New Educational Videos
Baby Steps - Learn the Signs, Act Early:
Helps parents measure their children's developmental progress by monitoring how they play, learn, speak and act. Early recognition of developmental disabilities is critical for obtaining early intervention for children with urea cycle disorders.
Put Your Hands Together: Learn how to help stop the spread of colds and flu and stay healthy.
Plate Full of Color: Teaches kids the value of eating a variety of colorful and healthy foods.
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New! NUCDF Family's story featured on CBSSports.com
"It's No Sacrifice: Daddy's Little Girls Overshadow Hoops, All Day Every Day"
NCAA assistant basketball coach, Jeff Strohm, left his promising career after two of his daughters were diagnosed with a urea cycle disorder, argininosuccinic aciduria (ASA). The journey began when ASA was detected in one of his twin girls on newborn screening. After learning about the symptoms of ASA, the Strohms realized their 5-year-old daughter had been showing signs, and she was then also diagnosed with ASA. The Strohm's are committed to helping NUCDF raise awareness and support research. Now with Triple Crown Sports, Jeff has organized an NCAA tournament in November, "Cancun Challenge," which is helping raise awareness of urea cycle disorders.
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Special Survey about current treatment options mailed to NUCDF Families
"That was easy!" says Tresa Warner, OTC mom, after completing the online version of the survey.
NUCDF, in collaboration with market research firm Harris Interactive (Harris Poll) and a biopharmaceutical company, recently conducted an important survey of UCD patients and caregivers. The survey results are critical to increasing the understanding of issues concerning current treatment options faced by patients and caregivers. Survey and instructions for both paper and online versions were mailed to NUCDF families October 21, 2008. Deadline for completion was November 7, 2008.
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Over 80 Pediatricians attend Educational Symposium on UCDs sponsored by NUCDF
Boston Sheraton Hotel, Saturday, October 11, 2008
"Inborn Errors of Metabolism: A Practical Approach to Identifying and Managing Urea
Cycle Disorders," presented by Dr. Mark Korson
Audio CD Available for Medical Professionals: To request audio CD contact Boston Symposium CD
More Information on Symposium
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