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Chronic Health Conditions

AIDS.gov
An information gateway to guide users to federal HIV/AIDS information and resources on topics including prevention, testing and treatment and research programs.
ALS Association (ALSA)

Nonprofit organization provides research programs, patient and community services, public education and advocacy to people living with amyotrophic lateral sclerosis (ALS) - often referred to as "Lou Gehrig's disease" - and their families.

African Americans & Diabetes
Information from the American Diabetes Association regarding African Americans and Disabetes.
African Americans & HIV/AIDS - Key Facts
Includes an overview and epidemic profile, as well as data on major trends, access to and use of health services and perceptions of HIV/AIDS among African Americans.
African Americans & Stroke
Information and resources on African Americans and stroke from the U.S. Department of Health and Human Services' Office of Minority Health.
African-Americans & Glaucoma
Information from the Glaucoma Research Foundation on Glaucoma and African Americans.
Alzheimer's Association
Organization that provides local and national services and supports for people with Alzheimer's and their families.
Alzheimer's Caregiver Guide

Publication from the National Institute on Aging offers tips and resources on topics including dealing with diagnosis, choosing a nursing home and at home care.

Alzheimer's Disease Education & Referral (ADEAR) Center Web site

Web site from the National Institute on Aging helps you find current, comprehensive Alzheimer's disease information and resources.

Alzheimer's Disease Information: What is Alzheimer's?
Information about Alzheimer's Disease, including what it is, diagnosis and treatment options.
Alzheimer's Disease Supportive Services Program (ADSSP)
Develops and expands non-medical supportive service systems for individuals and families impacted by Alzheimer's disease and related disorders.
Alzheimer's Resource Room
Resources for people living with Alzheimer's, as well as their families and caregivers. Includes a 24/7 telephone helpline, available 365 days a year, that serves people with memory loss, caregivers, health care professionals and the general public.
American Parkinson Disease Association
Organization focuses on research, patient support, education and raising public awareness of the disease.
Arthritis Foundation
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.
Arthritis Information
Information, resources and links on arthritis from the Centers for Disease Control and Prevention.
Arthritis Introspective
National non-profit organization promotes health awareness and support systems across the U.S. for young adults between 20 and 60 diagnosed and living with Arthritis. Organization offers education, resources, support systems and an annual conference on all types of Arthritis.
Autoimmune Diseases: Frequently Asked Questions
Answers to common questions about autoimmune diseases from the U.S. Department of Health and Human Services.
Brain Injury Association of America (BIAA)
Works to create a better future through brain injury prevention, research, education and advocacy.
Brain Injury Network
National non-profit agency operated for and by survivors of acquired brain injury (abi), which includes traumatic brain injury (tbi), stroke, brain illness and brain tumor. Provides advocacy, information and referral, peer support, an Internet social community and a resource and link directory.
BrainLine
Provides a variety of information and resources on traumatic brain injury (TBI).
Cancer in the Workplace & the Americans with Disabilities Act (ADA) - Frequently Asked Questions
Equal Employment Opportunity Commission (EEOC) fact sheet addresses common questions regarding the ADA in relation to cancer.
Caring for Alzheimer's
Information and resources for caregivers of people living with Alzheimer's disease.
Census Bureau HIV/AIDS Surveillance
Links to ongoing monitoring of the AIDS pandemic and incidences of HIV.
Center for Healthy Aging
Encourages and assists community-based organizations serving older adults to develop and implement evidence-based programs on health promotion, disease prevention and chronic disease self management.
Centers for Disease Control & Prevention (CDC) HIV/AIDS Information Page

Information from CDC on HIV/AIDS prevention, treatment and research.

Centers for Disease Control & Prevention (CDC) E-Cards
This CDC E-card, which you can send to family and friends, contains important tips and information about programs relating to the health and wellness of people with disabilities.
Centers for Disease Control & Prevention's (CDC) Division of Diabetes Translation
Information on CDC's program to translate diabetes research into daily practices to understand the impact of the disease, influence health outcomes and improve access to quality health care.
Cerebral Palsy

Information from the Centers for Disease Control and Prevention (CDC) on cerebral palsy with links to research and resources.

Children with Diabetes
Information about juvenile diabetes and support for parents and children with diabetes.
Civil Rights Issues Facing the Blind & Visually Impaired in Illinois

Report submitted by the Illinois Advisory Committee as part of its responsibility to advise the U.S. Commission on Civil Rights on issues within the state.

Common Cancers

Information from the National Cancer Institute on cancers that are diagnosed with the greatest frequency in the U.S.

Complementary & Alternative Medicine in Cancer Treatment
Information on the use of non-traditional methods to treat cancer including dietary supplements, megadose vitamins, herbal preparations, special teas, acupuncture and massage therapy.
DaVita Patient Citizens
DPC is an independent, nationwide, non-profit, patient-governed dialysis patient organization dedicated to improving dialysis patients' quality of life by developing awareness of dialysis-related issues, advocating for dialysis and pre-dialysis patients, improving the partnership between patients and caregivers and promoting favorable public policy.
Dandy-Walker Syndrome
Information from the National Institute of Neurological Disorders and Stroke on Dandy-Walker Syndrome, a congenital brain malformation.
Defense Centers of Excellence (DCoE) for Psychological Health & Traumatic Brain Injury
A collaborative effort toward optimizing psychological health and traumatic brain injury (TBI) treatment for the Department of Defense. The DCoE establishes quality standards for: clinical care; education and training; prevention; patient, family and community outreach; and program excellence.
Diabetes Information
Information, resources and links on diabetes from the Centers for Disease Control and Prevention.
Dialysis Facility Compare
Information on the quality of care provided by local dialysis patient facilities.
Disability Information
Fact sheets and briefing papers from the National Dissemination Center for Children with Disabilities (NICHCY) regarding specific disabilities. Each defines the disability, describes its characteristics and offers tips for parents and teachers.
Disability Specific Fact Sheet Series
Disability specific fact sheets from Exceptional Parents Unlimited on a variety of topics including Autism, Traumatic Brain Injury, Down Syndrome and neurological disorders.
Drugs Used to Treat Cancer

Directory from the National Cancer Institute provides definitions and synonyms for drugs used to treat patients with cancer.

Epilepsy Foundation Information & Resources

Information from the Epilepsy Foundation of America about treatment options, what epilepsy is, living with epilepsy and other topics of interest.

Epilepsy Information
Information, resources and links on epilepsy from the Centers for Disease Control and Prevention.
Epilepsy in the Workplace: Frequently Asked Questions

Fact sheet regarding epilepsy in the workplace and the Americans with Disabilities Act.

Ergonomics
Information on the Occupational Safety & Health Administration's (OSHA) four-pronged program to address musculoskeletal disorders in the workplace.
Executive Order on Stem Cell Research

On March 9, 2009 President Obama signed an Executive Order removing barriers to responsible scientific research involving human stem cells and a Presidential memo on scientific integrity. Research involving human embryonic stem cells and human non-embryonic stem cells may lead to a better understanding and treatment of many disabling diseases and conditions.

Financial Aid for Health Professions Students & Practitioners
Loans, scholarships and loan re-payment resources for students and practioners involved in health professions.
First Signs
A national non-profit organization dedicated to educating parents and professionals about the early warning signs of autism and related disorders.
Getting Help With Medicare Prescription Drug Plan Costs

If you are disabled and have been receiving Social Security disability benefits for 24 months, have permanent kidney failure that requires maintenance dialysis or a kidney replacement, or have amyotrophic lateral sclerosis (Lou Gehrig's disease), you may be able to get help paying for monthly premiums, annual deductibles and co-payments. You can apply online.

HHS to Award $1.79 Billion to Help People Living with HIV/AIDS
The U.S. Department of Health and Human Services (HHS) today announced the release of $1.79 billion to ensure that people living with HIV/AIDS continue to have access to life-saving health care and medications.
Hearing Loss in Children

Fact sheet from the Centers for Disease Control and Prevention (CDC) on hearing loss with answers to frequently asked questions.

Hereditary Blood Disorder Topics

Links to data and resources on various blood disorders.

Hospital Compare
This tool provides information on how well hospitals care for all their adult patients relating to certain conditions or procedures. This information will help you compare the quality of care hospitals provide.
Human Development Health Topics

Links to data and resources listed according to disabilities, including hearing loss, limb loss and Attention Deficit Disorder/Hyperactivity Disorder (ADHD).

Hydrocephalus Association
Provides support, education and advocacy for individuals with Hydrocephalus, their families and professionals working with these individuals.
Hydrocephalus Fact Sheet
Fact sheet from the National Institute of Neurological Disorders and Stroke about Hydrocephalus, a condition in which excessive fluid accumulates in the brain.
Indian Health Service (IHS) National Diabetes Program

Information on developing, documenting and sustaining a public health effort to prevent and control diabetes in American Indian and Alaska Native peoples.

Information & Advocacy Organizations for People with Physical Disabilities
List of national organizations which serve as information clearinghouses, referral agencies and legislative advocates for people with physical disabilities, their families and the professionals who work with them.
Information & Resources on Specific Disabilities
A variety of online resources related to specific disabilities.
Interacting & Communicating with People with Disabilities
Publication from NASA's Goddard Space Flight Center suggests ways to promote effective communication between people with and without specific disabilities.
Invisible Disabilities Advocate
Strives to help friends and family better understand chronic illness and pain, as well as learn how to be a source of encouragement and support.
John Tracy Clinic
Education center that offers families of infants and preschool children with hearing losses free, parent-centered services worldwide. The clinic provides free hearing tests for children from birth up to age five who live in Southern California.
Latex Allergy Information

Fact sheet on the growing health risk of latex-sensitive workers' exposure to latex gloves and possible solutions.

Living with Alzheimer's
Information and resources from the Alzheimer's Association on living with Alzheimer's Disease, including how to handle financial matters, information on Medicare and Medicaid and message boards.
Lyme Disease Association

An all-volunteer national non-profit organization dedicated to Lyme disease education, prevention, research and patient support. Find your local affiliate.

Medline Plus Health Information

Disability-specific and general information on hundreds of diseases, conditions and wellness issues.

Mesothelioma & Asbestos Awareness Center
Organization dedicated to increasing awareness of mesothelioma cancer and asbestos exposure through information and educational materials.
Mesothelioma Overview
Provides information on Mesothelioma, a type of cancer normally associated with exposure to asbestos, including causes, diagnosis and treatment options.
Multiple Sclerosis Association of America (MSAA)
National nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis.
Myasthenia Gravis Foundation of America
Only national volunteer health agency dedicated solely to the fight against myasthenia gravis, a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups.
Myasthenia Gravis: Frequently Asked Questions
Answers to common questions about Myasthenia Gravis, an autoimmune disease, from the U.S. Department of Health and Human Services.
National Aphasia Association

A nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.

National Cancer Institute (NCI)

A part of the National Institutes of Health, NCI conducts and supports research, training and information dissemination with respect to the causes, diagnosis, prevention and treatment of cancer. Includes an alphabetical listing of all types of cancers.

National Disability Information Centers for Consumers & Professionals

Information on three disability information centers that focus on physical activity for people with disabilities and the health of people with limb loss and those with paralysis.

National Fragile X Foundation
Provides educational and emotional support, promote public and professional awareness and advance research toward improved treatments and a cure for Fragile X, a family of genetic conditions which can impact individuals and families in various ways including learning disabilities and severe cognitive or intellectual disabilities.
National Heart, Lung & Blood Institute

Information on lung disease, chronic heart problems and sickle cell disease.

National Institute of Arthritis & Musculoskeletal & Skin Disease

Information on course and treatment of arthritis psoriasis.

National Institute of Diabetes & Digestive & Kidney Diseases

Information related to diabetes, eating disorders and chronic disease related to kidney disease.

National Institute of Neurological Disorders & Stroke (NINDS) Learning Disabilities Information Page
Information and resources for learning disabilities, disorders that affect the ability to understand or use spoken or written language, do mathematical calculations, coordinate movements or direct attention.
National Multiple Sclerosis (MS) Society

The MS Society and its nationwide network of chapters promote research and educate, advocate on critical issues and organize a wide range of programs, including support for the newly diagnosed and those living with MS.

National Native American AIDS Prevention Center

Current information on HIV/AIDS, statistics, events, resources, prevention, treatment and links related to American Indians, Alaskan Natives and Native Hawaiians.

National Organization for Rare Diseases
A federation of voluntary health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them.
Neurological Disorders
Resources and links compiled by the National Institute of Neurological Disorders and Strokes.
New Standard for Assessing Health Status of People with Disabilities

Information on a move to classify people with a "disabling" condition as healthy regardless of the body part involved.

Noise & Hearing Conservation

Information on hazardous noise and successful hearing conservation programs.

Noise & Hearing Loss Prevention

Safety and health tips on preventing hearing loss in the workplace.

Occupational Asthma

Questions linking to information relevant to occupational asthma in the workplace.

Office of Minority Health Information by Topic
Web page from the U.S. Department of Health and Human Services' Office of Minority Health offers information on a variety of health conditions. Click on the topic of your choice to find the latest news, statistics, prevention and treatment information, funding and publications about that subject.
Office of National AIDS Policy
Information from the White House Web site regarding HIV/AIDS, including information on policy and links to fact sheets on AIDS and AIDS prevention.
Practical Effects of Cancer
Information from the Lance Armstrong Foundation on how the cancer experience may affect day-to-day life. Includes resources to help with assistance programs, employment, health care planning, insurance, legal issues and other topics.
Psychiatric Disabilities & the Americans with Disabilities Act (ADA): Enforcement Guidance

U.S. Equal Employment Opportunity Commission (EEOC) guidance on enforcing ADA provisions as they relate to psychiatric disabilities.

Rehabilitation Research & Training Center (RRTC) on Community Integration of Persons with Traumatic Brain Injury (TBI)
Center provides information and resources to help people affected by TBI, their families and professionals who work with and treat them in order to maximize their access to services and their participation in their communities.
Rett Syndrome (RS) Facts
Information on RS, a neurological/neurodevelopmental disorder seen almost exclusively in females.
SSA Holds Compassionate Allowances Hearing on Early-Onset Alzheimer's Disease

The Social Security Administration (SSA) heard testimony from some of the nation's leading experts on early-onset Alzheimer's disease and related dementias about possible methods for identifying and implementing Compassionate Allowances for people living with early-onset Alzheimer's.

Scleroderma Foundation

The national organization for people with scleroderma (or systemic sclerosis) and their families and friends.

Spina Bifida Association of America (SBAA)
The nation's only voluntary health agency dedicated to enhancing the lives of those with spina bifida and those whose lives they touch.
Spinal Muscular Atrophy (SMA) Information
Information and support for children and adults with Spinal Muscular Atrophy.
State AIDS Drug Assistance Programs
Information on state programs to assist people living with HIV and AIDS.
Swine Flu: Information for Parents & Caregivers

Information from the Centers for Disease Control & Prevention (CDC) on H1N1 (swine flu) and steps you can take to protect your family and those you care for and when to seek medical care.

Talking With Patients About Cognitive Problems

Information from the National Institute on Aging offers specific techniques that can help health care providers to talk with patients and caregivers about a diagnosis.

Tinnitus Information

Fact sheet from the National Center for Rehabilitative Auditory Research includes a description of symptoms and information on evaluation and treatment.

Traumatic Brain Injury (TBI)

Centers for Disease Control and Prevention (CDC) home page on traumatic brain injury, with links to fact sheets, research and resources.

U.S. Government Printing Office (GPO) Bookstore Subject Bibliography: AIDS (Acquired Immune Deficiency Syndrome)

Publications, subscriptions and electronic products relating to AIDS that can be purchased from GPO.

U.S. Government Printing Office (GPO) Bookstore Subject Bibliography: Cancer

Publications, subscriptions and electronic products relating to cancer that can be purchased from GPO.

U.S. Government Printing Office (GPO) Bookstore Subject Bibliography: Diseases

Publications, subscriptions and electronic products relating to diseases that can be purchased from GPO.

Understanding Cancer
Slide-show presentation about causes, prevention and treatment of cancer.
Vestibular Disorders Association

Provides information for and about people who have inner ear balance disorders, including benign paroxysmal positional vertigo (BPPV), labrynthitis, Meniere's and many more. Also offers a health care provider directory.

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