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ELSI Policy and Legislation Online
- American Academy of Pediatrics: Ethical Issues With Genetic Testing in Pediatrics
http://aappolicy.aappublications.org/cgi/reprint/pediatrics;107/6/1451.pdf
Recommendations on newborn screening and genetic testing in children
- Bioethics Resources on the Web
www.nih.gov/sigs/bioethics
Links to bioethics resources
- bioethics.net
www.bioethics.net/topics.php
Links to articles on bioethics and genetics
- DNA Patent Database
dnapatents.georgetown.edu
Searchable database of U.S. DNA-based patents issued by the USPTO
- The Council for Responsible Genetics
www.gene-watch.org
Information on the social, ethical and environmental implications of genetic technologies
- Ethical, Legal, & Social Issues
www.ornl.gov/hgmis/elsi/elsi.html and
www.genome.gov/10001618
Information, articles, and links on a wide range of issues
- Foundation for Genetic Medicine, Inc.
http://ourworld.compuserve.com/homepages/CarolASThompson/geneticm.htm
Information on the science of genetic medicine, genetic and genomic research, and ethical, legal and social dimensions and implications
- Genetics & Ethics
http://genethics.ca/
Information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology
- Genetics and Public Policy Center
www.dnapolicy.org
Information on genetic technologies and genetic policies for the public, media and policymakers
- Genome Technology and Reproduction: Values and Public Policy and The Communities of Color & Genetics Policy Project
www.sph.umich.edu/genpolicy
Two subprojects combined to form a five year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology.
- HumGen
www.humgen.umontreal.ca/en/
Access to a comprehensive international database on the legal, social and ethical aspects of human genetics
- National Information Resources on Ethics & Human Genetics
http://genethx.georgetown.edu/
Links to resources on ethics and human genetics
- NCSL - Genetic Technologies Project
www.ncsl.org/programs/health/genetics.htm
Status of legislative actions and acess to policy briefs on genetic issues of concern to state legislators
- The President's Council on Bioethics
www.bioethics.gov
Information on current bioethical issues
- Scope Note Series (Kennedy Institute of Ethics/ Georgetown University)
http://bioethics.georgetown.edu/publications/scopenotes/
Information on various aspects of genetics and ethics
- THOMAS Legislative Information on the Internet
thomas.loc.gov
Searchable database of U.S. legislation
- Your Genes Your Choices
ehrweb.aaas.org/ehr/books/index.html
Describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project
Last Updated: February 19, 2009
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