1364 Welsh Road G2
North Wales,
PA 19454
800-545-3286 (Voice - Toll-free)
215-619-0670 (Voice)
215-619-0870 (FAX)
The Foundation for Ichthyosis and Related Skin Types, Inc. is a nonprofit organization incorporated in California in 1981. The Foundation is supported by public contributions and membership fees. They raise funds to promote research on ichthyosis, a rare genetic skins disease, provide advice, guidance, and support among those affected; and distribute educational material to the public and medical professionals. The Foundation uses its national network of volunteers to bring self-help and educational support to individual members and their families. The Foundation also sponsors national and regional meetings and conferences, which feature leading researchers and clinicians and allow individuals with Ichthyosis to meet each other.
Serial publication: Ichthyosis Focus (newsletter), quarterly--news about ichthyosis activities, research, support, and planning. Additional publications include: Ichthyosis--An Overview (booklet); Ichthyosis--The Genetics of Its Inheritance (booklet); Handbook for New Parents (book); and Handbook for Teachers (book).Resource fact sheets,Video-"Release the Butterfly", "Living with Ichthyosis: A Teenage Perspective."