Traumatic Brain Injury in the United States:
The Future of Registries and Data Systems
In
response to the Children’s Health Act of 2000, the Centers for Disease
Control and Prevention (CDC) convened an expert panel of traumatic brain
injury (TBI) researchers, advocates, registry administrators, and
other professionals. The panel discussed the future of TBI registries
and data systems, providing guidance for CDC to develop a national
program.
This report, Traumatic Brain Injury in the United States: The Future
of Registries and Data Systems, summarizes the expert panel’s
recommendations, which include:
-
Funding more states
to collect, analyze, and report TBI surveillance data;
-
Using existing
national data sets to estimate the impact of TBI in the United
States; and
-
Enhancing systems
to identify and contact people with TBI and to link them with needed
services.
This report will help policy makers, researchers, advocates, public
health professionals, and health department officials further the
development of systems to collect data about people with TBI. These
advancements will help them better inform those with such injuries about
available services such as health care, employment training, and
personal assistance.
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