|
Oklahoma Birth Defects Tracking Program Program Title:
Oklahoma Birth Defect Registry
Organization: Oklahoma State Department of Health
Project Period: March 2005–February 2010
Project Director: Kay Pearson, MS, RD, LD
Grant Title: Population-Based Birth Defects Surveillance
Programs and the Utilization of Surveillance Data by Public Health
Programs
Project Summary
The Oklahoma Birth Defects Registry (OBDR) is
an active, statewide, population-based surveillance program. It
refers children reported to the registry to SoonerStart Early
Intervention Services for diagnosis and evaluation; case management;
family training; home visits; certain health services; nursing
services; nutrition services; occupational, physical, and
speech-language therapy; and special instruction. Through this
project, the OBDR will continue its surveillance efforts and work
toward a system for referring children with birth defects to
comprehensive, community-based, family-centered care.
Project Goals and ActivitiesSurveillance
- Maintain data collection by 4 months from the date of birth
or miscarriage in Oklahoma City and Tulsa Hospitals.
- Update regional statistics on the OBDR website.
- Analyze the occurrence of birth defects by geographic
location.
- Conduct a longitudinal analysis of multiple-year sibling
cases contained in the OBDR.
Prevention
- Develop folic acid education materials for
physicians and the general public to prevent birth defects,
heart disease, and cancer.
- Develop a preconception and interconception
care project to enhance collection of prenatal diagnosis data
and to direct education and referral efforts to high-risk women
during the prenatal period.
- Distribute multivitamins to 16 county health
departments with the highest prevalence of NTDs. Distribute
folic acid educational materials to county health departments.
- Develop and distribute a media plan for
county health departments for Spina Bifida Prevention Month in
October.
- Develop and distribute a media plan for
county health departments for National Folic Acid Prevention
Week.
Referrals
- Conduct the Oklahoma Birth Defects Needs
Assessment to evaluate all levels of care and services available
for affected families from preconception through adulthood. This
evaluation will help refer families more effectively to the
services they need.
- Contact families that declined to receive
free intervention services through the SoonerStart Program to
determine why they chose not to receive them.
- Work closely with Title V Maternity and
Title X Family Planning Programs to ensure preconception and
interconception care are integrated in Maternal and Child Health
Programs.
- Write a follow-up article on preconception
care that highlights risk factors in six categories— family
history, nutrition, medical, reproductive, psychosocial, and
lifestyle—for publication in the Journal of the Oklahoma
State Medical Association.
Date:
March 11, 2009
Content source: National Center on Birth Defects and Developmental
Disabilities
|
|
|