It is difficult to say what is
impossible, |
The Acid Maltase Deficiency
Association, A M D A, was formed to
assist in funding |
Updated May 27, 2008
April
2008 Pompe Program Update--April 22, 2008
--contains important information concerning Myozyme and supply
situation--
Important Update on Myozyme Supply Situation-- April 21, 2008
Helping
Trevor Pare, a 17yr old suffering from Pompe Disease
Petition to Canadian Government to fund Myozyme treatments for Pompe Disease
January Pompe Program Update from Genzyme--Important Information Inside--Jan. 15, 2008
Genzyme announces
that LOTS met both primary endpoints--December 13, 2007
Thank you, Donna, for all of your help!
© AMDA, Acid
Maltase Deficiency Association, Inc. 1997
P.O. Box 700248 · San Antonio, Texas 78270-0248
Phone: (210) 494-6144
Fax: (210) 490-7161