What if we could learn from the collective experience of patients everywhere?
Top Medications
Remicade |
1703 people | |
Prednisone |
3027 people | |
Flagyl |
1529 people |
Top Diets
No Beer |
1361 people | |
No Spicy Food |
1071 people | |
No Dairy |
1094 people |
Top Supplements
Vitamin B12 |
1431 people | |
Probiotics |
1794 people | |
Vitamin D |
1832 people |
Crohnology is...
A Patient-Powered Research Network
that allows any patient to contribute to research for the cure.
Currently focused on
I started Crohnology because
after living for Crohn's for 14 years,
I realized that the data that I was gathering
outside the doctor's office
was just as important as, if not more than, what I was learning inside.
Since my diagnosis at age 12,
I have had a dozen major flare ups of the disease. I found that, for me, diets and supplements, stress reduction and mental relaxation, and exercise help. I heard many people on the internet claim that they had found the magic bullet, but I thought it was irresponsible to be so confident.
Just because these things worked for me, I wasn't about to claim that they work for everybody. Instead, I decided to build a patient-powered research network that would allow patients everywhere to be contributing their own treatment experimentation in a way that could be aggregated for us to learn what actually works for whom.
— Sean Ahrens
6,755
patients with Crohn's and Colitis
80
countries
46,288
years of patient experience
How it works
- You build a timeline of your health and the treatments you've done.
- You contribute to collective knowledge by asking and answering research questions or participating in studies.
- We share the knowledge back with everyone.
Ready to Join in Advancing the World's Collective Knowledge?
Get StartedAre you a physician or the family member of a patient? You can get involved, too.
Are you a researcher? Are you trying to run a survey, study, trial, or otherwise learn from patients?
Email us
if you'd like to work on a project together.