X Close

This hyperlink will direct you to a non-governmental Website or application.

The appearance of external hyperlinks does not constitute endorsement by the United States Department of Health & Human Services (HHS) of the hyperlinked Website or application, or the information, products or services contained therein. Such hyperlinks are provided consistent with the intended purpose of this HHS Website. Visitors to the hyperlinked Website or application will be subject to the Website or application's privacy policies. These practices may be different than those of this HHS Website.

You will be redirected to: link

We Support a Healthier Future - Healthy People 2020

Office of Rare Diseases Research, National Institutes of Health - ORDR

Organization URL(s)

ordr@od.nih.gov
rarediseases.info.nih.gov/

Other Contact Information

6100 Executive Boulevard
Room 3A07, MSC 7518
Bethesda, MD 20892-7518

301-402-4336 (Voice)
301-480-9655 (FAX)

Description

The Office of Rare Diseases Research (ORDR) was established in 1993 within the Office of the Director of the National Institutes of Health (NIH), the Federal focal point for biomedical research. ORDR coordinates and supports rare diseases research, responds to research opportunities for rare diseases, and provides information on rare diseases. Public Law 107-280, the Rare Diseases Act of 2002, established the ORDR by statute. The goals of ORDR are to stimulate and coordinate research on rare diseases and to support research to respond to the needs of patients who have any one of the more than 7,000 rare diseases known today.

Online Resources

Genetic Testing: How it is Used for Healthcare
http://rarediseases.info.nih.gov/files/genetictesting.pdf

Print Resources

To receive periodic updates and important news items from ORDR, send your request to ordr@od.nih.gov and include contact name, organization name (if applicable), and email address.