[PHI Redacted] Although some people regain their
normal platelet count and go on with their lives,
for a large number of ITP patients the disease
becomes chronic and refractory to any known
treatments. Chronic ITP patients can experience
fear, different types of bleeding from mild to
severe, and even death.
[PHI Redacted] a number of
treatments for this disease which include
prednisone, splenectomy, platelet transfusions,
IVIG, Winrho, Danazol, and Rituxan. All of these
treatments have a variety of undesirable
side-effects, which include high blood pressure,
weight gain, psychological problems, diabetes, an
increased risk of infection, and that is just part
of the list.
This is a frightening disease with persistent fear
of serious bleeding, in addition to living with
bad side effects, very frequent blood draws,
doctor visits, and hospital admissions, as well as
the financial hardships that go along with these
things.
I am pleased that researchers have continued to
look for better treatments for ITP. Nplate is a
new medication used to increase platelet count
which has shown promise in clinical trials and now
has been approved by the FDA.
I feel it is very important that Nplate be made
available to all patients with chronic ITP,
whether they be Medicare, Medicaid, or private
insurance patients. ITP patients need all the
tools that are available, in order to live with
this disease, and, in some cases, even go into a
remission.
Thank you for your consideration in this matter. |