A number of not-for-profit
organizations offer free or low cost literature regarding
specific health conditions. They may also publish newsletters
and magazines and may have local chapters, affiliates, or
support groups in your area. If you cannot leave your house
or live in an isolated area, you may also be able to find
a pen pal or online support group.
Other Aphasia Organizations (nonprofit)
Brain Injury, Stroke, etc Resources
American
Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Phone: 888-478-7653
Website: www.americanheart.org |
American
Stroke Association
7272 Greenville Avenue
Dallas, TX 75231
Phone: 888-478-7653
Website: www.strokeassociation.org |
Brain
Injury Association
1608 Spring Hill Rd, Ste 110
Vienna, VA 22182
Family Helpline: 800-444-6443
Website: www.biausa.org |
Brain Injury Resource Center
PO Box 84151
Seattle, WA 98124
brain@headinjury.com
Website: www.headinjury.com |
National
Brain Tumor Foundation
22 Battery St., Suite 612
San Francisco, CA 94111
nbtf@braintumor.org
Website: www.braintumor.org |
National
Stroke Association
9707 E. Easter Ln.
Centennial, CO 80112
Phone: 800-787-6537
Website: www.stroke.org |
Society for Neuroscience
1121 14th St NW, Ste 1010
Washington, DC 20005
(202) 962-4000
info@sfn.org
www.sfn.org |
American Association of Neuroscience Nurses
4700 W. Lake Ave
Glenview, IL 60025
(888) 557-2266 (toll free) or (847) 375-4733
info@aann.org
www.aann.org |
Brain & Spinal Cord.org
(800) 800-0640
www.brainandspinalcord.org |
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Rehabilitation Resources
American
Congress of Rehabilitation Medicine
6801 Lake Plaza Dr, Ste B-205
Indianapolis, IN 46220
Phone: 317-915-2250
Website: www.acrm.org
Professional organization representing diverse professional
disciplines interested in rehabilitation.
|
Joint Commission on Accreditation of Healthcare Organizations (JCAHO)
One Renaissance Blvd.
Oakbrook Terrace, IL 60181
Phone: 630-792-5000
Website: www.jointcommission.org
Accredits hospitals, homecare facilities, ambulatory
care facilities, long-term care facilities, laboratories,
and networks (HMOs, etc.). Ratings are posted online. |
Rehabilitation
Accreditation Commission (CARF)
4891 E Grant Rd
Tucson, AZ 85712
Website: www.carf.org
Search online for accredited rehabilitation facilities
in specific locations. |
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Federal Government Resources
HEATH
Resource Center
National Clearinghouse on Postsecondary Education for
Individuals with Disabilities
George Washington University
2134 G St, NW
Washington, DC 20052
Phone: 202-973-0904
Website: www.heath.gwu.edu
Information about educational support services, and
opportunities on campuses, vo-tech schools, adult education
programs, independent living centers, transition and
other training entities after high school. |
Job
Accomodation Network (JAN)
PO Box 6080
Morgantown, WV 26506-6080
Phone: 800-526-7234 (USA)
Website: http://janweb.icdi.wvu.edu
Information for job seekers with disabilities. |
National
Health Information Center
Phone: 800-336-4797, 301-565-4167
Website: www.health.gov/nhic
A source for many health-related referrals. |
National
Institute on Deafness and Other Communication Disorders
(NIDCD)
31 Center Dr, MSC 2320
Bethesda, MD 20892-2320
Phone: 800-241-1044
Website: www.nidcd.nih.gov
A branch of the National Institutes of Health that has
materials about aphasia. They will also conduct literature
searches on research about aphasia and related disorders.
|
National Information Center for Children and Youth with Disabilities
PO Box 1492
Washington, DC 20013
Phone: 800-695-0285
Website: www.nichcy.org
Focuses on children and youth (birth to age 22). |
|
General Disability Resources
Association for Driver Rehabilitation Specialists (ADED)
2425 N Center St #369
Hickory, NC 28601
Phone: 877-529-1830
Email: info@aded.org
Website: www.driver-ed.org
Will assist individuals in finding programs in their
area. |
Friend's
Health Connection
PO Box 114
New Brunswick, NJ 08903
Phone: 800-483-7436
Website: www.48friend.org
Connects people with the same disease, illness, handicap,
or injury for mutual support. |
National
Association of Area Agencies on Aging
1730 Rhode Island Ave NW
Washington, DC 20036
Phone: 202-872-0888
Website: www.n4a.org
Member agencies coordinate a variety of home and community
services, including information/referral, home delivered
and congregate meals, transportation, employment services,
senior centers, and adult day care. |
National
Easter Seals Society
230 West Monroe, Suite 1800
Chicago, IL 60606
Phone: 800-221-6827, 312-726-6200
Website: www.easterseals.com
Services vary by chapter. Some are adult rehabilitation
centers and have groups that offer support and information
for people with aphasia and their families. |
National
Patient Travel Center
4620 Haygood Rd., Suite 1
Virginia Beach, VA 23455
Phone: 800-296-1217
Webste: www.patienttravel.org
Information for persons in medical or financial crisis
who cannot afford transportation to distant cities for
specialized evaluation, diagnosis, treatment, or rehab.
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Caregiver
Resources
Links Updated March 2008.
Please contact us at naa@aphasia.org if information is incorrect.
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