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Creutzfeldt Jakob Disease (CJD) ICD-9 046.1; ICD-10 A81.0

Reporting Creutzfeldt-Jakob Disease

25 Tex. Admin. Code §97.2

CJD became a notifiable condition in 1998 in Texas. Suspected cases of CJD should be reported to local health departments by dialing 1-800-705-8868.

In September 1997, the National Prion Disease Pathology Surveillance Center (NPDPSC) was established at the Division of Neuropathology of Case Western Reserve University to, among other functions, assist clinicians in the diagnosis of prion disease. The NPDPSC assists clinicians by analyzing cerebrospinal fluid, blood, and brain tissue. Information about diagnostic services, protocols for various CJD testing, and specimen submission can be obtained at http://www.cjdsurveillance.com or by contacting the director, Dr. Pierluigi Gambetti or staff at the Institute of Pathology, Case Western Reserve University, 2085 Adelbert Road, Room 419, Cleveland, Ohio 44106; Phone, 216/368-0587; Fax, 216/368-4090; E-mail, cjdsurv@po.cwru.edu .

Physicians are strongly encouraged to confirm the diagnosis of CJD by arranging for an autopsy following the death of the person suspected of having CJD. This is especially important if the person had an onset at age less than 55. Please contact the center above for assistance or specimen submission.

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Last Updated: Tuesday, September 11, 2007

Texas Department of State Health Services - Infectious Disease Control Unit
1100 West 49th Street, Suite T801, Mail Code: 1960 PO BOX 149347 - Austin, TX 78714-9347
(512) 458-7676 - Fax: (512) 458-7616 -

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