
1040 Whitman St., Allentown, PA 18104
Tel: 610.395.0385, rsdmail@aol.com
Mrs. Daisy Bittner, 3638 E. Grant St.
Slatington, PA 18080
Allentown-Lehigh Valley
Compassionate Friends Network for RSD/CRPS and Fibromyalgia
To join this free informational and educational network, please e-mail your first and last name, address, and telephone number. This is a confidential list which will only be used to contact you for meetings, events, and mailings.
If anyone would like to volunteer their time to be part of this network, please state in your e-mail.
Contact: Paula Thibault
E-mail:lvrsd99@msn.com
Breinigsville
RSD/CRPS Support Network (by phone or will visit in your home)
Contact: Mrs. Peggy H. Grim, 8907 Breinig Run Cir., Breinigsville, PA 18031
Tel: 610.530.7346, E-mail:kellie1@ptd.net
Website: www.rsdsupportnetwork.wordpress.com
Canton
Lycoming County RSD Support Group
Meets monthly
Divine Providence Hospital
(Private dining room basement)
Contact: A. J. Moyer,
2 Carlton St.,
Canton, PA 17724,
Tel: 570.673.5548, ajmoyer@sosbbs.com
Chambersburg
Phone and Mail support only
Contact: Paula Brown,
174 Highland Rd.,
North Guilford Hills,
Chambersburg, PA 17201,
Tel: 717.267.1808
Downingtown-Exton
Coming soon!
Contact: Sheree
Tel: 610-857-5934
Erie
Northwestern PA RSDS Assn. Support Group
Meets 2nd Tuesday from 6 to 8 pm, June, July, August, September, October, Dinner in November
Location: Hamot Heart Institute, Erie, PA
Contact: Tanya Schrader
1316 West 22, Erie, PA 16502
Tel: 814.873.1564
E-mail: northwesternrsdsa@yahoo.com
Green Castle
Contact: Cindy
717-262-8839
cindyburberner@aol.com
This group is just beginning in September 2011!
Honey Brook
Tri-County Chronic Pain Support Group
71 Wagon Way,
Honey Brook, PA
Meets 1st and 3rd Tuesday,
11:00 am to 1:00 pm
Honey Brook Presbyterian Church,
Rte. 322, Honey Brook, PA
Contact: Craig Collier,
Tel: 610.286.5728, or
Georgann Geedey,
Tel: 610.273.3163
Indiana
Meets 3rd
Thursday, 6:00 pm to 7:00 pm
Indiana Regional Medical Center, Indiana PA
Contact:
Jamie Brown, Tel: 724.599.8341, zoiemae@msn.com, or Mrs. N.J. King (hospital contact), Tel:
724.357.8135
Johnstown
Support Group for Complex Regional Pain Syndrome
John P. Murtha Neuroscience and Pain Institute,
1450 Scalp Ave,
Johnstown
For meeting times, please call Lori Murphy.
Contact: Vicki Walker,
Tel: 814.410.3301, csiwalker@atlanticbb.net, or Lori Murphy,
Tel: 814.269.5238
Lewisburg
Meets 1st Sunday, 3:00 pm
Evangelical Community Hospital
Contact: Jenny Dye,
Tel: 570.649.5061, jb_dye@yahoo.com
Monongahela
Monongahela Valley Support Group of Southwestern PA
Meets 2nd Tuesday
November to March: 11:00 am | April to October: 6:00 pm to 8:00 pm
Monongahela Valley Hospital,
Lombardi Conference/ Office Bldg.
Contact: Paulette Anderson,
Tel: 724.929.9492, panderson_15438@yahoo.com
N. Langhorn
This group is just starting
Contact Tess Shore
215-962-8876
tessshore@hotmail.com
Philadelphia
8-week therapy group for people with chronic pain (fee charged)
Contact: Sarah M. Whitman, MD,
18 Hilltop Road,
Philadelphia, PA 19118,
Tel: 267.265.2082
Scranton/Wilkes-Barre
Scranton/Wilkes-Barre PA Support group
Meets 3rd Saturday, 1:00 pm, in a conference room adjacent to the public cafeteria
Mercy Hospital: 746 Jefferson Avenue, Scranton, Pennsylvania
Group does not meet January and February. March meeting depends on the weather.
New members, family, and friends welcome.
Contact: Suzanne O'Toole,
Tel: 570.383.0578
(Call anytime), ScrantonRSDGroup@cs.com
Souderton
Montgomery County RSD Support Group
We will be starting meetings in late September-May.
Please contact for resources, support, and information.
Contact: Stephanie Maberry, Tel: 267.888.7559 (anytime), MontcoRSDsupport@verizon.net
State-wide
Pennsylvania RSD Coalition of Networks
Contact: Rae Lynne Tuffiash,
1040 Whitman St.,
Allentown, PA 18104,
Tel: 610.395.0385, rsdsmail@aol.com
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Rhode Island
Cumberland
RI RSD Foundation
Contact: Robert Hinton, 17 Lemieux Ave,
Cumberland, RI 02864; Tel: 401.533.2142 (cell); therhodeislandrsdfoundation@cox.net; http://www.rirsdfoundation.webs.com
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South Carolina
Greenville
South Carolina RSDS Association
Meets monthly
St. Francis Hospital Bernardine Center
Contact: Louise Plaster,
PO Box 72,
Simpsonville, SC 29681,
Tel: 864.967.7965,
Cell: 864.350.1342, scrsda1@aol.com, www.scrsda.org
Robert Schwartz, MD,
317 Francis Dr. #350,
Greenville, SC 29601,
Tel: 864.235.1834
Sumter
Support group meeting: 3rd Saturday of month, starting at 1:30pm
3785 Blackberry Lane, Lot 7, Sumter, SC 29154
Contact: Donna Parker
RSDSA Registration Number: 12636
Tel: 803.468.7627
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South Dakota
Aberdeen
Nina is interested in starting an in-person or online support group
Contact: Nina, profslota@yahoo.com
Statewide
E-mail and Telephone Support
Contact: Nicole, http://www.raftsafloat.com/contact-us.html
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Tennessee
Dayton
Contact: Ann Rector Fine,
2198 Maplesprings Rd,
Dayton, TN 37321, myredprix@aol.com
Eastern Tennessee/Loudon
Reflex Sympathetic Dystrophy & Chronic Pain Support Group Of Eastern Tennessee
Meeting at Christ Our Savior Lutheran Church
260 Wade Road, Loudon, TN
Meets Wednesday, 6 pm
Contact: Suzy Holcomb
RSDSA Registration Number: 1951
Tel: 865.657.9052, E-Mail: Suzy
Middle Tennessee
Middle Tennessee Support Group RSD
Looking to develop a local group for discussions and support, for RSD patients, and well spouses
Contact: Peter and Cherrie Albertson, patchythreads@aol.com
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Texas
Arlington
North Texas RSD/CRPS/MS Support Group
We have women and men in our group ranging in all ages! We meet in Arlington for any help or someone to talk with.
Contact: Connie Hughes
RSDSA Registration Number: 3883
Tel: 817.465.1585, E-mail: texanblue24@gmail.com or;
Contact: Randy Jarvis
RSDSA Registration Number: 18734
Tel: 817.721.1335, E-mail: texanblue24@gmail.com
Big Spring
New group
Contact: Krinkle and Debbie
Tel: 432.935.6278, krinkle102@suddenlink.net, or
Lucy, Tel: 432.264.1213, or
Tina, Tel: 432.267.1883
Dallas
New group
Contact: Antoine Beachum,
Tel: 214.714.5381
El Paso
Phone Support
Contact: Anna Montoya, RN,
7320 Duxbury Dr.,
El Paso, TX 79912,
Tel: 915.833.3668,
Fax: 915.845.3011, mother59@excite.com
Houston
This group is just beginning and is seeking individuals to assist in coordination.
If interested, please contact Denise.
Contact: Denise,
Tel: 936.336.0800, cleo1406@yahoo.com
Plano
Telephone and E-mail Support Only
Contact: Vickie Thoma
RSDSA Registration Number: 4443
Tel: 972.625.8140
E-mail: rsd2crps@yahoo.com
San Antonio
New Group
Contact: Contact: LuAnn
Tel: 210-253-9119
E-mail: thevanerpots@yahoo.com
Western Texas
Phone Support
Contact: Anna Montoya, RN,
PO Box 203,
Santa Teresa, NM 88008,
Tel: 915.490.0084,
Tel: 505.503.1967, montoya59@comcast.net, mother1959@hotmail.com
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Utah
There are currently no support groups in Utah.
Check surrounding states for support groups: Arizona, Colorado, Idaho, Nevada, New Mexico, Wyoming
Find an online support group here.
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Vermont
There are currently no support groups in Vermont.
Check surrounding states for support groups: Massachusetts, New Hampshire, New York
Find an online support group here.
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Virginia
Chantilly
Washington DC RSD Awareness / Support Group
Sully Government Center
4900 Stonecroft Blvd., Chantilly, VA
1st Meeting starts in May
3rd Saturday of the month, from 9 - 11 am
Contact: Lori Nelson
RSDSA Registration Number: 19758
Tel: 703.608.3903, E-mail: lorin4@verizon.net
Peninsula
Friends Living with RSD/CRPS
Contact: Erin Dasher for more information on meeting dates and times
Tel: 757.634.9162, E-mail: wmbg_rsdsupport@hotmail.com or erindasher@cox.net
Richmond
Virginia RSD Association
Summer: Twice monthly | Winter: Once monthly
Sheltering Arms Hospital
Contact: Virginia Porter
9770 Osborne Landing, Richmond, VA 23231
Tel: 804.795.5343, E-mail: rsdinva@aol.com
Virginia Beach
Meets 3rd Tuesday, 11:00 am to 1:00 pm
Contact: Debbie Holt
Tel: 757.737.1379, E-mail: debzhi@aol.com
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Washington
Yakima
Hope 4 Pain
Phone Support Only
Contact: Carol
Tel: 509.823.4443, E-mail: beaglebabe@charter.net
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West Virginia
Barboursville
Contact: Deb Noble, Tel: 301-641-8092
deweynobleii@yahoo.com
Clarksburg
New Group
Contact: Debbie,
Tel: 304.641.8092
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Wisconsin
Greenbay
RSDS Hope of Wisconsin, Inc., of Greenbay
Meetings will start again in September, more information coming soon.
Contact: Jean Dax
Tel: 920.655.8996
E-mail: jdax@centurytel.net
Greendale
Phone Support Only
If Beverly doesn't answer please leave your telephone number and she will return your call.
Contact: Beverly Kitzke
RSDSA Registration Number: 3363
Tel: 414.421.4536
Milwaukee
Midwest CRPS Support
Coming Soon, Please visit the website for more information at midwestcrpssupport.org
Contact: Mia DeFino
RSDSA Registration Number: 20023
Tel: 414.690.9252
E-mail: mcdefino@gmail.com
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Wyoming
There are currently no support groups in Wyoming.
Check surrounding states for support groups: Colorado, Idaho, Montana, Nebraska, South Dakota, Utah. Find an online support group here.
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Puerto Rico
Grupo de apoyo Puerto Rico RSD/CRPS
Contact: Mariamgelis Rivera
(Tel: 787.597.2590, Facebook)
Jeanette Rodriguez (Tel: 787.309.3937, Facebook), www.puertoricorsd.blogspot.com, Facebook Group (Grupo de apoyo Puerto Rico RSD/CRPS), Twitter, Firstgiving.com
Adviser on Public Relations for Patients in Puerto Rico and APF Leader Action Network Puerto Rico helping to promote Awareness. If you want advice, help to be part of a support group, or to create one in your area, contact me.
Contact: Yazmin Michelle, Tel: 787.617.0333, puertoricochallengersd@live.com, Facebook Group (Puerto Rico Challenge RSD/CRPS), Twitter, Facebook/Yazmin Michelle, Firstgiving
Volunteer support member of www.fundacionfer.org, organization organized by a rheumatologist to help people in pain.
International
Scotland
Dundee
New support group open to anyone with CRPS or who knows someone with CRPS
For more information on meetings visit their website: www.livingwithcrps.org
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