Slide Presentation from the AHRQ 2008 Annual Conference
On September 10, 2008, Stephen Barnett, made this presentation at the 2008 Annual Conference. Select to access the PowerPoint® presentation (460 KB).
Slide 1
Deaf People and Healthcare: Adapting Consumer Assessment of Healthcare Providers and Systems (CAHPS®) to be Accessible for Sign Language Users
- Steven Barnett MD
Department of Family Medicine
University of Rochester
Slide 2
Outline
- Background.
- Work before my K.
- Work during my K.
- My research.
- Implications.
Slide 3
Career Development
- Goal:
- To be a leading expert & independent researcher on the topic of health and healthcare with deaf people and their families.
- Project:
- To adapt CAHPS® in order to collect data in sign language on healthcare experiences.
Slide 4
Why Deaf people?
- Cross-language/cross-cultural issues.
- Frequently overlooked minority population.
- Family dynamics.
- Environmental aspects of "disability."
- Highlights & challenges my assumptions.
Slide 5
Healthcare Issues
- Language.
- Literacy.
- Fluency.
- Fund of information.
- Mistrust.
- Family.
Slide 6
Research Issues
- Language.
- Literacy.
- Fluency.
- Fund of information.
- Mistrust.
- Family.
- Modality.
- Continuum.
- Institutional Review Board (IRB).
- Prior survey experience.
Slide 7
Before my K08
- Patient care (mostly deaf-related).
- Teaching (sometimes deaf-related).
- Research (sometimes deaf-related).
Slide 8
During my K08
- Patient care (mostly deaf-related).
- Teaching (often deaf-related).
- Research (mostly deaf-related).
- Dedicated time for career development.
- Mentors.
- Formal coursework/teaching.
- National Center for Deaf Health Research (NCDHR).
- Flexibility.
Slide 9
Research
Slide 10
- Slide shows screen shot of opening screen for survey.
- Photos of four models illustrating sign language are at top of page, with "CC" [closed caption] under each.
- Larger photo beneath shows Barnett, also signing.
- Text on page says: "My name is Patrick. You can touch on the other signers. You can pick a different signer at any time. When you are done: Touch next."
Slide 11
Basic Demographics
- Screen shot shows sign language survey:
- Screen shot shows "B" was chosen, so model in window signs, and text below reads, "You are a man."
Slide 12
Translation
Slide 13
Translation
- What is the highest grade or level of school that you have completed?
- ℑ 8th grade or less.
- ℑ Some high school, but did not graduate.
- ℑ High school graduate or general equivalency diploma (GED).
- ℑ Some college or 2-year degree.
- ℑ 4-year college graduate.
- ℑ More than 4-year college degree.
Slide 14
Translation
- Did you graduate high school or get your GED?
- If Yes: After high school, did you go to college?
- If Yes: What degree do you have?
- If No: Did you go to high school?
- If No: Did you finish 8th grade?
- If No: Did you finish Kindergarten?
- If Don't know: Did you go to high school?
- If No: Did you finish 8th grade?
- If No: Did you finish Kindergarten?
Slide 15
Translation
- In the last 12 months, did you phone this doctor's office with a medical question during regular office hours?
Slide 16
Implications
- Feedback to clinicians/systems.
- Feedback to patients/families.
- Feedback to public health & policymakers.
- Survey design.
Slide 17
Take Home Messages
- Career Development Awards are great.
- Deaf sign language users comprise understudied disparity populations.
- Community participatory research is essential to the survey adaptation process.
Slide 18
Slide 19
- NCDHR is supported by Cooperative Agreement U48 DP000031 from Centers for Disease Control and Prevention (CDC). The contents of this presentation are solely the responsibility of the author and do not necessarily represent the official views of the CDC.
- Steven Barnett is supported by grant K08 HS15700 from the Agency for Healthcare Research and Quality.
- Thank you to my family, mentors, and everyone who has worked with me on these projects.
Slide 20
- Steven Barnett MD
Family Medicine Research Programs
1381 South Avenue
Rochester, NY 14620
Steven_Barnett@URMC.Rochester.edu
- National Center for Deaf Health Research
Rochester Prevention Research Center
University of Rochester
www.urmc.edu/ncdhr
- Presented during the AHRQ 2008 Conference, "Office of Extramural Research, Education and Priority Populations (OEREP) Panel Session on Successful Career Development in Health Services Research", Bethesda, MD (September 10, 2008).
Current as of January 2009
Internet Citation:
Deaf People and Healthcare: Adapting CAHPS® to be Accessible for Sign Language Users. Slide Presentation from the AHRQ 2008 Annual Conference (Text Version). January 2009. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/about/annualmtg08/091008slides/Barnett.htm