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NIH State-of-the-Science Conference:
Family History and
Improving Health
August 24-26, 2009
Bethesda, Maryland
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Final Statement |
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Evidence Report
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Agenda
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National Human Genome Research Institute
Office of Medical Applications of Research
Co-Sponsors
Eunice Kennedy Shriver National Institute of Child Health and Human Development
National Cancer Institute
National Heart, Lung, and Blood Institute
National Institute of Alcohol Abuse and Alcoholism
National Institute on Drug Abuse
National Institute of Mental Health
National Institute of Nursing Research
National Library of Medicine
Office of Rare Diseases Research
Office of Research on Women's Health
Partners
Centers for Disease Control and Prevention
Health Resources and Services Administration
Office of the Surgeon General
The Agency for Healthcare Research and Quality provided additional conference development support.
Special Thanks
NIH Library
Monday, August 24, 2009
8:30 a.m. | Introduction |
8:35 a.m. | Opening Remarks |
8:40 a.m. | Charge to the Panel Jennifer Miller Croswell, M.D. Acting Director Office of Medical Applications of Research Office of the Director National Institutes of Health |
8:50 a.m. | Conference Overview and Panel Activities Alfred O. Berg, M.D., M.P.H. Panel and Conference Chairperson Professor and Chair Department of Family Medicine University of Washington |
9:00 a.m. | Family History, Personalized Medicine, Primary Care and Improved Health Muin Khoury, M.D., Ph.D. Director National Office of Public Health Genomics Centers for Disease Control and Prevention |
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9:20 a.m. | Evidence-Based Practice Center Presentation I: A Summary of the Evidence of Family History as a Determinant of Risk for Common Disorders Affecting Pediatric and Adult Populations Brenda Wilson, M.B.Ch.B, M.Sc., M.R.C.P. (UK), F.F.P.H. Associate Professor Department of Epidemiology and Community Medicine University of Ottawa |
9:40 a.m. | Discussion |
10:00 a.m. | Family History as a Determinant of Risk for Chronic Disorders: Common Conditions and Beyond: I Maren T. Scheuner, M.D., M.P.H., FACMG Natural Scientist RAND Corporation |
10:20 a.m. | Family History as a Determinant of Risk for Chronic Disorders: Common Conditions and Beyond: II Paula Yoon, Sc.D., M.P.H. Division for Heart Disease and Stroke Prevention Centers for Disease Control and Prevention |
10:40 a.m. | Research Challenges in Assessing Risk With Family History |
11:00 a.m. | Discussion |
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11:30 a.m. | Evidence-Based Practice Center Presentation II: A Summary of the Evidence for the Accuracy of Self-Reporting Family History Across Different Diseases |
11:50 a.m. | Accuracy of Family History Information for Risk Assessment in Clinical Care Harvey J. Murff, M.D., M.P.H. Assistant Professor in Medicine Institute for Medicine and Public Health Vanderbilt University |
12:10 p.m. | Discussion |
12:30 p.m. | Lunch |
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1:30 p.m. | Evidence-Based Practice Center Presentation III: Does the Use of Family History as a Screening Tool in Primary Care Settings Improve Health Outcomes? A Synthesis of the Evidence Nadeem Qureshi, M.S., D.M., M.Sc. Clinical Associate Professor in Primary Care Division of Primary Care School of Graduate Entry Medicine and Health University of Nottingham Derby City General Hospital |
1:50 p.m. | Perspectives on the Utility of Family History as a Screening Tool: The CDC Family Healthcare Experience |
2:10 p.m. | Perspectives on the Utility of Family History as a Screening Tool: The Utah State Experience Ted Adams, Ph.D., M.P.H. Cardiovascular Genetics Research Program University of Utah |
2:30 p.m. | Discussion |
3:00 p.m. | Perspectives on the Utility of Family History as a Screening Tool in Pediatric Populations Ridgely Fisk Green, Ph.D., M.S.C. National Center on Birth Defects and Developmental Disabilities Centers for Disease Control and Prevention |
3:20 p.m. | Research Challenges in Demonstrating the Utility of Family History in Obstetrical and Pediatric Settings Siobhan Dolan, M.D., M.P.H. Associate Professor, Obstetrics and Gynecology Albert Einstein College of Medicine Montefiore Medical Center |
3:40 p.m. | Family History and Those Providing Care for Patients With Genetic Disorders: The Customer’s Perspective Sharon Terry, M.A. President and CEO Genetic Alliance |
4:00 p.m. | Research Challenges in Affecting Behavioral Change With Family History Information: Patients and Providers Colleen McBride, Ph.D. Chief, Social and Behavioral Research Branch National Human Genome Research Institute National Institutes of Health |
4:20 p.m. | Discussion |
5:00 p.m. | Adjournment |
Tuesday, August 25, 2009
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8:30 a.m. | The Potential Costs of Screening for Risk With Family History |
8:50 a.m. | Perspectives on the Clinical Applications of Family History as a Screening Tool Across Multiple Populations |
9:10 a.m. | Research Challenges in Assessing the Economic Costs of Using Family History as a Screening Tool in Primary Care Scott D. Ramsey, M.D., Ph.D. Associate Professor of Medicine and Health Services Associate Member, Cancer Prevention Research Program Division of General Internal Medicine Fred Hutchinson Cancer Research Center |
9:30 a.m. | Discussion |
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10:00 a.m. | A Summary of the Use of Family History in Primary Care From Across the Pond(s) Jon Emery, D.Phil., FRACGP Department of General Practice University of Western Australia |
10:20 a.m. | Family History and Healthcare: The Experience of the National Council of La Raza Liany E. Arroyo, M.P.H. Director, Institute for Hispanic Health National Council of La Raza |
10:40 a.m. | Health IT – Based Strategies For Studying The Use Of Family History In Primary Care Kevin S. Hughes, M.D., F.A.C.S. Surgical Director, Breast Screening Co-Director, Avon Comprehensive Breast Evaluation Center Massachusetts General Hospital |
11:00 a.m. | Reconsidering the Use of Family History in Primary Care Revisited Eugene C. Rich, M.D., F.A.C.P. Director Center for Practice Improvement and Outcomes Research Department of Medicine School of Medicine Creighton University |
11:20 a.m. | Discussion |
12:00 p.m. | Adjournment |
Wednesday, August 26, 2009
9:00 a.m. | Presentation of the Draft State-of-the-Science Statement |
9:30 a.m. | Public Discussion |
11:00 a.m. | Adjournment Panel Meets in Executive Session |
2:00 p.m. | Press Telebriefing |
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