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 C.H.I.N. Affiliated
  Support Groups

United States

 

Connecticut
        Congenital Heart Defect Awareness, Inc
        1996 Hartford Tpk,
        North Haven, CT 06473
        203-234-1371
        Contact: Jeanne Imperati

Florida
        Angel's Pediatric Heart House
        151 N Nob Hill Rd. Suite 139
        Plantation,  FL 33324
        Contact: Sonia Perez
        Phone: 954-318-2020

Illinois
        T.O.U.C.H. 
        515 NE Glen Oak Ave. Suite 202
        Peoria, IL 61603
        Contact: Gail Eaton
        Phone: 309-655-2650

New York
        Children's Heart Fund
        One Gustave Levy Place
        PO Box 1201
        New York, NY 10029
        Contact: Suzanne Zimmerer
        Phone: 212-241-8668

Ohio
        C.H.I.N., Ohio
        Contact: AnneMarie Sarvis
        Email: anne@tchin.org
        Phone: 330-665-1113

        Healing Hearts
        Akron, OH
        Contact: Katie Fleming
        Email: flemings249@aol.com
        Phone: 330-543-4325

Pennsylvania
        C.H.I.N., Philadelphia
        Includes Philly and surrounding counties, Central through 
        South New Jersey and Delaware
        Contact: Lisa Rodebaugh

Tennessee
        Saving Little Hearts
        Knoxville, TN
        Email: info@savinglittlehearts.com

Texas
        Heart to Heart
        PO Box 720072
        Dallas, TX 75372
        Phone: 888-475-2787
        Contact: Autumn Rose Reo

Australia

        Heart Kids Victoria Inc.
        PO Box 5108
        Clayton
        VIC 3168
        Contact: heartkids@hotkey.net.au

Canada

        Children's Heart Network
         #4 3821A Cedar Hill Cross Road
         Victoria British Columbia CANADA V8P 2M6
         Phone: 250-598-2542
         Program & Family Resource Coordinator: Colleen Corder
         e-mail: chn@childrensheartnetwork.org

France

        L'Association Nationale des Cardiaques Congenitaux
        email: contact@ancc.asso.fr

Germany

        IDHK - Interessengemeinschaft Das herzkranke Kind
        Steinenhausenstrasse 37
        D 70193 Stuttgart
        Telephone: 07 11 / 6 36 60 19
        email: roennebeck@idhk.de

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United States                                                                                      

Alabama
          Mended Little Hearts of Ft. Benning and the Tri-City Area
902 31st Street
          Phenix City, AL 36867
Phone: 321-507-6666
          Contact: Chastin Schmeichel
Arizona

          Mended Little Hearts of Phoenix
          Tucson, AZ
Contact: Vanessa West
Phone: 520-406-5655
Email: TucsonAz@mendedlittlehearts.org
         
         Mended Little Hearts Tucson
          Phone: 520-406-5655
California
California Heart Connection
56 Cedarlake
Irvine, CA 92614
Contact: Debbie Hilton-Kamm
Phone: 949-653-6421

          CHIFund
          PO Box 28757
          San Diego, CA
          Contact: Wendy Robinson

Colorado
Cardiac Kids/Association of Volunteers
1056 East 19th Avenue
Box 465
Denver, CO 80218-1088
Phone: (720) 777-1234
e-mail:CardiacKids@tchden.org

Connecticut
Congenital Heart Defect Awareness, Inc
Phone: 203-234-1371
Email: info@chdawareness.org
 
Little Hearts, Inc.
Contact: Lenore Cameron
Phone: 866.435.4673
 
Delaware
C.H.I.N., Philadelphia
Includes Philly and surrounding 
counties, Central through 
South New Jersey and Delaware  
Contact: Lisa Rodebaugh
Florida
Angel's Pediatric Heart House       
151 N Nob Hill Rd. Suite 139
Plantation,  FL 33324 FL 33355
Contact: Sonia Perez
Phone: 954-318-2020
 
        Pediatric Heart Foundation (South Florida)
        PO Box 222535
        West Palm Beach, FL 33422
        Email: info@pediatricheartfoundation.org
        Phone: 561-236-6636
        Mended Little Hearts of Volusia County

PO Box 291464

Port Orange, FL 32129-1464

Email: heartmom11909@cfl.rr.com

Phone:386-681-7790

           Broken Hearts of the Big Bend
           Tallahassee, Florida
           Contact: Karen Thurston Chavez
           Phone: (850) 443-2984
           E-mail: brokenheartsinfo@brokenheartsofthebigbend.org

Georgia
Kids at Heart
Atlanta, Georgia
Contact: Shannon Chapman
Phone: 404.785.1822
          Contact: shannon.chapman@choa.org:
 
Hawaii
Kardiac Kids
c/o Kapi'olani Medical Center for Women and Children
1319 Punahou Street
Honolulu, HI 96826
808-983-6169 
 
Illinois

T.O.U.C.H. 
515 NE Glen Oak Ave. Suite 202      
Peoria, IL 61603
Contact: Gail Eaton
Phone: 309-655-3453
 

     
Iowa
Heart Friends
UIHC Pediatric Cardiology
Iowa City, IA
Contact: Trudy Pierick
Waterloo Chapter
Contact: Elly Steffen 
Kentucky
          Kerrington's Heart
          P.O. Box 911074
          Lexington, KY 40591
Phone: (859) 509-9857
          Email: info@KerringtonsHeart.org
Maine
          Stronghearts
PO Box 177
          Perry, ME 04667
Phone: 207-853-2774
          Email: stronghearts@roadrunner.com

          Precious Hearts
          22 Bramhall St.
          Portland, ME 04102
          Contact: Pam Schlichting, BSN, RN
          Phone: (207)662-2273

Massachusetts
Adults with Congenital Heart Disease Support Group
Meets first Monday of each month
Children's Hospital Medical Center
Contact: Dr. Jonas Bromberg
Phone: 617-332-6028
e-mail: jonas_bromberg@hms.harvard.edu

          It's My Heart Boston Chapter
          P.O. Box 111
          Danvers, MA 01923
          Contact: Isabelle Ouimette 
          (351)201-1533

          Friends With Heart
          PO Box 443
          Shrewsbury, MA 01545
          Contact: Dawn King
          Phone: (508)842-1636

Michigan

Hearts of Hope
Contact: Jill Teats / Colleen Schomaker

It's My Heart Metro Detroit Chapter
P.O. Box 1636
Royal Oak, MI 48073-1636
Contact: Mary Brown
(248) 229-7369

          It's My Heart Michiana Chapter
          P.O. Box 202
          Wakarusa, IN 46573
          Contact: Wendy Keeling
          (574) 606-8989
         
Minnesota
Parents For Heart of Minnesota, Inc.
Attention: 32-P190
2525 Chicago Avenue South
Minneapolis, Minneosta 55404
Contact: Gina Werner

          Lasting Imprint
          PO Box 261
          Mankato, MN 56002
         Contact: Andrea Heidelberger
         Phone: 507-779-2489

Missouri

Heart to Heart - St. Louis
St. Louis Children's Hospital
Social Service Department
One Children's Place
St. Louis, MO 63110
Contact: Elaine Wear and Nan Winters
Phone: 314-577-5600

Nebraska
The Midwest Heart Connection
PO Box 45618
          Omaha, NE 68145
Megan Connelly
e-mail: ed@midwestheartconnection.com
Phone: 402-203-0202
 
Nevada
Children's Heart Foundation
3006 S. Maryland Parkway, Suite 690
Las Vegas, NV 89109
Contact: Lyn Acebo
 
 
New Jersey
C.H.I.N., Philadelphia
Includes Philly and surrounding 
counties, Central through 
South New Jersey and Delaware  
Contact: Lisa Rodebaugh

          It's My Heart Northern New Jersey
          P.O. Box 207
          Bloomingdale, NJ 07403
          Contact: Kim Shadek
          (973) 291-4676

New York
Children's Heart Fund
One Gustave Levy Place
PO Box 1201
New York, NY 10029
Contact: childrensheartfund@yahoo.com
Phone: 212-241-7456

Hope for Hearts, Inc.
Children's Medical Center
Stony Brook University Hospital
Stony Brook, NY 11790-8111
Contact : Rose Weiss
Phone: 631-499-4476

Mend-A-Heart Support Group
New York, NY
Contact: Dana Connely
Phone: 212-263-5940

North Carolina
          Levine Cardiac Kids
          1800 Camden Road
          Suite 107, #57
          Charlotte, NC 28203
          Phone: 704-726-3493
          Contact: l.mckenzie@levinecardiackids.com

Ohio

C.H.I.N., Ohio
Contact: AnneMarie Sarvis            
Email: anne@tchin.org                
Phone: 330-665-1113

Hopeful Hearts for Children
Cincinnati, OH
Contact: Julie Balzano
Email:  jbalzano@fuse.net 

It's My Heart Cleveland
P.O. Box 225
Girard, OH 44420
Contact: Teri Knight
(330) 530-2534

It's My Heart Columbus
P.O. Box 107
Delaware, OH 43015
Contact: Nicole Turturice
(740) 363-6978

Oregon

          Mended Little Hearts of Greater Portland
          Contact: Pam Camit
          503-860-8452

 Pennsylvania

C.H.I.N., Philladelphia
 Includes Philly and surrounding 
 counties, Central through 
 South New Jersey and Delaware  
 Contact: Lisa Rodebaugh

Heart to Heart
Children's Hospital of Pittsburgh, Oakland Campus
Meetings on the 2nd Thursday of every month
Phone: 412-692-5546

Hershey Hearts
PO Box 163
Hershey, Pennsylvania 17033-0163
Email Contact: info@hersheyhearts.org

It's My Heart Metro Philly
P.O. Box 130
Stratford, NJ 08084
Contact: Krissy Shafer
(856) 504-6984

Rhode Island

            Helping Hands, Healing Hearts
            P.O. Box 2113
            Pawtucket, RI 02861
            Contact: Kelli Carlson

           The Rhode Island Association for Cardiac Children
            Phone: 401-353-3966
            Contact: riacc@cardiacchildren.org

South Carolina

Palmetto Hearts
PO Box 2265
Greer, SC 29652
Phone: 888-580-3052
Contact: Sara Wallace

Texas

Heart to Heart
P.O. Box 595
Colleyville, TX 76034-0595
Phone: 888-475-2787
Contact: Autumn Rose Reo		      

Milagros (Miracles)
Dell Children�s Medical Center of Austin
4900 Mueller Blvd
Austin, Texas 78723
Phone number: (512) 650-3475
Contact: mymilagrosaustin@gmail.com

 

It's My Heart Fort Worth
P.O. Box 12313
Fort Worth, TX 76110
Contact: Miranda Tamez(817) 275-0750

It's My Heart National & Houston Chapter
19728 Saums Road
PMB #137
Houston, TX 77084
Contact: Corrie Stassen
(713) 334-4244

Amazing Little Hearts
7801 Comanche Way
McKinney, TX 75070
Phone: 972-529-9951

 

Utah

              Intermountain Healing Hearts
              PO Box 581306
              Salt Lake City, UT 84158-1306
              Email: info@intermountainhealinghearts.org
              Phone: (800) 397-1174

Virginia

Tender Hearts
P.O. Box 2776,
Merrifield, Virginia 22116-2776
Phone: 703-204-6563
Contact: info@Tender-Hearts.net

Washington
          Heart to Heart CHD Support Group
          2700 Northup Way 
          Bellevue WA 98004
          Contact: Josephine Young, MD
Phone: 425-827-4600

          It's My Heart Greater Seattle
          P.O. Box 1192
          Summer, WA 98390
          Contact: Carla Baysinger
          (253) 269-2240 

Wisconsin

Mended Little Latino Hearts
2026 Dodge St.
Madison, WI 53713
Phone: (608) 512-5227
Contact: latinolittlehearts@yahoo.com

Kids With Heart
1578 Careful Drive
Green Bay, WI 54304
Phone/Fax - 920-498-0058

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Australia
Heart Kids Victoria Inc.
C/o Cardiology Department
The Royal Children�s Hospital
Flemington Rd
PARKVILLE VIC 3052
Contact: heartkids@heartkids.org.au
Phone: 03 9513 9030
 
PO Box 364
North Adelaide
South Australia 5006
Tel: 0406165111

Heart Kids ACT, Inc.
PO Box 1041
Woden, ACT
Australia 2606
 
Heart Kids QLD
P.O. Box 3017
Norman Park,
Brisbane, Qld. 4170
Contact: Lyn Chappell

Heart Kids WA
PO Box 1554 West Perth
Telephone: (08) 9340 7996
e-mail: heartkidswa@heartkidswa.org.au

          Heartkids NSW, Inc
          26/10J Hilltop Rd
          Merrylands NSW 2160 
          Phone: (02) 9294 0800
          email: mail@heartkids.org.au

 
SADS Australia
Information and Support about the Genetic Heart Disorder
called the Long QT Syndrome
Contact: Julie Foley

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Brazil
Heart Circle of Pernambuco
          Email: ssmattos@cardiol.br
 
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Belgium
Nos Enfants Cardiaques
email: nos.enfants.cardiaques@skynet.be
 
Ons Hartekind
email: pub00323@innet.be
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Canada
 
Heart Defects Society of Windsor
2912 Lloyd George Blvd.
Windsor, Ontario
N8T 2V1
Email: support@heart-defects-society.org
Phone: 519-551-5461
 
CHAIN
1688 Boul Lorrain Gatineau
Quebec, Canada J8R-3G1
Phone: 819-643-9663
Children's Heart Society
Box 52088, Garneau Postal Outlet
Edmonton, Alberta
T6G 2T5
Phone: 403-454-7665
e-mail: ckstump@telus.net

Children's Heart Network
#4 3821A Cedar Hill Cross Road
Victoria British Columbia CANADA V8P 2M6
Phone: 250-598-2542
Program Coordinator: Colleen Corder
e-mail: chn@childrensheartnetwork.org                

The Heart Of A Child
Support for parents with children who have CHD
1070 Windsor Ave.
Windsor Ontario
N9A 1K4
Phone: (519) 971-0760

Circle of Hearts 
Winnipeg, CA
Contact: circle_of_hearts_vchc@hotmail.com

Canadian Congenital Heart Alliance
Contact: info@cchaonline.ca

kidPACES
Parental Advocates for Cardiac Education and Support for Kids
 The Hospital for Sick Children
 555 University Avenue
 Toronto, Ontario
 Canada
 Contact: kid.paces@sickkids.ca

Heart Beats Children�s Society of Calgary
Calgary, Alberta
Contact: Patty Wiebe

Heart Defects Society of Windsor and Essex County
Contact:info@HeartDefectsSociety.org

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China

           Children's Heart Foundation: Hong Kong
           E-mail: chf@childheart.org.hk 

France

           Heart and Coeur
           France

L'Association Nationale des Cardiaques Congenitaux
email: contact@ancc.asso.fr
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Germany

IDHK - Interessengemeinschaft Das herzkranke Kind
Steinenhausenstrasse 37
D 70193 Stuttgart
Telephone: 07 11 / 6 36 60 19
email: roennebeck@idhk.de
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Ireland

Heart Children
The Carmichael Centre
North Brunswick Street
Dublin 7, Ireland
Email: heartchildren@eircom.net

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Italy
          Associazione Bambino Cardiopatico (ABC Parma)
          Piazzale Matteotti, 9
          43100 Parma
          Email: info@abcparma.it

          Associazione Italiana Amici della Scimitarra  

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Netherlands

Hartenark
Prof. Bronkhorstlaan 2
3723 MB BILTHOVEN
The Netherlands
31-30-2290244
Contact : Karin Bus

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New Zealand
Heart Children New Zealand, Inc.
Contact: heartchildrennz@xtra.co.nz
 
Adults with Congenital Heart Conditions
Contact : Shelly

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Scotland
Bravehearts
26 Fernbank
Ladywell, Livingston
Scotland
EH54 6DT
e-mail: braveheart@cableinet.co.uk

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Singapore
  •           Rainbow HeartKids
  •           c/o Club Rainbow Singapore
    • P.O. Box 447
    Orchard Road Post Office
    Singapore 912315
    Contact: Helen Ng
    e-mail: helenng50@gmail.com

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    Switzerland
    Elternvereinigung fuer das herzrkanke Kind
    email: evhk@paus.ch
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    U.K.
    CRY - Cardiac Risk in the Young
              Unit 7, Epsom Downs Metro Centre
              Waterfield, Tadworth, Surrey, KT20 5LR 
    Phone: 01737 363 222

    Down's Heart Group
    PO Box 4260
              Dunstable LU6 2ZT
    Phone: 0845 166 8061
    e-mail: info@dhg.org.uk
     
    Grown Up Congenital Heart
    12 Rectory Road
    Stanford-le-hope
    Essex
    SS17 0DL
    Contact: Mavis Moore
    e-mail: Mavis@guch.demon.co.uk

    Children's Heart Federation
    52-54 Kennington Oval
    London SE11 5SW
    Helpline: 0 808 808 5000
    E-mail: chf@dircon.co.uk

    Heartline
    Rossmore House
    26 Park Street
    Camberley, Surrey
    GU15 3PL
    UK
    E-mail: heartline@easynet.co.uk

    The 22q11 Group
    Contact: Julie
    Phone: 44 1908 320 852

     

     

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    Disclaimer: The contents of this site are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns. Created and maintained by Mona Barmash and Uwe Baemayr for The Congenital Heart Information Network. Exempt organization under Section 501(c)3 Copyright ©1996 - 2012 C.H.I.N. All rights reserved TX4-390-685