| Please make the effort and take the time to register your SDS or SDS-like patient in the North American SDS Registry. The SDSR was established to collect medical information and clinical samples on all individuals with SDS and SDS-like across the United States and Canada with the goal of improving diagnosis and treatments. Their web site isn't working yet so please make the call to the Registry coordinator, Melissa Alvendia at 206-667-6965 (toll-free 1-866-792-5876) Click here for a pdf with more information. |
