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Medical
Home Tools for Community Based Organizations
Only by working together at the Federal, State and local
levels, public and private sectors can we achieve the goals
of Healthy People 2010.
In Healthy
People 2010, the U.S. Department of Health and Human Services,
in partnership with States, communities, and many organizations
in the public and private sectors, has set out a series of
objectives to “bring better health to all people in this
country.”
At the National Center of Medical Home Initiatives for Children
with Special Needs, we recognize the need for additional technical
assistance at the state and local level in order to achieve
the goals set forth in HP 2010 for children and youth with
special health care needs (CYSHCN) which are to:
- Increase the proportion of CYSHCN who have access to
a medical home and
- Increase the proportion of Territories and States that
have service systems for CYSHCN.
Working with Other Related Programs
- Medical Home Mentorship
Network
The National Center can facilitate information sharing
among those who are involved in medical home initiatives
through the national Mentorship Network. Examples include:
- Facilitate the development of state medical home
teams and support state team activities related to
medical home and outcomes of the President’s
New Freedom Initiative.
- Connect medical home teams from states with similar
challenges and/or systems of care to share solutions
and accomplishments related to improving access to
medical homes.
- Assist state medical home teams in identifying key
stakeholders who can assist in the implementation
of medical home initiatives.
- Identify potential sources of funding for state
medical home initiatives.
- State
Early Childhood Comprehensive Systems (SECCS)
The goal of this initiative is the implementation of a
comprehensive early childhood system that promotes health
and well being in young children, enabling them to enter
school ready and able to learn. Five focus areas exist
in this effort: access to medical homes; mental health
and social-emotional development; early care and education
services; parent education and family support services.
- Technical
support and resources for SECCS Initiatives
- Strategies
for Integrating Developmental Services and Promoting
Medical Homes: This report defines specific gaps
in care for young children, based on findings from
several new national surveys. It address the health
sector’s ability to meet the needs of parents
from a medical home perspective and identify barriers
to optimal health sector performance in the delivery
of developmental services. It concludes by discussing
strategies to address these service gaps and deficiencies
through planning and implementation within the SECCS
Initiative.
- Early
Intervention (Part C of IDEA)
The Program for Infants and Toddlers with Disabilities
(Part C of IDEA) is a federal grant program that assists
states in operating a comprehensive statewide program
of early intervention services for infants and toddlers
with disabilities, ages birth through age 2 years, and
their families.
- EHDI
Network
State EHDI programs promote universal newborn hearing
screening, develop effective tracking and follow-up as
a part of the public health system, promote appropriate
and timely diagnosis of the hearing loss, prompt enrollment
in appropriate Early Intervention, ensure a medical home
for all newborns and strive to eliminate geographic and
financial barriers to service access.
- Interagency
Coordinating Council (ICC)
The ICC advises appropriate agencies on the unmet needs
in early childhood special education and early intervention
programs for children with disabilities, assists in the
development and implementation of policies that constitute
a statewide system, and assists all appropriate agencies
in achieving full participation, coordination, and cooperation
for implementation of statewide system.
- Section
619 (Part B of IDEA)
Special Education for ages 3-5 Coordinators: This program
provides free appropriate public education (FAPE) for
children, ages 3 through 5 years, with disabilities.
- Title
V/ CSHCN Programs
Title V Block Grant to States
Title V of the Social Security Act is one of the largest
Federal block grant programs. It leads the nation in ensuring
the health of all mothers, infants, children, adolescents,
and children with special health care needs (CSHCN). Title
V is administered by the Maternal and Child Health Bureau
(MCHB) as part of the Health Resources and Services Administration,
U.S. Department of Health and Human Services.
Title V and Children with Special Health Care
Needs
MCHB Objective: Support development and
implementation of comprehensive, culturally competent,
coordinated systems of care for the estimated 18 million
U.S. children who have or are at risk for chronic physical,
developmental, behavioral or emotional conditions and
who also require health and related services of a type
or amount beyond that required by children generally
Getting Started: A Plan for
Your Community
Developing an Effective MCH Planning Process:
A Guide for Local MCH Programs - Second Edition
This guide
assists local public health agencies in conducting
a needs-based, rational planning and resource allocation
process. Although the processes described are generic to
all planning efforts at the local level, the case examples
are specific to maternal and child health programs that
are required to conduct a formal needs assessment and planning
process every five years. The manual has evolved from a
collaborative effort with the Maternal and Child Health
Branch of the California Department of Health Services and
the Family Health Outcomes Project.
Hard copies may be ordered, at a cost, by e-mail fhop@itsa.ucsf.edu
or call (415) 476-5283.
Strengthening the Community System of Care for
Children and Youth with Special Health Care Needs and Their
Families. Collaboration Between Health Care and Community
Service Systems: A
Workbook 
Suzanne Bronheim, PhD. Senior Policy Associate. Georgetown
University Center for Child and Human Development and Thomas
Tonniges, MD. Director, Department of Community Pediatrics.
American Academy of Pediatrics
Overview
The workbook provides suggestions and exercises designed
to help the health care system reach out to the broader
system of community services and to help the community
services system engage the health system to build a comprehensive
community system of care. A list of other resources related
to collaboration are provided.
Hard copies may be ordered, on www.ask.hrsa.gov/
or calling 1-888-ASK-HRSA (275-4772) requesting document
number is MCH00150.
Child Health Care Quality Toolbox
Measuring Performance in Child Health Programs Access, Quality,
and Health Service Delivery
Concepts, tips, and tools for evaluating Medicaid, the State
Children's Health Insurance Program (SCHIP), Title V, and
other health care service programs for children. Developed
by The Agency for Healthcare Research and Quality (AHRQ)
This tool kit was developed at the request
of volunteers, advocates, self-advocates, and professionals
concerned that the remarkable progress made towards the
inclusion of people with cognitive, intellectual and developmental
disabilities (our constituents) into the fabric and mainstream
of community life in America was at risk. In some places
in the United States there are those who would not only
continue to deny people currently in public and private
institutions freedom and opportunity through continued institutionalization
but who also want to expand the role of institutions in
the lives of our constituents.
A full copy of the Tool Kit can be downloaded or printed.
It is a large document and may take a considerable amount
of time to download. You can order a complete copy of the
Tool Kit including a CD with all documents. See the order
form below.
NOTES: Some portions of this Tool Kit
can either be found on the Web or will link to external
files; where possible, links to these external sites and
documents are included.
Copy of Tool Kit - PDF (15 mb):
http://thechp.syr.edu/toolkit/Community_for_All_Toolkit_Version1.1.pdf
Order Form for Tool Kit - PDF
http://thechp.syr.edu/toolkit/Communit_for_All_ToolKit_OrderForm.pdf
Web site for Tool Kit: http://thechp.syr.edu/toolkit/
The Guide to Community Preventive Services
(Community Guide) provides public health decision makers
with recommendations regarding population-based interventions,
appropriate for use by communities and health care systems,
to promote health and to prevent disease, injury, disability,
and premature death. The Independent Task Force on Community
Preventive Services makes its recommendations based on systemic
reviews of topics in three general areas: changing behaviors;
reducing diseases, injuries, and impairments; and addressing
environmental and ecosystem challenges (see Am J Prev
Med 2000; 18 (1S): 18-26). The Community Guide
is a federally sponsored initiative and is part of a family
of federal public health initiatives including Healthy People
2010 and the Guide to Clinical Preventive Services. To learn
more about this resource, go to: www.thecommunityguide.org/
This document from the National League of Cities gives towns
and cities concrete steps for strengthening families and
improving outcomes for children and youth by identifying
and strengthening needed infrastructure, promoting collaboration,
encouraging youth participation and leadership, and measuring
progress.
www.nlc.org/content/Files/IYEFPlatform05.pdf
The National Center for Cultural Competence (NCCC)
www11.georgetown.edu/research/gucchd/nccc/
The mission of the National Center for Cultural Competence
is to increase the capacity of health care and mental health
programs to design, implement and evaluate
culturally and linguistically competent service
delivery systems. Spanish
Version
- Products
and tools
The NCCC has the following materials: Policy Briefs, Racial
and Ethnic Disparities on Oral Health, Checklists (self-assessment
tools for agencies and providers), Planning Guides (how
to get started), How to incorporate cultural competence
in transitioning to adulthood for youth with special health
needs. This includes:
- Promotion Cultural and Linguistic Competency Self-Assessment
Checklist for Personnel Providing Primary Health
Care Services
- Promotion Cultural Diversity and Competency Self-Assessment Checklist for Personnel Providing
Services and Supports to CYSHCN and their Families
- Cultural
and Linguistic Competence Resource Database
The NCCC maintains a database of cultural competence
resource materials as they relate to the NCCC projects.
This online resource database includes information on
the type, category, population, title, author, project,
and a description of the resource.
Social Capital: Endeavors to Translate the Concept
into Practice
Social Capital is a term that is being used nationally
and internationally to conceptualize and define the importance
of social relationships, on the individual, family and community
levels, to the health and well-being of individuals and
communities. Although the term may seem intuitive and the
concept overly simplistic, endeavors to translate the concept
into practice are in their infancy and proving to be much
more complex than would have otherwise been predicted. (Macinko,
J., & Starfield, B. (2001). The Utility of Social Capital
in Research on Health Determinants. The Milbank Quarterly,
79 (3), 387-427.)
Social
Capital Pre-Conference—View Sessions, Faculty &
Handouts
From the CATCH & Medical Home National Conference
July 15, 2004 This meeting was among the first
to attempt to define how to apply the concept of Social
Capital to the practice of Pediatrics.
Updated
July 14, 2008
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