Welcome to the Family Voices Website. This page is the starting place for all other pages.

Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
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What's New

Take Action - Visit With Your Members of Congress
Take Action for Health Care Reform Your representatives and senators are now on summer recess until September 8 and this is a perfect time to visit with them in their home districts and discuss health care reform. Communications and negotiations regarding health care reform are on-going and in fact, many important decisions regarding the bills will be made during this recess period. That’s why Family Voices is encouraging you all to get involved in not only moving health care reform forward but also to help refund the Family-to-Family Health Information Centers. More information and resources are available on our Take Action for Health Care Reform page.

FAMILY VOICES Platform on Health Care Reform
A Family President Obama has made health care reform a priority and we believe it is critical to include the needs of families of children and youth with special health care needs and disabilities in shaping new policies and programs. The Family Voices' Platform on Health Care Reform identifies our position on affordable care, comprehensive benefits, and family-centered health systems that must be included in health care reform to meet the needs of families.

Kids as Self AdvocatesNew KASA Newsletter
KASA — Kids as Self Advocates — now have their own newsletter. Visit the KASA website to download the newsletter to get the scoop on the latest activities of the KASA Advisory Board, their 3-year goals, and their advocacy experiences.

Growing Your Capacity to Engage Diverse Communities by working with Community Liaisons and Cultural Brokers Growing Your Capacity to Engage Diverse Communities by working with Community Liaisons and Cultural Brokers
Learn more about building relationships with community liaisons and cultural brokers to reach families of CYSHCN, particularly members of underserved groups, in this new 19-page publication. Visit our online catalog to order your hardcopy or download it here.

Family-Centered Care Tools
Family-Centered Care ToolsThese newly-published Family-Centered Care Self-Assessment Tools are designed as an opportunity for health care practices and families to assess current areas of strength and identify areas for growth, plan future efforts, and track progress toward family-centered care. These tools include a Family Tool, a Provider Tool, and a Users Guide. Please feel free to download and use these or order them as a set from our online catalog.

KASA Pocket Guide
KASA Pocket GuideKids As Self Advocates (KASA) has published a new pocket guide, How to be Involved in a Board or Council: Roles & Responsibilities. This booklet is written by youth for youth and contains tips and advice on being an effective member of a board or council. Visit our online catalog to order. For more information about KASA, please visit the KASA website.

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