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Hints for Family Caregivers
Learning how to cope with the effects of Alzheimer's disease and the increasing needs of your loved one will help you deal with your own stress and anxiety. The following suggestions are offered for family caregivers:
Ten A's for Alzheimer's CareArguments are useless and, in fact, make matters worse. Confusion, memory loss, and frustration are making the person behave irrationally and you can't "argue" them out of it. Allow as much freedom and independence as possible, while keeping safety and comfort in mind. Actions help when verbal communication may fail. Help the patient by demonstrating what you mean, or sometimes, by starting them in the activity. Assume that the person may understand and hear what you say even if they are confused. Do not say things to others in front of them as if they are deaf. Appreciate good moments or good days, even though the person's ability is not going to remain that way. Appropriate activities help patients pass the time meaningfully and productively and reduce agitation, boredom, daytime sleeping and depression. Agitation can be alleviated when the caregiver remains calm, reassuring and respectful of the patient's feelings. Adults with disabilities are still adults. Mental level is not always equal to social level. Adapt the task to fit the ability of the patient. Break down the activity into separate steps, or simplify tasks by eliminating parts that could be frustrating. Assessment is ongoing. What is safe and effective for now, may not be so at a later time. Keep watching and reevaluating. Adapted from an article appearing in the Southern Tier Alzheimer's Chapter Newsletter. 8 R's in Alzheimer's CareRoutine will help someone with AD anticipate what to do next and what is expected of them. It sets boundaries that feel secure. Rituals or life-long habits should be maintained. Don't try to break old habits. For example, if the individual never enjoyed crafts, don't expect to involve him/her in crafts now. Reassess physical health if there is a sudden behavior change. A person with AD will become more confused, agitated or hostile when a physical complaint develops. Consider constipation or a urinary tract infection, etc. as the cause of the behavior disturbance. Redirect or distract the person with AD. This can be accomplished by suggesting that it is snack time. When the person with AD asks to go home, say "in a little while, but first, how about a cup of tea and a cookie?" You will be surprised that the person will forget about leaving for a little while. Real questions may be difficult to figure out if the person with AD has difficulty communicating. If the individual becomes agitated, perhaps they are telling you that they need to use the bathroom. Learn to read their body language. Reconsider the behavior. Is it truly a problem? Does it present a danger for the person with AD? Or is it just upsetting you? Is talking to his/her reflection in a mirror, just like it was another person, a problem? Should the mirror be covered up? Only if the person appears to be upset or frightened by the reflection. Respect is always the appropriate attitude when caring for a person with AD. Laugh with them, not at them. Never talk about them to another person in front of them as if they are not there. And remember, a person with AD will know how you feel by your body language and tone of voice. Reassure the person with AD often that you love them and will care for them. A gentle pat, stroking their hair, and holding hands all say "I care for you." Think how much reassurance of love you would need if you were suffering from a dementia. Courtesy of the Upstate South Carolina Alzheimer's Chapter, Anderson, SC Caregiver's Bill of RightsProviding care for a person with Alzheimer's disease is often a stressful and demanding ordeal. It is important to remember that caregivers have human needs and emotions. They must care for the patient as well as themselves. The "Caregiver's Bill of Rights" helps identify some of the common and "normal" emotions caregivers may experience. IT IS ALL RIGHT TO:
Source: American Health Assistance Foundation Personalize Outings for Persons with DementiaMany families ask for guidance or suggestions on appropriate outings for their loved one with dementia, but there are no easy answers. Because the person's interests, likes and dislikes often change during the course of the disease, the caregiver is left with the challenge of finding new activities to engage or entertain the person. In creating such activities, caregivers should first ask, "Whose needs am I trying to meet?", then establish goals to fill the needs of that person - the person with dementia. For example, try not to continue the relationship as it was by preserving familiar activities your loved one can no longer take part in. Some familiar activities can be continued for a long time into the disease, as long as they are adapted to the person's changing abilities. Caregivers who know and are sensitive to the needs of their loved one can continue to make sound judgements about what works and what doesn't. Be careful not to take the roles of "patient" and "caregiver", and only tend to daily needs such as eating and bathing. Without thinking, you might fall into the habit of meeting your needs at the expense of your loved one, or vice versa. When considering outside activities or outings for you and your loved one, think about simple goals you hope to accomplish, such as:
Remember that a break in routine, though refreshing for the caregiver, may produce stress and discomfort for the person with dementia. For many people with dementia, familiarity, not variety, is the spice of life. By: Dorothy Seman, RN, MS, NHA When Someone You Know Has Alzheimer's DiseaseWith the increasing prevalence of Alzheimer's disease, it is very likely that a friend, neighbor or someone you know may someday be diagnosed with the disease. As with all chronic and debilitating illnesses, the patient and family need your friendship and support more than ever. Interacting with an Alzheimer's patient and supporting the family caregiver may seem difficult, but with a little understanding, patience and knowledge of the disease, you can play a very helpful role. First and foremost is to learn more about the disease so you can recognize, understand, and anticipate the more common behaviors and symptoms associated with Alzheimer's disease. This increased knowledge will enable you to interact more effectively with the patient and understand the demands the Alzheimer's patient places on the caregiver. The following information will provide you with practical suggestions regarding what to do, what to say, and how to act when someone you know has Alzheimer's disease. Interacting with the PatientSome of the more noticeable behaviors occurring in the early stages of Alzheimer's disease include personality changes, mood swings, and poor memory for recent events. As the disease progresses, patients will become more confused and have increased difficulty recognizing family and friends. Their behavior may become more combative and their attention span very short. Their ability to read, write and organize their thoughts will be markedly diminished. They may also appear distrusting at times. These symptoms and behaviors will continually change over the course of the disease, which can last anywhere from 2 - 20 years.We suggest the following ways to interact with and be supportive to the patient:
Courtesy of the National Eldercare Institute on Long Term Care and Alzheimer's Disease at the Gerontology Center, University of South Florida Last Updated June 20, 2005 |
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