Information to help inform and support people living with amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's disease," and their families and caregivers.
Helps parents, caregivers and professionals find respite services in their state and local area to match their specific needs. Respite is temporary relief for caregivers and families who are caring for people with disabilities, chronic or terminal illnesses and the elderly.
Publication from the National Institute on Aging offers tips and resources on topics including dealing with diagnosis, choosing a nursing home and at home care.
March/April 2009 Ask Medicare newsletter with information on subjects including Advance Directives; Help Paying for Drug Coverage; and the National Caregivers Library. This link opens a PDF document.
Provides information, tools and materials to assist the caregiver and their loved ones in making informed health care decisions.
Information on caregiver support programs in each of the 50 states and the District of Columbia.
Resources for caregivers and links to organizations that provide assistance.
Information and resources for caregivers of people living with Alzheimer's disease.
Information about juvenile diabetes and support for parents and children with diabetes.
Information and links to resources for caregivers of people with paralysis.
DPC is an independent, nationwide, non-profit, patient-governed dialysis patient organization dedicated to improving dialysis patients' quality of life by developing awareness of dialysis-related issues, advocating for dialysis and pre-dialysis patients, improving the partnership between patients and caregivers and promoting favorable public policy.
Brochure describes ways to assess when a loved one needs outside care. It covers developing a care plan, organizing important documents and what you can do to give support.
Nationwide database of Aging Network agencies available to help older adults with disabilities and their family caregivers access needed services and support.
Offers state-by-state help for family caregivers. Includes services for family caregivers, as well as resources for older or disabled adults living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, disease-specific organizations and much more.
Provide caregivers with the basic tools, skills and information they need to protect their own physical and mental health while they provide high quality care for their loved one. Includes information on how to find help for caregivers - from financial assistance to home care to respite care.
Information from the FDIC on insurance coverage for accounts you are managing as a caregiver.
Loans, scholarships and loan re-payment resources for students and practioners involved in health professions.
Advice from the Federal Deposit Insurance Corporation (FDIC) on how to prevent and deal with potential money problems when loved ones are ill.
More than seven million people who get monthly Social Security or Supplemental Security Income (SSI) benefits need help managing their money. This booklet explains the responsibilities of a representative payee, and the importance of knowing what the beneficiary's needs are so you can decide how benefits can best be used for his or her personal care and well-being.
Booklet examines topics such as how to find and compare nursing homes, nursing home resident rights and where to call for help.
Health & Human Services (HHS) Secretary Kathleen Sebelius today announced a funding opportunity that will make it easier for older people, younger adults and their families to learn about and access health and long-term care through Aging & Disability Resource Center Programs (ADRCs). ADRCs provide one-on-one counseling and streamlined access to programs and services that can enable people to remain in their own homes and communities. Find your local ADRC.
Booklet about informal caregiving (unpaid care given voluntarily to ill or disabled persons by their families and friends).
Non-profit news organization provides in-depth information and updates on issues related to health care policy.
Paper examines family caregiving including caregiver employment, attention to other family needs, health and finances.
The National Institute of Health's guide for Medicare basics for caregivers.
Provides information related to the health and care of a person with Medicare, including planning for future health care decisions, navigating Medicare, health care choices and billing. This link opens a PDF document.
Provides support to physicians, families and other medical and non-medical providers who care for children with special needs so that they have access to a medical home.
Supports efforts to improve recruitment and retention of direct service workers who help people with disabilities and older adults to live independently and with dignity.
Resources for families, caregivers and professionals including where to find support, assistance and services.
Supports, empowers, educates and speaks up for the more than 50 million Americans who care for a chronically ill, aged or disabled loved one.
Find an advocate for residents of nursing homes, board and care homes and assisted living facilities. Ombudsmen provide information about how to find a facility and what to do to get quality care. They are trained to resolve problems.
An online directory that offers resources and information to help wounded warriors, their families and those who serve them as they transition back to civilian life.
A guide for people with disabilities, benefits counselors, disability organizations and others on ensuring adequate and appropriate access to prescription drugs. Document is in Word format.
The Centers for Medicare & Medicaid Services (CMS) launched Ask Medicare, a new initiative to help family caregivers access valuable health care information, services and resources.
Provides detailed information on health plans, nursing homes, Medigap policies, contacts and Medicare.
Non-profit organization helps people find assistance with prescription drug costs. Web site offers free access to discount drug cards and coupons, cash discounts, copay programs and manufacturers free prescription drug programs.
Links to information on support services, caregiving organizations, care homes, special needs trusts and more.
Fact sheet regarding respite care, temporary care provided to people with disabilities in order that their families can take a break from the daily routine of caregiving.
The Social Security Administration (SSA) heard testimony from some of the nation's leading experts on early-onset Alzheimer's disease and related dementias about possible methods for identifying and implementing Compassionate Allowances for people living with early-onset Alzheimer's.
The Chapel-Hill Training Outreach Project provides links to all state respite coalitions. These organizations provide temporary relief for caregivers and families who are caring for people with disabilities or chronic and terminal illnesses.
Information from the Centers for Disease Control & Prevention (CDC) on H1N1 (swine flu) and steps you can take to protect your family and those you care for and when to seek medical care.
Links to many resources, including information on eldercare, long-distance caregiving and federal benefits programs.
Fact sheet explains what adult day care is, how centers operate and what to look for in an adult day care center.
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