CARRA members participate as individuals in NCI activities, at the request of NCI staff, to provide the patient perspective to science and communications projects. They also have a responsibility to disseminate NCI information about cancer research to the advocacy community, where their affiliation with the CARRA program can add to their effectiveness and credibility.
It is not appropriate or acceptable, however, for CARRA members to give the impression of representing - or appearing to represent in any way - the National Cancer Institute, the Office of Advocacy Relations, the CARRA Program, or related entities, with any actions or words.
To help describe these policies, several specifics are listed below. For any questions or clarifications, please contact us. A violation of the policies can result in CARRA membership status being changed to Inactive.
CARRA membership is a unique affiliation with the National Cancer Institute, especially for advocates who have several different roles related to cancer. The National Cancer Institute and the CARRA program value the roles CARRA members fulfill in NCI cancer research activities, and appreciate the high professionalism and standards CARRA members demonstrate.
Acceptable uses of CARRA affiliation
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If the affiliation is not the only one and not listed first, CARRA members may list their CARRA affiliation on a business card, resume, speech introduction, or similar representation.
Example: |
![](https://webarchive.library.unt.edu/web/20090131070157im_/http://carra.cancer.gov/images/spacer.gif) |
Mr. Stanley Sonner Community Liaison, XYZ Advocacy Organization Chairman, Cancer Prevention Campaign, QRS Township Member, NCI CARRA Program |
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CARRA members can refer to their affiliation in a letter, email, or other communication, if it can appear among other affiliations, organizations, or accomplishments; is given no greater prominence than the other affiliations listed; and is not indicated as the primary affiliation.
Example: |
![](https://webarchive.library.unt.edu/web/20090131070157im_/http://carra.cancer.gov/images/spacer.gif) |
Dear Ms. Lowry: Congratulations on establishing a cancer survivorship program in our local hospital. Many families and individuals in the community are grateful, and will put the program to good use. I'd like to offer periodic updates to your program staff about cancer research developments from a patient perspective. I am the community education chair of our ABC advocacy organization, and a member of the National Cancer Institute CARRA Program (Consumer Advocates in Research and Related Activities), and through those two roles receive a significant amount of ongoing information I'd be happy to share. |
Unacceptable uses of CARRA affiliation
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As a first, primary, or predominant affiliation on a business card, stationery, resume, speech introduction, or similar representation.
Example: |
![](https://webarchive.library.unt.edu/web/20090131070157im_/http://carra.cancer.gov/images/spacer.gif) |
Ms. Penny Dennis, a Member of the NCI CARRA Program, will give the keynote presentation at our next meeting. |
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As a first, primary, or predominant affiliation in a letter, email, or other communication.
Example: |
![](https://webarchive.library.unt.edu/web/20090131070157im_/http://carra.cancer.gov/images/spacer.gif) |
Dear Councilman Harding, As a member of the National Cancer Institute's CARRA Program, I would like to urge you to provide local funding for our community's chapter of the FGH program for cancer detection... |
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As a means of gaining access to access to someone or something that they would be unlikely to gain access to as a private citizen, or as a member of an advocacy organization.
Example: |
![](https://webarchive.library.unt.edu/web/20090131070157im_/http://carra.cancer.gov/images/spacer.gif) |
I would like to request an appointment with Dr. Norton and the Director's Council, to discuss cancer diagnosis in our state. I am a member of the NCI Consumer Advocates in Research and Related Activities (CARRA) program ... |
The above policies apply to all verbal and written formats.
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