Home > Programs > Research Grants > Stigma
Project Profile
![Gretchen Birbeck posing with two little African girls](https://webarchive.library.unt.edu/eot2008/20090825054820im_/http://www.fic.nih.gov/programs/images/birbeck_w_africangirls.jpg)
Dr. Gretchen Birbeck of Michigan State University works on the team conducting research into epilepsy-associated stigma.
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Table of Contents
- Purpose
- Inquiries
- Stigma and Global Health Awardees (2003)
- Partners
- Stigma and Global Health Conference: September 5-7, 2001
- Evaluation
- Archive
I. Purpose
The purpose of the Stigma and Global Health Research Program is to stimulate interdisciplinary, investigator-initiated research on the role of stigma in health, and on how to intervene to prevent or mitigate its negative effects on the health and welfare of individuals, groups and societies world-wide.
The objectives of this program are to encourage research across a variety of scientific disciplines including the biomedical, social and behavioral sciences, to elucidate the etiology of stigma in relation to public health as well as to develop and test interventions to mitigate the negative effects of stigma on health outcomes. Studies may examine stigma and public health in domestic, international and cross-cultural contexts, with an emphasis on studies that are relevant to global health issues. Applicants are encouraged to undertake interdisciplinary studies, where possible, using behavioral, social and biomedical science approaches.
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II. Inquiries
General Inquiries
Program Officer
Division of International Training and Research
Fogarty International Center
National Institute of Health
Building 31, Room B2C39
31 Center Drive MSC 2220
Bethesda, MD 20892-2220
Telephone: (301) 496-1653
FAX: (301) 402-0779
United States, NIH
Program Officer
Division of International Training and Research
Fogarty International Center
National Institute of Health
Building 31, Room B2C39
31 Center Drive MSC 2220
Bethesda, MD 20892-2220
Telephone: (301) 496-1653
FAX: (301) 402-0779 |
Program Director
Ethical, Legal, and Social Implications Program
National Human Genome Research Institute
National Institutes of Health
Building 31, Room B2B07
31 Center Drive, MSC 4997
Bethesda, MD 20892-2033
Telephone: 301-402-4997
Fax: 301-402-1950 |
Chief, International and Health Education Programs Branch
National Institute on Alcohol Abuse and Alcoholism
National Institutes of Health
6000 Executive Boulevard, Suite 302
Rockville, MD 20852
Telephone: 301-443-2594 |
Vaccine and Prevention Research Program
Division of AIDS, NIAID/NIH
National Institute of Allergy and Infectious Diseases
6700B Rockledge, Room 4157, MSC 7620
Bethesda, MD 20892-7620
Telephone: 301 496 6179 |
Director, Behavioral and Social Science Research
Division of Population and Health Promotion Sciences
National Institute of Dental and Craniofacial Research
National Institutes of Health
Building 45, Room 4AN24E, MSC 6402
Bethesda, MD 20892-6402
Telephone: 301-594-2095
Fax: 301-480-8318 |
Branch Chief
Behavioral and Cognitive Sciences Research Branch
Division of Neuroscience and Behavioral Research
National Institute on Drug Abuse
National Institutes of Health
6001 Executive Boulevard, Room 4282, MSC 9555
Bethesda, MD 20892
Telephone: 301-435-1322
Fax: 301-594-6043 |
Division of Mental Disorders, Behavioral Research and AIDS
National Institute of Mental Health
6001 Executive Boulevard, Room 6186, MSC 9625
Bethesda, MD 20892-9625
Telephone: 301-443-1636
Fax: 301-443-4611 |
Division of Mental Disorders, Behavioral Research, and AIDS
National Institute of Mental Health
6001 Executive Boulevard, Room 6204, MSC 9619
Bethesda, MD 20892-9619
Telephone: 301-443-1613 |
Program Director, Epilepsy Research
National Institute of Neurological Disorders and Stroke, NIH
Neuroscience Center
6001 Executive Boulevard, Room 2138, MSC 9523
Bethesda, MD 20892-9523
Telephone: 301-496-1917
Fax: 301-480-2424 |
Health Scientist Administrator
Office of AIDS Research
Office of the Director
National Institutes of Health
Building 31, Room 4C06
31 Center Drive
Bethesda, MD 20892
Telephone: 301-402-3555
Fax: 301-496-4843 |
Director, Programs and Management
Office of Research on Women's Health
Building 1, Room 201
9000 Rockville Pike, MSC 0161
Bethesda, MD 20892-0161
Telephone: 301-402-1770
Fax: 301-402-1798 |
Fogarty International Center
Bruce Butrum
Grants Management Officer
Grants Office
Fogarty International Center
Building 31, Room B2C29
31 Center Drive, MSC 2220
Bethesda, MD 20892-2220
Telephone: 301-496-1670
Fax: 301-402-0779 |
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III. Stigma and Global Health Awardees (2003)
Awardees conducting international studies
Principle Investigator: Cecilia Benoit
University of Victoria, British Colombia, Canada
cbenoit@uvic.ca
http://web.uvic.ca/~cbenoit/
Collaborator(s) and Institution(s): McCarthy, Bill D., University of California, U.S.A.
Title of Project: Work, Health, and Health Care Access in U.S. and Canada
Awarding Institution: Canadian Institute for Health Research (CIHR)
Program Officer: Barbara Beckett bbeckett@cihr-irsc.gc.ca
Summary: Dr. Cecilia Benoit, University of Victoria, British Columbia, Canada, will work with colleagues at the University of California, Davis to conduct a study on work, health, and health care access in the U.S. and Canada. The researchers will test the hypothesis that experiences associated with a stigmatizing mental or physical health condition are most pronounced among those who have limited economic resources, restricted access to health care, or additional sources of negative labeling. The study will explore the experiences of service workers in two cities in the U.S. and two cities in Canada.
Principle Investigator: Gretchen Birbeck
Michigan State University
birbeck@msu.edu
Foreign Collaborator(s) and Institution (s): Marsharip Atadzhanov, University of Zambia
Title of Project: Epilepsy-associated stigma in Zambia
Awarding NIH IC: National Institute of Neurological Disorders and Stroke (NINDS).
Summary: Dr. Gretchen Birbeck, Michigan State University, is working with colleagues at the University of Zambia on a study that examines epilepsy and its social and economic consequences from the perspective of diverse groups. It aims to elucidate the social, psychological and economic context necessary to facilitate development of interventions that will improve the lives of people with epilepsy in the region.
Principle Investigator: Jeannine Coreil
University Of South Florida
jcoreil@hsc.usf.edu
Foreign Collaborator(s) and Institution (s): Gladys Mayard, Hospital St Croix, Haiti
Title of Project: Stigma and Tuberculosis in Haitian Populations
Awarding NIH IC: Fogarty International Center (FIC).
Summary: Dr. Jeannine Coreil, University of South Florida, will work with researchers at Hôpital St. Croix in Port-au-Prince, Haiti on a study that proposes to examine the sociocultural context of TB stigma, develop instruments to measure it in Haitian populations in Haiti and the U.S., and advance the understanding of how it influences adherence rates for latent TB therapy.
Principle Investigator: Patrick Corrigan
University Of Chicago
p-corrigan@uchicago.edu
Foreign Collaborator(s) and Institution (s): Hector Tsang, Hong Kong Polytechnic University
Title of Project: Stigma & Behavioral Health in Urban Employers from China & US
Awarding NIH IC: National Institute on Alcohol Abuse and Alcoholism (NIAAA).
Summary: Dr. Patrick Corrigan, University of Chicago, will collaborate with colleagues at Hong Kong Polytechnic University in China on a study that looks at the effects of stigma associated with health disorders that are seen as behaviorally driven. It will focus on employer attitudes to alcohol abuse, psychotic disorders and HIV/AIDS at sites in Chicago, Beijing, and Hong Kong.
Principle Investigator: Maria Ekstrand
University Of California San Francisco
mekstrand@psg.ucsf.edu
Foreign Collaborator(s) and Institution (s): Shalini Bharat, Tata Institute of Social Sciences, India; Jayashree Ramakrishna, National Institute of Mental Health and Neurosciences, INDIA
Title of Project: AIDS Stigma & Gender: Health Consequences in Urban India
Awarding NIH IC: Fogarty International Center (FIC).
Summary: Dr. Maria Ekstrand, University of California, San Francisco is collaborating with colleagues in India - at the Tata Institute of Social Sciences in Mumbai, and the National Institute of Mental Health and Neurosciences in Bangalore- to examine AIDS stigma and discrimination by gender among people who come in contact with the urban health care systems in both cities.
Principle Investigator: William Holzemer
University of California, San Francisco
Bill.Holzemer@nursing.ucsf.edu
Foreign Collaborator(s) and Institution (s): Leana Uys, University of Natal, South Africa; Lucy Makoae, University of Lesotho; Maureen Chirwa, University of Malawi; Priscilla Slamini, University of Swaziland; Thecla Kohi, Muhimbili University, Tanzania
Title of Project: Perceived AIDS Stigma: A Multinational African Study
Awarding NIH IC: Fogarty International Center (FIC).
Summary: Dr.William Holzemer, University of California San Francisco, will work with colleagues in South Africa, Lesotho, Malawi, Swaziland and Tanzania on a study that focuses on assessing and intervening against HIV/AIDS stigma in Sub-Saharan Africa. It will compare HIV/AIDS stigma between and within countries, in urban and rural settings, among men and women living with HIV/AIDS, and among nurses, offering a unique opportunity to evaluate both patients and nurse providers in countries severely ravaged by the disease.
Principle Investigator: Li Li
University of California, Los Angeles
LiLiLiLi@ucla.edu
Foreign Collaborator(s) and Institution (s): Zunyou Wu, Chinese Center for Disease Control and Prevention
Title of Project: HIV Related Stigma Among Service Providers in China
Awarding NIH IC: National Institute of Mental Health (NIMH).
Summary: Dr. Li Li, University of California Los Angeles, will collaborate with researchers at the China Center for Disease Control and Prevention in Beijing on a study that addresses HIV-related stigma among health care providers in Yunnan Province and how it influences health care delivery to persons living with HIV.
Principle Investigator: Xiaoming Li
Wayne State University
xiaoli@med.wayne.edu
Foreign Collaborator(s) and Institution (s): Fang Xiao Yi, Beijing Normal University, China
Title of Project: Social Stigma/ Mental Health Symptoms in Urban Workers
Awarding NIH IC: Fogarty International Center (FIC).
Summary: Dr. Xiaoming Li, Wayne State University, with collaborators at the Beijing Normal University in China, will conduct a study related to social stigma/ mental health symptoms in migrant workers. Although this study will evaluate the effect of stigma on the mental health of migrant workers in Beijing, the findings and research approach developed could well apply to migrant populations in other regions and countries.
Principle Investigator: Bernice Pescosolido
Indiana University at Bloomington
pescosol@indiana.edu
Foreign Collaborator(s) and Institution (s): Raul Jorrat, University of Buenos Aires, Argentina; Q.K. Ahmad, Bangladesh Unnayan Parishad, Bangladesh; Alberta Carlos Almedia, Fundacao Getulio Vargas, Brazil; Lillia Dimova, Agency for Social Analyses, Bulgaria; Bambos Papaheorgiou, Cyprus College, Cyprus; Markku Ojanen and Sami Borg, University of Tampere, Finland; Janet Harkness, ZUMA Center for Survey Research; Alison Park, British Social Attitudes, United Kingdom; Bela Bartok and Peter Robert, TARKI Social Research Center, Hungary; Tomoko Matoba, University of Tokyo, Japan; Phil Gendall, Massey University, New Zealand; Mahar Mangahas and Linda Guerro, Social Weather Stations, Phillippines; Mari Harris, Markinor Ltd., South Africa
Title of Project: Stigma and Mental Illness in Cross-National Perspective
Awarding NIH IC: Fogarty International Center (FIC).
Summary: Dr. Bernice Pescosolido, Indiana University, will work with partners in 15 countries to examine the levels and correlates of the stigma of major depression, schizophrenia and bi-polar disorder. The foreign collaborators are from institutions in Argentina, Australia, Bangladesh, Brazil, Bulgaria, Cyprus, Finland, Germany, Hungary, Japan, New Zealand, The Philippines, South Africa, Spain, and the United Kingdom.
Principle Investigator: Elizabeth Saewyc
University of Minnesota, Twin Cities
saewyc@umn.edu
Title of Project: Enacted Stigma, Gender and Risk Behaviors of School Youth
Awarding NIH IC: National Institute on Drug Abuse (NIDA).
Summary: Dr. Elizabeth Saewyc, University of Minnesota, is conducting a multinational study that explores stigma behavior among indigenous, Asian-ancestry, and European-ancestry adolescents in school environments in Canada, New Zealand, and the United States. It aims to develop cross-cultural measures of enacted stigma for adolescent health surveys, and examine the association of types of stigma and HIV risk behaviors among adolescents.
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Principle Investigator: Linda Tickle-Degnen
Boston University
tickle@bu.edu
Title of Project: Culture, Gender, and Health Care Stigma in Parkinsonism
Awarding NIH IC: National Institute of Neurological Disorders and Stroke (NINDS).
Summary: Dr. Linda Tickle-Degnen, Boston University, will conduct a study whose goal is to understand the role of the stigmatizing movement disorder of Parkinson's disease in the health care practitioner's assessment of patient psychological traits, the patient-practitioner relationship, and the development of intervention recommendations.
Principle Investigator: Annelies Van Rie
University of North Carolina, Chapel hill
vanrie@email.unc.edu
Foreign Collaborator(s) and Institution (s): Petchawan Pungrassami, Prince of Songkla University, Thailand
Title of Project: Social Stigma of the New Tuberculosis
Awarding NIH IC: Fogarty International Center (FIC).
Summary: Dr. Annelies Van Rie, University of North Carolina at Chapel Hill, and colleagues at Prince of Songkla University, Thailand, will conduct a study that examines the effect of stigma associated with TB on treatment-seeking and adherence and proposes to develop a new measure to examine stigma in TB and HIV/AIDS co-infected patients.
Principle Investigator: Suniti Solomon
YRG CARE
suniti@yrgcare.org
Title of Project: Stigma in Health Care Settings in South India
Awarding NIH IC: Fogarty International Center (FIC).
Summary: Dr. Suniti Solomon, YRG CARE Medical Center, Chennai, India, is leading a study that will investigate stigma in healthcare settings in South India, using interviews to address how stigma is formulated, influenced, and expressed, how it affects healthcare, and how it can be reduced.
Awardees conducting studies limited to the United States
Principle Investigator: Jennifer Alvidrez
University of California, San Francisco
alvid@itsa.ucsf.edu
Title of Project: Stigma Psychoeducation for Black Mental Health Clients
Awarding NIH IC: National Institute of Mental Health (NIMH).
Summary: Dr. Jennifer Alvidrez, University of California, San Francisco, is examining stigma pyschoeducation for Black mental health clients. The study examines whether clients who receive psychoeducation report less concern about stigma, a greater perceived need for treatment and are more likely to enter outpatient treatment.
Principle Investigator: Daniel Dohan
University Of California, San Francisco
dohan@itsa.ucsf.edu
Title of Project: Poverty, Substance Use, and Stigma in Four Organizations
Awarding NIH IC: National Institute on Alcohol Abuse and Alcoholism (NIAAA).
Summary: Dr. Daniel Dohan, University of California, Berkeley, will conduct a study that examines how different healthcare organizations shape the stigma experiences of patients who are poor or have substance abuse problems. Qualitative research methods will be used to document how patients manage stigma and to examine how such management is affected by stigma-related attitudes and behaviors in healthcare organizations.
Principle Investigator: Beverly Heidi Ellis
Boston Medical Center
heidi.ellis@bmc.org
Title of Project: Stigma and PTSD in Refugee Adolescents
Awarding NIH IC: National Institute of Mental Health (NIMH).
Summary: Dr. Beverly Heidi Ellis, Boston Medical Center, is examining stigma and post traumatic stress disorder in refugee adolescents. The study, which will assess 150 Somali refugees in Massachusetts and Maine, lays the foundation for further examination of types of stigma experienced by adolescent refugees, pathways through which stigma relates to health outcomes, and potential areas of intervention for this population.
Principle Investigator: Barbara Kohlenberg
University of Nevada, Reno
barbarak@unr.edu
Title of Project: Reducing Felt Stigma in Substance Use Disorders
Awarding NIH IC: National Institute on Drug Abuse (NIDA).
Summary: Dr. Barbara Kohlenberg, University of Nevada, Reno, is conducting a study that aims to develop and implement an intervention for reducing felt stigma and its behavioral sequelae in substance abusing clients. Interventions will aim to change client attitudes, improve the relationship between the provider and the client, improve client engagement in treatment, reduce attrition and improve clinical outcomes.
Principle Investigator: Martha Miranda
University of California, Los Angeles
mirandaj@ucla.edu
Title of Project: Clinical Implications of Depression-Based Stigma
Awarding NIH IC: National Institute of Mental Health (NIMH).
Summary: Dr. Martha Miranda, Georgetown University, will examine clinical implications of depression- based stigma. This study will examine the extent to which stigma and its effects vary by ethnicity, contribute to failure to receive appropriate care for depression, and whether efforts to provide treatment or improve rates of treatment predict outcomes for persons both with and without stigma concerns.
Principle Investigator: Nelson Varas-Diaz
University of Puerto Rico
nvaras@rrpac.upr.clu.edu
Title of Project: AIDS Stigma and Health Professionals in Puerto Rico
Awarding NIH IC: National Institute on Drug Abuse (NIDA).
Summary: Dr. Nelson Varas-Diaz, University of Puerto Rico, will examine "AIDS stigma and Health Professionals in Puerto Rico." The study will look at professionals who interact with HIV infected individuals, through effective interventions that incorporate other stigmas surrounding the epidemic - negative attitudes towards sexual orientation, drug users, and women.
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IV. Partners
The Stigma and Global Health Research Program is a collaboration between:
View extensive information about the research interests of Stigma and Global Health RFA Partners.
V. Stigma and Global Health Conference: September 5-7, 2001
In partnership with other NIH Institutes and Centers, U.S. agencies, and domestic and international organizations, the Fogarty International Center (FIC) sponsored a major international conference: "Stigma and Global Health: Developing a Research Agenda." Focusing on stigma as it relates to public health, this conference examined the causes and consequences of stigma, both in the developing world and the United States. To see background papers, a complete conference video recording, speaker biographies, and media coverage of the conference, please visit www.stigmaconference.nih.gov.
View the evaluation of the Stigma program.
NOTE: We are in the process of generating a fully accessible version of the Stigma Review. Accessible sections will be posted as they are created. If you require access in the meantime, please contact us by email at FICinfo@mail.nih.gov, or by phone at 301-496-2075.
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Updated June 2009