437 Snydertown Road
Craryville,
NY 12521
518-851-2612 (Voice)
518-851-2612 (FAX, )
The Xeroderma Pigmentosum Society was founded to raise awareness about XP, a life-threatening, sun-sensitive, genetic disorder; to provide support to patients and their families through information, protection and services; and to promote research for a cure. XPS also offers a unique, international summer camp for families conducted in a UV-safe environment.
"Understanding XP"; newsletter, "XP Report" all at no charge.