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When Your Brother or Sister Has Cancer: A Guide for Teens
    Posted: 04/05/2006



This Booklet Is For You






You've Just Learned That Your Sibling Has Cancer






Learning About Cancer






Cancer Treatment






Becoming a Stem Cell Donor






What Your Brother or Sister May Be Feeling






Changes in Your Family






How You Can Help Your Brother or Sister






Taking Care of Yourself






You and Your Friends






Finding Support






After Treatment






The Road Ahead






Learning More on Your Own






Appendix A: Monitoring Tests






Appendix B: Cancer Team Members






Acknowledgments



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Learning More on Your Own

Help Is a Phone Call or Web Site Away

Your school or public library
Ask the librarian to help you find the information or support that you're looking for in books, magazines, videos, or on the Internet.

The Internet
Use an Internet search engine and type in general words like "sibling" and "cancer" together to get started. Keep in mind that the Internet has a lot of good information. It also has a lot of poor information and false promises, so you may want to check with your parent or another trusted adult about what you find.

Your sibling's hospital or clinic
Visit the patient education office at your sibling's hospital, if there is one. Or, ask if you can go with your brother or sister during their visit to the doctor to learn more.

Help Is a Phone Call or Web Site Away

Here are some places to contact for help. You can call them or visit their Web site for more information.

National Cancer Institute (NCI)
Cancer Information Service (CIS)

1-800-4-CANCER (1-800-422-6237)
www.cancer.gov
NCI offers accurate, up-to-date information on cancer for you and your family. Call the CIS to talk to an information specialist who can answer questions you or someone in your family might have. Or go to LiveHelp on NCI's Website to chat online with an information specialist. NCI can also help connect you with a support organization in your area. NCI offers many materials in both English and Spanish. People who are deaf may call a special TTY line at 1-800-332-8615.

American Camp Association
1-800-428-2267
www.acacamps.org
The American Camp Association can help you find camps that are specifically for kids who have a brother or sister with cancer.

American Cancer Society (ACS)
1-800-ACS-2345 (1-800-227-2345)
www.cancer.org
By calling ACS, you can talk to a cancer information specialist. You can call 24 hours a day to get your questions answered. The specialist may help you find information and other resources.

CancerCare
1-800-813-HOPE (1-800-813-4673)
www.cancercare.org
CancerCare offers free information and support by telephone and online to anyone affected by cancer. Visit their online support group for teens who have a brother or sister with cancer.

Candlelighters Childhood Cancer Foundation
1-800-366-CCCF (1-800-366-2223)
www.candlelighters.org
Candlelighters Childhood Cancer Foundation provides support, education and advocacy for children and adolescents with cancer, survivors of childhood/adolescent cancer, their families and the professionals who care for them.

Gilda's Club
1-800-GILDA-4-U (1-800-445-3248)
www.gildasclub.org
Gilda's Club provides a place for people with cancer and their families and friends to join with others to build social and emotional support. They offer support groups, workshops, and social activities for people affected by cancer. Call to see whether there is a location near you.

Make-A-Wish Foundation
1-800-722-WISH (1-800-722-9474)
www.wish.org
Make-A-Wish grants wishes to kids who have life-threatening medical conditions. Your parents, your brother or sister with cancer, or their doctor can call Make-A-Wish to see whether your brother or sister can qualify.

SuperSibs!
1-866-444-SIBS (1-866-444-7427)
www.supersibs.org
SuperSibs! is a national non-profit organization that provides free services to brothers and sisters of children with cancer. SuperSibs! helps children and teens redefine the "cancer sibling" experience by providing them with ongoing recognition and support.

The Wellness Community
1-888-793-WELL (1-888-793-9355)
www.thewellnesscommunity.org
The Wellness Community offers support, education, and hope to people with cancer and their loved ones. Call to find out whether there is a location near you.

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