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Support Groups Online Support Groups
The Pulmonary Fibrosis Foundation's online support group may
be accessed by A caregiver's online support group is also available: http://health.groups.yahoo.com/group/Breathe-SupportCaregivers/ This group is for people who take care of and support the people who have pulmonary fibrosis. Lung transplant. Should I or shouldn't I? Check out our newly formed online support group for Lung Transplant patients before and after. This forum will be for people trying to decide whether or not to have a transplant but also for people who have had a transplant and can share their story with those who are waiting or deciding. Here's the link: http://health.groups.yahoo.com/group/Breathe-SupportLungTransplant/. If your loved one passed away from pulmonary fibrosis and you would like to "talk" to someone, you can connect with people on our grief board: http://health.groups.yahoo.com/group/Breathe-SupportGrief/. UK on-line support groups providing support and information for people suffering from pulmonary fibrosis primarily in the UK but anyone can participate. This site is for patients, carers and people who have lost a loved one to pf: http://health.groups.yahoo.com/group/pulmonaryfibrosis & www.pulmonaryfibrosis.org.uk India on-line support group providing support to patients and their families in India who are dealing with pulmonary fibrosis: http://health.groups.yahoo.com/group/PF_Support_Group_India A South Africa on-line website has been created to give support and advice to the people and their families in South Africa dealing with the diagnosis of pulmonary fibrosis: www.ipfsg.org.za
Chicago and Suburbs, IL The Breakfast Club, Pulmonary Fibrosis Support Group Meetings: 4th Saturday of the month - 10:00 AM Location: Elmhurst Memorial Center for health Contact: Leanne Storch 312-587-9272 RSVP, please This meeting is open to Pulmonary Fibrosis patients and their families and friends.
Joliet, IL Pulmonary Support Group Meetings: 2nd Thursday of the month - 10:00 am - 11:00 am Location: Silver Cross Hospital, Specialty Care Pavilion, 1300 Copperfield Avenue Call: 888-660-4325 This support group is for individuals with pulmonary fibrosis, sarcoidosis, emphysema, chronic bronchitis, COPD & adult asthma
Naperville, IL Pulmonary
Fibrosis Support Group Location:
Edward Hospital, 801 S. Washington Street, Naperville, IL
Scottsdale, AZ Pulmonary Fibrosis Support Group Location: Via Linda Senior Center, 10440 E. Via Linda, (480) 312-5810 Meetings: Last Saturday of the month Contact information: Lillian (480) 219-6260 -Home (480) 570-9929 -Cell
Sacramento
, Meetings: 3rd Monday of the month (call for confirmation) 1:30 - 3:30 PM Contact information: Sandra Rock (916) 354-1324
Victorville, CA Pulmonary Fibrosis Support Group Location: Charitable Foundation 16716 Bear Valley Road Meetings: 1st Wednesday of every month, 3:00 - 4:30 PM Contact information: Steve Clemmons (760) 246-7711
Pulmonary Fibrosis support group Location: National Jewish Medical and Research Center 1400 Jackson Street, Denver Meetings: Every other month Contact information: Carol Bair, RCP, (800) 423-8891 x 1621
Wheatridge, CO Pulmonary Fibrosis Support Group Location: Exempla Lutheran Rehabilitation Center 9830 I-70 Frontage Road South Conference Room Meetings: Last Tuesday of the month 2:00pm – 3:30pm Contact information: Brenda Crowe, CRTT 303-467-4133 or Phil Konsella 303-526-0541 or 303-324-7679
Dover, DE Pulmonary Hypertension / Pulmonary Fibrosis Support Group Location: Kent Pulmonary, 938 Bradford Street Meetings: 2nd Tuesday of every month, 6:30 PM Meeting information line: 302-328-3107 option 3
Newark, DE Pulmonary Hypertension / Pulmonary Fibrosis Support Group Location: Christiana Care Hospital, 4755 Ogletown-Stanton Road Meetings: 3rd Tuesday of every month, 6:30 PM Meeting information line: 302-328-3107 option 3
Fort Myers, FL Pulmonary Fibrosis support group Location: HealthPark Medical Center, Room 2A 9470 HealthPark Circle, South Ft. Myer Meetings: Second Friday of the month - 1:00 PM Contact information: Marge (239) 481-0582 or Dana (239) 335-7720 West Palm Beach, FLAmerican
Lung Association of SE Florida PF Support Groups/Lectures Location: Good Samaritan Medical Center, 1309 N. Flagler Drive, Teleconference room Meeting: Times Vary Contact
information: Mary Shields (561) 659-7644 (please call for reservations)
Pittsfield,
MA Private
Dining Room B Ground Floor or
cfezzie1@berkshire.rr.com for
meeting dates and times
Baltimore,
MD
Bay
Bridge Breathers
Harbor Hospital's LifeResource
Center 2990 S.
Hanover St.
Meetings:
Monday - noon
For those with emphysema, chronic bronchitis
and pulmonary fibrosis.
Contact:
410-350-8255 for specific meeting dates
Ann Arbor, MI
Contact: Emily Chartow at:
734-998-7012 Email:
echartow@umich.edu
Sterling Heights, MI
Support Group
Meetings: 2nd Tuesday of
each month: 1:00 to 3:00 PM
Contact: Darlene S. Watkins,
RRT 586-573-5763 Email:
darlene.watkins@stjohn.org
Morristown,
NJ
North\Central
Jersey PF Support Group Meetings:
Last Wednesday of every month, 7:00 PM
Contact
information: Barbara Murphy - bjmurphy21@comcast.net Sleepy
Hollow, NY
Pulmonary
Fibrosis Support Group
Location:
Phelps Memorial Hospital, 701 N. Broadway - Pulmonary Gym
Meetings:
Thursday - 12:30PM - 1st meeting June 1, 2006
Contact
information: Susan DiFabio - 914-366-3712 IPF
Support Group Location:
St. John Health Plaza 1819
East 19th Street, 1st Floor Meetings:
3rd Saturday during March, May, July, September and
November Contact
information: Leon
Simmons, ipftulsa@tulsaconnect.com Eugene, OR Spirited
Breathers support group for PF patients & families Location:
Sacred Heart Medical Center, Oregon Heart Center
conference room 1255
Hilyard Street, Eugene Meetings:
Second Thursday of the month, quarterly meetings
3:00 - 4:30 PM Contact
information: Susan:
(541) 686-7442
Tualatin,
OR Pulmonary
Fibrosis Support Group Location:
Legacy Meridian Park Hospital, Community Health
Educational Building 19300
SW 65th Avenue Meetings:
1st Thursday of the month, 3:00 - 4:30 PM Contact
information: Karen Saveride: (503) 692-2158 Pittsburgh,
PA IPF
support group Location:
UPMC Presbyterian Conference
Room 1102, 11th floor Meetings:
First Monday of every other month excluding January, July
and August, 1:00 - 3:00 PM Contact
information: (412)
802-3275, sirnmonslLD@msx.uprnc.edu
Chattanooga, TN
Alliance for Pulmonary
Fibrosis
Location: Diaganostic Center
Building
2205 McCalle, Conference
Room A, 1st Floor
Meetings: 3rd Tuesday of
every other month from 5:30-7:00pm
(June 16, August 18, October
20, December 15)
Please RSVP Monday before
to: Becky Black 423-645-4912
or Heather Lacy 423-697-6177
Nashville,
TN Middle
Tennessee Support Group Meetings:
Second Monday of the month, (July's meeting will be the third Monday)
12:00 noon Speakers
will provide educational information and lunch is usually provided Contact:
Wendi - (615) 322-2386 Website:
www.mc.vanderbilt.edu/root/vumc.php?site=ipfcenter Pulmonary
Fibrosis support group Location:
Kelsey Seybold Main Campus 2727
W. Holcombe Boulevard, 2nd Floor imaging conference room, Houston Meetings:
Every third Saturday, every other month. Contact
information: Jan
Orndorff: (281) 348-2378 (281) 844-5300 (cell) or Jan3145@aol.com Falls
Church, VA Location:
Inova Fairfax Hospital, 3300 Gallows Road, Conference
Center, Room 5 Meetings:
Varies Contact
information: Jane Harrison: (703) 776-3203,
jane.harrison@inova.com Everett,
WA Pulmonary
Fibrosis Support Group - Lung Rangers Location:
Medical Office Building -1330 Rockefeller - Rainer
Room - Ground Floor Meetings:
Third Tuesday of the month, 4:00 - 5:30 PM For
information call: (425) 261-3780 Seattle,
WA Pulmonary
Fibrosis support group (in existence for 15 years!) Location:
American Lung Association of Washington 2525
Third Avenue (downtown Seattle between Cedar and Vine) Meetings:
Second Tuesday of every month (except July-August), 1:00 -
3:00 PM Contact
information: (206)
441-5100 North
Staffordshire, UK --
FIRST BREATH OF LIFE FOR CHEST ILLNESS GROUP Additional
Support Groups
If
you know of any additional support groups that are not
listed above or would like to participate in the formation
of a new group, please email:
pulmonaryfibrosisinfo@yahoo.com Pulmonary
Fibrosis Foundation Last
updated
August 10, 2009
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