About Alzheimer's Disease:
For Caregivers:
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Consortium of Alzheimer's Disease Centers
Education Code, Chapter 154 (HB1504, 76R), passed during the 76th legislative session, directed the
Texas Council on Alzheimer's Disease and Related Disorders (Council) to
establish a Consortium of Alzheimer's Disease Centers (Consortium) in
Texas. The Consortium is composed of Alzheimer's Disease Centers at Baylor
College of Medicine, Texas Tech University Health Sciences Center, the
University of North Texas Health Science Center, and the University of
Texas Southwestern Medical Center. The purpose of the Consortium is to
create a systematic approach to the provision of uniform clinical services
and to the sharing of research data. Specifically, the Consortium will:
- Offer clinical services to all patients of the Consortium's clinical
centers, notwithstanding the independent status of each participant;
- Establish a database to:
- Make data available to Consortium centers;
- Provide a resource index to facilitate research projects; and
- Provide data on patient health outcomes to appropriate state agencies
and to researchers in Texas; and
- With the aid of the Council and the National Alzheimer's Association
and its Texas chapters, develop and distribute to patients, caregivers,
and healthcare professionals educational materials and services, and
inform patients of any research projects and therapeutic trials open
for their participation.
As directed by H.B. 1504, the Council established a steering
committee for the purpose of advising the Council on activities related
to the Consortium. The steering committee is composed of a representative
from each of the four centers, the Chairman of the Council, and a Council
member.
General Counsel at the Texas Department of State Health Services, with
guidance from the steering committee, drafted a Memorandum of Understanding
(MOU) delineating roles and responsibilities of the Council and the Consortium.
The MOU has been signed by all four participating centers.
Because appropriated funds did not accompany H.B. 1504, the Council
has engaged in a number of efforts to secure monies to carry out the provisions
of the legislation. These efforts are ongoing.
- Provide funds to Consortium participants to assist each to develop
clinical centers that meet the standards of the Consortium.
- Establish a data coordinating center to be based at the Texas Tech
University Health Sciences Center, including personnel to administer
and coordinate data collection, analysis, and dissemination.
- Develop, print and distribute educational materials to professional
and family caregivers, patients, and the public.
- Conduct site visits and ongoing evaluation of Consortium activities.
According to H.B. 1504, the Council may receive state appropriated funds
for the purpose of supporting the research activities of the Consortium.
The Council may also solicit and accept gifts, grants, and donations for
the Consortium.
2006 Steering Committee Roster
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Perrie Adams, Ph.D.
UT Southwestern Medical Center
Dallas, Texas
Rachelle Smith Doody, M.D., Ph.D.
Baylor College of Medicine
Houston, Texas
Leon Douglas
Texas Council on Alzheimer’s Disease and Related Disorders
Bertram, Texas
Thomas Fairchild, Ph.D.
University of North Texas Health Science Center
Fort Worth, Texas
The Honorable Clint Hackney
Texas Council on Alzheimer’s Disease and Related Disorders
Austin, Texas
Debbie Hanna
Texas Council on Alzheimer’s Disease and Related Disorders
Austin, Texas
Jack Kern
Texas Council on Alzheimer’s Disease and Related Disorders
Austin, Texas
Randolph Schiffer, M.D.
Texas Tech University Health Science Center
Lubbock, Texas
Staff
Bobby D. Schmidt, M.Ed.
Texas Department of State Health Services
Austin, Texas
Mary Somerville
Texas Department of State Health Services
Austin, Texas
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Last Updated June 20, 2005 |