Information About Retinoblastoma
Retinoblastoma is a type of cancer that forms in the retina (the light-sensitive tissue at the back of the eye). The disease usually occurs in children younger than 5 years and may be in one eye or in both eyes. In some cases the disease is inherited from a parent.
Retinoblastoma is a serious, life-threatening disease. However, with early diagnosis and timely treatment, in most cases, a child's eyesight and life can be saved.
For detailed disease information, please see the retinoblastoma information page prepared by the National Cancer Institute.
The following organizations also provide information and support for families affected by retinoblastoma:
Institute for Families
P.O. Box 54700
Mail Stop 111
Los Angeles, CA 90054-0700
(323) 669-4649
http://www.instituteforfamilies.org
National Organization for Rare Disorders
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
1-800-999-6673
(203) 744-0100
(203) 797-9590 (TDD)
http://www.rarediseases.org
Retinoblastoma International
c/o Children's Hospital Los Angeles
4650 Sunset Boulevard MS #88
Los Angeles, CA 90027
(323)669-2299
http://www.retinoblastoma.net/