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The Study of Neurofibroma Growth in Adults with NF1Overview: The Study of Neurofibroma Growth in Adults with NF1We invite you to join a research study of neurofibromatosis type 1 (NF1) in adults at the National Institutes of Health (NIH). We are trying to answer a simple question: In adults, how fast (or how slow) do skin neurofibromas grow? By answering this question, we hope to lay the groundwork for future trials of new drugs to control the growth of neurofibromas. We also hope to find genes that control the growth of neurofibromas in NF1. With this study, we are trying to learn how fast or slow neurofibromas grow, and how often they appear. We also are looking for the genes that control the growth rate of the tumors. The results of this study may help us design future trials to test new drugs to treat the tumors. If we can find genes that control the growth rate of the tumors, we hope to use those genes to predict the approximate number of tumors a person with NF1 might have. To find out more about The Study of Neurofibroma Growth in Adults with NF1 at the National Human Genome Research Institute (NHGRI), please explore the Study of Neurofibroma Growth in Adults web pages. Brochure for the Study of Neurofibroma Growth in Adults with NF1 Douglas R. Stewart, M.D. Contact InformationSarah Coombes, M.S., C.G.C. Top of page Last Updated: April 6, 2009 |
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